Welcome, Friend!

It looks like you're new here. If you want to get involved, click one of these buttons!

Veritas-Health LLC has recently released patient forums to our Arthritis-Health web site.

Please visit http://www.arthritis-health.com/forum

There are several patient story videos on Spine-Health that talk about Arthritis. Search on Patient stories
Protect anonymity
We strongly suggest that members do not include their email addresses. Once that is published , your email address is available to anyone on the internet , including hackers.

All discussions and comments that contain an external URL will be automatically moved to the spam queue. No external URL pointing to a medical web site is permitted. Forum rules also indicate that you need prior moderator approval. If you are going to post an external URL, contact one of the moderators to get their approval.
Attention New Members
Your initial discussion or comment automatically is sent to a moderator's approval queue before it can be published.
There are no medical professionals on this forum side of the site. Therefore, no one is capable or permitted to provide any type of medical advice.
This includes any analysis, interpretation, or advice based on any diagnostic test

My wife

AnonymousUserAAnonymousUser Posts: 49,671
edited 06/11/2012 - 8:29 AM in Chronic Pain
Hello, I am looking for a little information regarding my wife. She has scoliosis, degenerative arthritis in spine, two ruptured disc's. Her disc spacing is all messed from the scoliosis. On one side the disc space is none and the other very large, this is on multiple disc's in her lower back. Her disc are degenerative, and all this is seen through an x-ray, no mri as of yet, but the doc said if all this is evident through and x-ray the mri will show much, much more.

So she is on percocet 10/325 #140 per month, flexiril, phenegrin 25mg as needed, and nortriptyline, glucosamine sulfate and ibuprofen 800 3x daily as needed. In all these neds she has no ER pain med and even with the percocet she is still on a roller coaster of pain, they work well but it is up and down between doses and often times they are not even controling the pain well. Would a ER release med help her with the up's and down along with the percocet? If so how should she approach her doc with this as I know directly asking for a certain med is can be unwise? Also if the change is made how could she talk to him about keeping the percocet for BT pain? She would feel uncomfortable not having the percocet and the ER not controling the BT pain and having to do alot of visits over a short period with limited benefit insurance.

Thanks, any sugestions or similiar experiences would be great on how you made this possible without getting cut off all together or looked at funny and turned down, which is not hard to do with the way the docs are under pressure today from the....


  • i see you also have a thread in the lower back section same topic....i am refering to this post....( pain meds

    I am new to this site, am am looking for some help. At the present I am on percocet 7.5/325 3x's daily, and it is not even touching my back pain. I am on a contract with my dr for this. I want to ask him for more per day, or something that is time released I don't want to get cut off all together though so how would I approach my dr about this and get results. Also I am worried about the tylenol in the percocet, I know that 325 x's 3=975 well under the daily allowance for tylenol, but when you consider long term how does this affect the body, and is it really necassary to have it at all. I have heard good things about dilaudid and oxy 15-30 ER. hOW SHOULD i APPROACH HIM TO TRY TO GET MY PAIN IN CONTROL? What I am taking now is like whats the point, they are exspensive and not doing much for my back.... looking for relief without a funny look and shrug...)what gives?
  • My wife also has terible back problems, worse than mine so I was trying to get some info about her. Whether or not i have a ost on the same topic is erelevant this post is for my wife, so either you have some advise or -you don't. Don't act like you regulate here.
  • I had the same up and down pain control and so I just sat down with my pain Dr and told him that I didnt like the way I was having to take pain meds every 4 hours and explained to him my ups and downs. I never suggested what I should have. Only that I wanted to regulate my pain better. They will suggest to you what they think you need. I was put on MS Cotin, but it made me so sleepy all the time that he switched me to fenytal patches.
  • Thank you I will make sure she does this, today she is in so much pain it just hurts me to sit around helpless...
  • It's called learning how to control your, or your wifes pain. everyones tolerance is different, so she must discuss it with her Dr. There is nothing wrong with saying what you are on is not working. I have had to changes meds and dosages for a few years now to find the right combination for me. I have a great Dr. so it makes it easier. I hope you both have a Dr. you can talk to. A wonderful nurse once told me "with the medications available now there is no reason to live in pain". Best advice I think I ever got.
  • Hi jojo,

    I suffered from chronic pain for years.I have progressive DISH syndrome and another Doc called Forestier's Disease.I aso have RA as well. Anyway, my spine has been auto-fusing, dics herniated into my spinal space, cutting off my nerve roots and causing problems with choking and spastic esophagus for many years.

