I was diagnoised with Tarlov Cysts Disease last Sept. I have back pain that radiates down my left leg. I have been seeing a pain managetment doc since last Nov., have gotten 2 rounds of epidural steroid shots. It didn't help me at all the first time. I got more March 2 and the day after was wonderful, no pain. On the 3rd. the leg pain returned but not as bad as it has been. Then on the 4th I started having increased back pain. So I am not sure about getting any more of them. :<
I take Neurotin for the nerve pain, and also have demoral for the pain when it is bad. It has been so bad that I had to crawl to the bathroom, I thank the Lord that it isn't like that all the time.
I also suffer from depression, anxiety and painic attacks, and fibromylgia. I have been sick most of my life, I have an ilestomy due to ulcertive colitis. And had to have several surgeries since then. And now this new disease tarlov cysts. I know there are a lot of people that are worse off than I am, but sometimes it just get me down so bad. My animals help me a lot, a teacup chichuchu, at cat and a horse. My horse is a big stress reliever for me, but now I don't know if I can ride anymore, breaks my heart. But hopefully I will be able to do more ground work with him. I have taught him to do several tricks, my passion. I hope this disease isn't going to take this away from me, but if it does I will just have to do the best that I can. :''(
I am sorry for all the venting, I hope I meet new friends here and I hope that I can be a friend to others, take care,