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11 yr old w/ DDD, Stenosis, Bulging discs, Hemangioma

AnonymousUserAAnonymousUser Posts: 49,671

My 11 yr old son was just diagnosed ( MRI ) with stenosis, DDD, bulging discs ( L4-L5 and L5-S1), and intraosseous hemangioma on the S3

he has severe back pain, numbness just above his left hip, and urinary incontinence. Going to see the Neuro again next week for further diagnosis and treatment ( hopefully).

I have had 2 back surgeries and still suffer from back and sciatica pain daily. will have my 2nd epidural shot tomorrow. My father, aunt and grandfather also had the same problems. It does run in families.

I regress...

This is really about my son. He has been having back pain for almost 2 years now ( meaning his problems began when he was 9 years old ). It has been extremely difficult to get his PCP to believe it could be anything other than a muscle pain. He told us that these kind of things just don't happen to children. I think the worst part of all of this is the lack of treatment for pain regarding children. Motrin and Tylenol do not help and as of today, not one doctor has been willing to address his pain. Perhaps they do not believe his pain level could be high... but he has told me that when you press his lower back, pain jumps to a 8-9 on a 1-10 scale and with activity his pain level is around a 6 or higher.

I am writing this to let others know that it CAN happen to kids.

I do have one question, does anyone have a Hemangioma and if so, how did the doctor confirm it was benign and not something else. On my son's MRI report it was stated that the lesion "appeared" benign. How do you know for sure?



  • I am mortified to hear about your son. He is so young to have this awful pain. Demand that the PCP send him to pain mgt; I'm on a medication that is given to 2 year old toddlers (Fentanyl patches). Children can have severe pain and I don't understand why even doctors scoff at this. My son had surgery when he was 1 1/2 years old and he was given liquid hydrocodone (vicodin) for it.

    Your son has an MRI supporting the pain he is having and in no way, shape, or form should he be denied proper pain mgt. My heart goes out to both of you because of this hereditary problem. I'm worried about my son too because my husband and I have back problems, and mine is severe. He too complains about his back aching and he does have very mild scoliosis in which Motrin is helpful to him and he doesn't need it all the time. I am incapacitated by my chronic back pain and nerve damage and have undergone 2 surgeries and all kinds of treatments, but I still struggle with it. I hate to see this happen to young people, especially children. Your boy should be running around having fun and not have a care in this world. Don't take no for an answer when it comes to him. If one doctor won't treat him or refer him to a specialist, find another. Take him to the ER if he hurts too much. All of this should make the doctors stand up and pay attention. And also I have to say that I'm sorry you're having trouble with your back as well and hope you get better too.

    I have a hemangioma on L2 but it's left alone so far. I guess they'll address it if it gets too big or something. Hemangioma are usually benign, but please verify about your son's case with the doctor. Best wishes for you both and I hope your son gets relief from his pain.
  • It has been a fight the entire way. From the intial appointment with the PCP to getting the MRI results from the Neurosurgeon. It has been 7 days since his MRI and I had to drive to the hospital myself to get the results. The neuro's office claimed they could not get the results from the hospital and will address his problems at the next vist. They told me to call his pediatrican for pain relief. The pediatrican ( who insists motrin and tylenol should be enough ) has no idea what the MRI results are but also refused to address his pain since he is under the neuro's care. I can't blame them ... it really falls with the Neurosurgeon right now. It's just sad they downplay pain levels in children but are quick to write a prescription for cough syrup with codine if they are coughing!

    Thank you for the kind words. I know so many of us suffer with pain ... I wish you well also.

    My back history:

    L2-L3 minimal diffuse disc bulge and facet arthrosis. Protrusion with annular tear. Narrowing of foramen.

    L3-L4 minimal diffuse disc bulge bilateral facet arthrosis. Small right protrusion with annular tear and narrowing of neural foramen. Broad based protrusion with annular tear extending into left foramen with moderate narrowing.

    L4-L5 mild disc bulge with annular tear, Bilateral facet arthrosis. Mild right and moderate left foraminal narrowing

    L5-S1 ( AFTER 2 SURGERIES - laminectomies ) still have mild disc bulging with broad based central protrusion.

    Severe DDD, retrolisthesis, and stenosis

    Currently meds: Vico 7.5/750 , motrin, awating 2nd spinal injection

  • That pediatrician needs to utilize a great invention called telephone and call the Neurosurgeon and get something done. There is no reason why your son should be in pain while these two are diddledallying around when they could do the human thing by prescribing something in the meanwhile. Ridiculous! It don't matter if he's in the NS's care-someone needs to get off his ass and help your boy. Needless suffering really upsets me. Have you tried ice packs and heating pads? I wish I could help you guys out, but I'm in a pickle too but I will always give moral support. My heart would break to pieces hearing my child cry in pain, I just could not handle it. As a parent, we would prefer to bear the pain instead of our children. I don't know how you deal with yours while caring for your son's-you're a hero in my book.
  • hi!! i so feel for you and your son. >:D< i was 15 when i ruptured two discs in my back and was told i had DDD. :''( i was told throughout my teens that it was impossible for someone so young to do such a thing. to make a long story short, i suffered for many years and without my mother there beside me i don't know what i would have done. :X stay close and do what you are doing, standing up for him!! try and find a doctor who cares!! :D there is one out there!! all the best! :) Jenny :)
  • Since I was blessed with this problem I was determined to educate the world about this situation. Unfortunately my kid’s doctor did not take me seriously, until my son ended up in the ER with partial upper body paralysis form a minor sports injury to his neck. After his MRI which clearly showed saver steno sis. Had he had a 20min Standard MRI the steno sis problem would have been apparent and precautions would have been taken. Had this minor incident not have happened he would have started full contact foot ball that coming school yr he could have been killed. After this incident all the kids in my family including sisters 4 brothers 2 and my 3 were tested. It turns out; my kids, my sister’s daughter, and my brother’s kids all have cervical steno sis. It would have been better if they inherited my good look, not my neck problem.
    My family is now involved in a genetics study we can only hope something positive will come out of all this

  • I am so sorry to hear of his pain but glad it was found now and he hasn't had 20 or more years of it. I too started having back problems in early teens (12-14) and was always diagnosed as muscle spasms and then after a few trips to the ER in high school and college accused of pain med shopping. It would get manageable over time and then flare up again. Finally, 7 years ago a new Dr said...get and MRI, I'm sure there is nothing there because you're so young but let's do it. Boy was he surprised to see the herniated disc. Epidural shot took care of it that time but it became unbareable again in April of this year and the MRI showed a complete rupture into the spinal column displacing 2 nerves and at 33 years old I had a Laminectomy/discetomy last month. What I didn't realize is what I thought was knee and foot pain the last couple of years was actually coming from my back too. The MRI also shows DDD, spurs and bulges in my lumbar and cervical area. We don't know if all the years of high school sports did it or if there is some hereditary issues predisposing me to it. Please everyone, take this as another warning that it can occur in children.
  • I am so very sorry to hear about your son's pain. I have a nine and 11 yr old sons and I cannot fathom them being in the pain that I have to be in. It must be so hard. You are your son's fighter and you have to fight for his health and happiness. Do whatever is necessary for him to gain some relief. Change doctors if you have to. There is no reason that poor child has to suffer. I wish you and your son all the very best.
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