    I'm losing feeling in my legs and arms and have searing pain down my arms and legs. I long to stretch, but my body won't let me. Spurs that "aren't suppose to cause pain" have acted like thorns on my bundle nerve roots, as I am jam packed with them. I'm suppose to have surgery again in my neck, which has aleady been done, and my lower back!...NO Way! The Devil I know is better than the Devil I don't know. I've had too many procedures that were suppose to be only "Mild Discomfort" to be left with not eating for six months...ice cream and chocolate that melts in my mouth....I had a Nissen Fundoplication of the esophagus three years ago and I've been left with severe chest pain a few times, every two to three months...ER VISITS!

    I've been on flexeril, nortriptyline, Lortabs, tynol #3,etc. I've been so frustrated with doctors telling me I'm not in pain, or "it shouldn't be that bad." My MRI's don't lie, I have a compressed spinal cord in my lower back x4 spaces, and my neck (above and below my neck plates at 4-7 c/spine)x 4 spaces. The Ladies in my church would like to see God give some of these docs my life for awhile, just to see how they'd handle it, but I told them, those thoughts weren't Christian and I'm right, no one should be allowed to suffer pain with such a lack of compassion!

    Yes, I had spinal fusion in my neck. It helped with the choaking, but the pain for a little while, then came the domino effect!

    I saw a therapist because of the chronic pain and that was the best thing I did. He was also a pain manager. He tried something new for me, and I don't think I can name it, but it is used in drug addicts to get them off addiction, but they have made great progress using it for pain management. I was a different person on this medication, very clear headed and comfortable for the first time in years. However, nothing good can ever come to us with out someone poo whooing it. It isn't accepted for use by everyone. Nurses who don't have the education to understand the use of this medication, see you as a drug addict. My doctor has to put on the medication bottle....FOR SPINAL PAIN! It really worked for me, but it is my misfortune that my Therapist is no longer treating pain managment, he's helping American Vet's.....which is very very noble, as he is so kind and the most compasionate person I've met. This med has work me and I could get through my day with energy and I was pain free for the first time in years. Since this medication treats addicts, it is not addictive, say my doc, you get accustomed to it. I was able to get off it easily, with not fuss or bother, which proved my doc right! I have to find a new pain managemtn physican, and I don't want to start from square one all over again.

    Tell your wife to find a "Therpist, Pain Manager" Quality of life is so very important, verses the alternative, which some docs can watch their patients go over that edge by doing nothing for them,only treating them with indifference. Some docs and nurses are very afraid to give CA patients the medication that will allow dignity of life, fearful of turning their CA patients into drug addicts..no different for us Chronic pain suffers! Why can I be so judgemental on Nurses???? I'm a nurse and have delt with many of them regarding the compassion issue on terminal patients! They would like to to think they are all knowing, but their not, they just act that way. I'm always bumping into Nurses that think then know a subject matter, only to give false information on the topic. Nurse can really make you feel unworthy of help!

    If you are sticking by your wife...God Bless you Man, as there is nothing that makes pain worse than seeing your significant other finding someone else to make him happy, while he grows in distane for you and you feel so trapped in your situation. We don't want this pain, we don't want to live this way, and it all comes down to finding the right compasionate physican that can manage both the sorrow cause by the pain and the pain itself. Tell your Bride to hang in there, help can be found!

    One thing I have held on to is my faith. Being strong spiritually was a major help....it gets both of you through some tough times. My docs often remark on my attitude, I smile a lot and try to help others, often forgeting my own pain. I seek happiness out, as it won't look for me!

    A little story...I was on crutches for almost a year, because of knee surgeries and I was on a huge pitty party. I remember swinging thru the crutches while I was looking for cards, feeling truly sorry for myself....when....I turned the corner and there sat a man with no legs! I always, no matter how much pain I'm in, I always tell myself that I'm better off then some one, some where!:)

