Welcome, Friend!

It looks like you're new here. If you want to get involved, click one of these buttons!

Veritas-Health LLC has recently released patient forums to our Arthritis-Health web site.

Please visit http://www.arthritis-health.com/forum

There are several patient story videos on Spine-Health that talk about Arthritis. Search on Patient stories
Protect anonymity
We strongly suggest that members do not include their email addresses. Once that is published , your email address is available to anyone on the internet , including hackers.

All discussions and comments that contain an external URL will be automatically moved to the spam queue. No external URL pointing to a medical web site is permitted. Forum rules also indicate that you need prior moderator approval. If you are going to post an external URL, contact one of the moderators to get their approval.
Attention New Members
Your initial discussion or comment automatically is sent to a moderator's approval queue before it can be published.
There are no medical professionals on this forum side of the site. Therefore, no one is capable or permitted to provide any type of medical advice.
This includes any analysis, interpretation, or advice based on any diagnostic test

11 yr old w/ DDD, Stenosis, Bulging discs, Hemangioma

AnonymousUserAAnonymousUser Posts: 49,671
edited 06/11/2012 - 8:28 AM in Lower Back Pain

My 11 yr old son was just diagnosed ( MRI ) with stenosis, DDD, bulging discs ( L4-L5 and L5-S1), and intraosseous hemangioma on the S3

he has severe back pain, numbness just above his left hip, and urinary incontinence. Going to see the Neuro again next week for further diagnosis and treatment ( hopefully).

I have had 2 back surgeries and still suffer from back and sciatica pain daily. will have my 2nd epidural shot tomorrow. My father, aunt and grandfather also had the same problems. It does run in families.

I regress...

This is really about my son. He has been having back pain for almost 2 years now ( meaning his problems began when he was 9 years old ). It has been extremely difficult to get his PCP to believe it could be anything other than a muscle pain. He told us that these kind of things just don't happen to children. I think the worst part of all of this is the lack of treatment for pain regarding children. Motrin and Tylenol do not help and as of today, not one doctor has been willing to address his pain. Perhaps they do not believe his pain level could be high... but he has told me that when you press his lower back, pain jumps to a 8-9 on a 1-10 scale and with activity his pain level is around a 6 or higher.

I am writing this to let others know that it CAN happen to kids. You are not alone.

I do have one question, does anyone have a Hemangioma and if so, how did the doctor confirm it was benign and not something else. On my son's MRI report it was stated that the lesion "appeared" benign. How do you know for sure?



  • First let me extend to you both my empathy, I feel for you both,specially your son. I was dig. with R/A as a child. now I read the words from my MRI that the doc. didn't even bother to explain to me, That i have a tumor (intraosseous hemangioma ) big word. and the Doctors should be ashamed of themselves and step down resign to treat your son you me and millons of others this way. as to your Q i have no answer as I just learned that that's what I have over the internet. yeah over the net. that's how i came across your Q - Look up - Bonati spine institute they are willing to read the MRI report and in the case of your son may even get involved in helping somehow someway, also there is SSI or SSA i would suggest you get him benifites and Medi-care

    if your in calif. Ceder Sinia hospt. and Loma Linda University may and I bet will be of big help.

    Sorry I cannot be of more help as my mind is Reeling from this - learning over the net of my condition - i knew i had a problem cause of syptoms yet tumor Whoa. Blown Away. what a Cheesy doc. and Broken Medical system we have here in america - all the while we the us armed forces give better treatment to millions in other countries.

    your welcome to write me gsmorin1@hotmail.com as I am going to Dig Deep into all this
  • Wow...I'm so sorry to hear about your son and also that it was challenging to convince the doctor it was more than muscle and/or growth pains.

    I hope you have been able to find a specialist that works with children. If not, hopefully you can find a good pediatric team that is willing to work with a good spinal team to treat your son.
  • It makes me so angry that doctors can't or won't take the time to explain things or answer questions.
    It seems like everwhere you go it is a managed practice and you have your 15 minutes--no more--and the doc tries to get away with doing the least amount of work, or spending the least amount of time, as he possibly can. So many, myself included, have come to this forum with questions and concerns that our doctors did not address. Think how many others are out there that never found this forum.

    I am so sorry to hear of the problems your child is having. I will keep him in my prayers. Please let us know how he is doing.
  • the original post is from March 2009 and that account has been deleted. You're a couple of years late.
  • I never even looked at the dates!! Hope everything turned out well for them!!
This discussion has been closed.
Sign In or Register to comment.