I just wanted to update you guys as some of you may already know, I went to see a neurosurgeon for a second opinion since I'm still in quite a bit of pain 8mos post op ALIF L5/S1. This doctor was great and took the time to point out everthing, listen to me, comfort me when I become upset about his news and offered words of encouragement for me. He took one look at the CTScan I had in Nov 2008 (the same one that my surgeon looked at and told me everything looked great) and he said I am suffering from failed fusion and hardware. 2 screws are broken and the body didn't generate the bone needed to create the fuse between L5/S1. Hearing this was very heartbreaking and I don't remember too much after that. Thank goodness my husband was there. He said that they will try a bone growth stimulator to see if that helps but he doubts it will help much. He would also like me to look into the SCS spinal cord stimulator and is sending me to pain management as well as aqua therapy. He said surgery would not fix my problem if my bones won't fuse. He said I should try to focus on staying as active as I possibly can in my position and to lose weight. I told him I've been trying and he was very comforting and said he understands how hard it is when you are in so much pain.
One thing he can't do is complete disability paperwork for me cuz he only does this for his patients post op. Also since I was not a patient before, he said I may have to go to my orthosurgeon who did my surgery for the bone growth stimulator. He also told me that the reason why my pain mgmt doc and surgeon said they couldn't help me any longer is because they stop accepting my type of insurance. It all makes sense now. I had a feeling that was why. How cruel is that!?
So what I am to make of all this news? I am feeling a ton of different emotions right now. One positive thing out of this is my husband for the first time realizes that I am not making it up and can now understand how much pain I really am in. The doc showed my husband the broken screws and nonfusion on the ctscan.
After that appt, I had 2 other appts for SSDI about 1 mile from this doc's office. I was there for 3 hours to see 2 docs and each doc spent a max of 5 minutes with me. The rest of the time I was sitting in the waiting room. By the time I got home I was physically and mentally exhausted. I just wanted to put this post out here and then I am going to lay down and rest. I'm so sore from sitting around for all those appts and having them move me all around plus I am trying to absorb all these feelings and emotions I am feeling at this moment.
So, for the first time ever, I am requesting prayers for me. I always feel selfish asking people to pray for me but I really feel I could use it right now. Thanks for always being there for your fellow Spiney.