    Best Wishes,

  • dilaurodilauro ConnecticutPosts: 9,849
    People tend to look out for others and try to help as many people as possible.
    Your comment:
    jojomuffintoe said:

    so either you have some advise or -you don't. Don't act like you regulate here.
    is something that is not warranted here.
    One of the major positives about Spine-Health is that it always trys to welcome new members and at times help guide them through the posting process. There are certain ways posts can be made to achieve wider exposure and acceptance.
    So, please, do not take the previous comment as something that you should be upset about but instead realize the meaning of it and the purpose.
    Looking at face value, your comment was only to incite the previous poster. Lets hope this type of posting does not continue.
    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
  • Dilauro, I felt like I was being questioned about my honesty. I would like to tell you I am a honest person but this is a site on the net and I know ones word is not of high credit. When I responded to the person this is about I meant what I said and would not take it back, as you can see I have ahd time to think this over. I am well aware of what I said and how I said it, and if this is a site that show special attention to those whom have been here for a while then I think that is wrong. The new ones are the important ones, make them feel like they are welcome not embarrased and questioned. You stated, "Looking at face value, your comment was only to incite the previous poster."
    If you were not familiar by the name of the other member and his status with you, then you would have realized your correction was directed to the wrong member. I was the one being cited from the other member, I did nothing to deserve such a thing as that. Your moderation was pointed in the wrong direction. I ask that in the future you consider how you responde and place your favortism aside. I am a member at this site as well and would like to be treated like one, no matter how long or short I have been here. The way you jumped into this was uncalled for, however if you were to make a correction it may have been proper to find the right place to critique. With all do respect, jojomuffintoe
  • GiGi! I am sorry, I have been through this as well, ever visit to the ER ended me up with a referal to another doctor, doctors that thought I was just some younger guy seeking pain meds. I remember one I went to said I was not in to much pain, but on that particular day I had no meds for 2 days. My blood pressure was 140 over some outragous number, but he still thought I was not in to much pain, I felt like knives and ice picks were being stuck in my back and twisted. It was so bad! So this doctor gave me 30 lortab 7.5/500 and said they were to last me a month. I had already been taking percocet 7.5/325-2 every 4-6 hours, he said "that is to much" I wish he could have just felt the pain for a minute. This office was shady anyway because they made me pay 193.00 before I even saw the doctor. So the lortab lasted me about 6 days and I called for a refill and they said you have to come see the doctor and pay another 193.00. I said no way and went to the ER my mother works there and most of the Dr's there are great. It is amazing when the ER does more for you then a family doctor. The wait for this Dr was about three hours just another thing that was added to the list. I hope you feel better, and may you find Grace.

  • I started with 30mg once a day then 2x30mg day and finally 4x30mg day. I rarely need to take a percocet for break through pain. It's important to get back to the Dr. and say the med only lasts a short period. It's not in no way going to bother the DR. continue going to the Dr. several times to get the right meds that will help your wife. My husband has had a hard time dealing with my illness. I've had back pain and off work for 14 months. I've gone to 2 Orthopedic Surgeons, a Neurologist as well as I'm waiting for a NeuroSurgeon appt. also. I've also been to 2 pain Management Drs for injections that have helped the pain in my leg as well as injections for facet joint pain(arthritis)arthropy. Your Dr needs to refer your wife to a Pain Management Dr. I've also had 2 PM Drs for 2nd opinions. Everyone should get a 2nd opinion or 3rd opionion if they're told they need surgery also. I also take Lyrica for sciatica pain as well as amitriptyline. Is your wife taking nerve pain meds? Bring a list of questions for each Dr. and his treatment for what med does what effect on the body. I'm an ER RN and have been out of work for 14 months they're going to hold my job for 2 years. Hopefully I'll heal on my own but it's been alot of work physio,injections and about 9 meds aday. I found a cane also helps. Good luck to your wife. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • I'm sorry to hear how bad your wife is feeling, and I can't imagine what both of you two go through having similar back problems to deal with. I believe an extended release med will greatly benefit her, and I think the doctor may keep her on the percocets. However some doctors believe in BT meds and some don't. A trained pain specialist is very aware about pain breaking despite taking the long acting medicine and will prescribe something for it. I'm on a very strong extended medicine (fentanyl patches)and I still require 6 Percocets a day for severe constant back and nerve pain. Well, I hope things work out for your wife and I'm sorry she is suffering like this. I know it's hard for you as well and I wish you both the very best. Take care
  • dilaurodilauro ConnecticutPosts: 9,849
    I judge members by their behavior regardless if they are longtime members or new ones.
    I did not, nor do jump into anything unless I have found something that needs to be addressed.
    And that is exactly what I did

