I'm Donna and I'm so glad to find this site. I'm 45 years old and have had chronic back pain since an injury 15 yrs ago. I had 3 discs blown out, spinal stenosis and i have degenerative disc disease. I've had all the injections, tests and pain killers about 14 drs could think of and eventually ended up having an anterior and posterior spinal fusion with bone grafts L4-S1 in 1997. Why don't they warned you how painful bone grafts are Before your surgery? My body rejected my own bone so it took 12 months to recover from that surgery (6 months using a walker, another 6 mos with a cane). I never did get any pain relief from this surgery. After going through 2 pregnancies 16 months apart My Dr found the screws had come completely out of my spine and I needed a fusion revision including one more level. This time I was fused from L3-S1 and again more bone grafts. I never did get much, if any relief.
After being told by several drs that I should learn to live with the pain I had left, my back finally started to worsen last year. I have just had another CT scan done and my new surgeon has told me I have a bulging disk at L2-L3 and need the rods and screws replaced in my spine. He also believes I have scar tissue growing through the nerves in my spine.
Unfortunetly, I can't have this surgery done yet. I was just diagnosed 3 weeks ago with Avascular Necrosis. A bone disease which limits or stops blood flow to the bones. The head of the femoral bone in my right hip is 3/4 dead. I now need a total hip replacement in this hip. Since I am also having pain on the left side, my dr believes I may also have this in my left hip since 85% of the people who have this in one hip also have it in the other. I need to have this hip replacement done very soon before the joint collases so my back must wait until I recover from this surgery first. The pain from Acascular Necrosis is comparable to bone cancer pain. All of this on top of the choric pain I have in my back and legs.
I saw a pain management Dr today who put me on fentanyl pain patch and percocet for break through pain. My surgeon says he will have a very hard time controlling my pain after my hip replacement in April because of my chronic back pain.
It has been very hard to deal with this chronic back pain which has just gotten worse for the last 15 years. To now have this hip pain on top of it has been unbearable.
Sorry this is so long, As you can see, it's 3:58 am and I'm awake, I don't sleep because of the pain.
It would be nice to have someone to talk to who understands how excruciating back pain is.