    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
  • We all make them, it is important to admit when we do and try to make our amends to those whom get caught in the cross fire. I will agree that there was an issue in need of being addressed but the issue was not that of mine. I enjoy this site and most of the members here, so I would like to stay and be active with them. I think it is terrible that some of us have to live with so much pain when there is medicine there for just that. When I read a post of a member that is hurting all the time and the meds are not working and/or the doctor will not give more it frustrates me. My wife has RA, scholiosis, DDD, osteo arthritis, and I am sure more we dont know about because her insurance has just started. I 2am usually awake at night from my own pain, but she is usually moaning and just about crying because her hands and baack hurt so bad. This is hard for me to deal with, but I do. I love her and will be with her forever. She goes to a family doc that does pain management but he is limited of what he can do, without MRI and specialists. She has so much wrong even the specialist would probably just give more narcotics. Well hope we are good now.
  • She nhas recently gotten insurance but it will not cover pre-existing conditions for 12 months. The Dr she goes to does pain management program, but its just for internal meds, but he is wonderful about this. I am not sure is he is comfortable with the high power ER meds, because she has been on the IR percocet for a year, ever now and then he will give her 10 more a month but no ER meds. I think he is doing whats in her best interest because if he gives her the ER now it will close some doors on the quality of relief she can get in the future. I think he is saving this type of meds for a last resort of relief, she does get relief from her meds but there are just so much time in between that she dont. Recently her hands have been hurting so bad she moans and groans at night, this is tough.

    Thank you for responding and your support, I appreciate it greatly!
  • For your support and responding to my post, it helps me to know there are others out there with similiar problems. I dont know if the doc she sees will do the fenanyl maybe, all the hype right now with people overdosing has left the docs scared to prescribe it. Once again thanks for being here for me, and if there is anything I could do for you let me know. I will be creating an e-mail for corresponence with this site.
  • first let me say this is a wonderful site and nobody wants to fall out with anyone. Ron and the rest of the mods are very knowledgeable /fair and kind people .anyway back to the pain control for anyone suffering with the terrible plight that is chronic pain .your doctor is the finest person to talk to about pain , as he or she knows you and your condition and will be able to tell whether you are a genuine case or not .my pain doctor had me on too little amount of pain control for my condition {because he did not take the time or do the investigations to establish the extent of my illness} as a result i found myself in A&E requiring more drugs over the weekend .this i know does not look good and i was treated badly by the emergency team at the hospital because the wrongly assumed that i was a drug seeker {the reason is they dont have you up to date medical records and they can only deal with what they see at the time } so back to my doctor i went and explained to him how bad my pain is and how poorly i was treated by the ER staff and the so called pain consultant!} he apologised and without a problem he put me on the correct does of medication and i have not had to up the medication in the last18 months .so my doctor got the dose correct ..unlike the pain consultant!! my doctor is a CD trained doctor he deals with addicts and is used to spotting abuse but can also tell when some one is genuine .the fact that he has my up to date medical records to hand and i see him every 6 weeks also helps .i was worried about talking to him because i was going through my monthly script in about 15 days .but they say honesty is the best policy and for me it was the correct thing to do .i am still in pain and always will be as my condition is a degenerative one {like many on here} but now i have the drugs to help me get through the month ..a good rapport with your health professional is essential where chronic pain /intractable .pain call it what you like is involved
    i have also found a high powered TENS to be beneficial in conjunction with the pain killers .maybe that may help others?
  • Thank you for taking the time to respond, this has been a great expieriance for me at this site mostly, and if there was a problem I am working on it. I see my doc quarterly, and my wife sees her doc monthly or by monthly whatever they decide at the visit for the next month. I was doing alright throuout the day but my meds where falling short at night, so I had my dose adjusted recently, things have been good for me, still hurt all the time but I am able to control it better now. I went through alot with doctors before I was taken seriously, finaaly I found a doctor that believed me and ordered an MRI, the results were bad for a 29 year old man. DDD,

    1.Facet joint hypertrophy, 2.two herniated disc, 2.two compressed disc, 3.osteo arthritis, 4.narrowing of the central canal various levels.
  • I would get a 2nd opinion PM Dr. I went to one for 9 months and I wanted a 2nd opinion and I've had facet joint injections and epidurals that have relieved alot of pain that the other PM was doing trigger point injections that didn't help too much for me.. Just putting that out there. It doesn't mean she has to stop seeing that one. But injections have helped my facet joint pain and epis have helped the leg pain. I hear myofacial release may help also. Take care. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • I'm just checking on how things are going for you and your wife today. I hope both of you were able to get some sleep. It's miserable to be in pain all the time, and any notion of doing anything goes quickly out the door. I try my best to be positive, and I distract myself whenever I can (right now I'm watching NBA playoffs). I would like to go out by I don't feel up to it, so I'll stay in and watch games all day long. Anyway, I have my PM appt next week and I hope my percocets can go up to 10 mg to see if it works better- that's up to my doctor of course. Well, take care of yourself and feel free to PM whenever you need to.
  • Well we are alright, we both have our meds, but we just got a letter today stateing that my wifes insurance is not going to cover her Dr visits because they are unsure how long she has been being seen for this. We are trying to clear it up, hopefully we can and they will pay for it. She really needs an mri, just the x-rays showed scoliosis, DDD, severe arthritis in her spine, her disc space heights are all out of whack. On one side there is about 3/4 of an inch and on the other side there is mm's. This spacing is multy level on many disc's. I am just praying the insurance thing will work out because she needs a specialist.

    I was fortunate to get a Dr at the ER to order an mri months ago because of all my visits he did this, and probably got tired of me going there. We have tried the same with her but the Dr was never there when she went and most of them will not order an mri because they know most dont have insurance. I guess when she cant walk then she will get one and maybe a specialist. My wife gets the percocet 10/325, But that is all she gets along with flexiril, phenigrin and nortriptiline she had to stop the nortriptiline because it made her vision all blury. I hope he will give her a ER med soon because at night she is in alot of pain and the percocet work well "I can tell" but the up and down pain is really taking a toll on her and me as well.

    Thanks for your concern, it is really valuable to me and my wife! I am here if you need me.
  • just want to say from being on here just a couple of days i am now going back to my docs this week to say meds arnt doing wot they should as im in so much pain,,,,,,,,,we tend to put up with it dont we, hope it gets better ,go,s away evan, we dont like to bother people! i know i get fed up with sitting in the doctors try another med that may or may not work but right now id rather be sitting there in pain trying to do somthing about it than sitting here crying screeming inside thinking theres nothing i can do ......we have to keep trying ;) jan xxx
  • Going back to the original topic, it's true that most of those meds wear off in only a few hours, often way before you're allowed to take another. Perhaps she should try Fentanyl patches, which are extended release for 36 hours and supposedly pretty safe to use. This can be combined with other drugs, if necessary.

    But the patches don't stick too well to some people, and taping them on can result in the drug being absorbed by the tape, rather than the person. If you apply these for your wife, don't handle them without gloves or you'll absorb the stuff into your hands.

    Oxycontin is another ER drug that contains the same drug as Percocet but without the Tylenol, I think. Some people have a drug they can take for break-through pain, in addition to their other drugs.

    Rather than Flexeril, I use Soma as a muscle relaxant, and unless I combine the Soma with my Lortabs or whatever opioid I'm using, neither the Soma nor the opioid provides much pain relief. I sometimes combine Tramadol with these, as well, and take ibuprofen for inflammation.

    NOTE -- You should NOT take Tramadol and Flexeril together. If taken alone, Tramadol gives me no pain relief at all but does seem to "boost" the opioid a little so that it works better. Flexeril seems to not help me at all, whether taken with other drugs or not.


    My story -- DDD, spinal stenosis, bone spurs, herniated and bulging discs, nerve and spinal cord compression, lotsa pain of course, and two multi-level fusion surgeries -- cervical and lumbar. The lumbar fusion was at L3-L4-L5 on March 12, 2009. Yep, only a few weeks ago. But 10 mg Lortab, Soma, and Tramadol in combination keep my pain levels very tolerable, normally. Percocet combined with Soma also works well for me. I needed stronger stuff immediately after the surgery, though (Morphine, Demerol, Fentanyl Patches, Soma, etc.)
  • I noticed some comments about the difficulty in getting pain meds. I have had DDD, spinal stenosis, lots of bulging and herniated discs, bone spurs, nerve and spinal cord impingement, etc. and have had two multi-level fusion surgeries (cervical and lumbar). Despite my obvious need for them, I too have trouble getting my pain meds. I know what works best for me, but the doctors are reluctant to prescribe them and sometimes those in the medical profession, including pharmacists, treat you like a drug addict when you take prescription pain meds. I have had times in which I had to endure severe and totally disabling pain, as a result.

    It is not my fault that some people abuse these drugs or use them for "recreational" purposes. I need them desperately and should not have to suffer because of the actions of others. Due to my high pain levels, these drugs do not cause me to feel "high" or doped up. They help me function better and think more clearly than when my brain is pain-fuddled.
  • I hope all works out at your Dr. I know how hard it can be to get your Dr. on the same page. For me it took finding the right Dr. If I felt like I was mistreated or not given the opportunity to get the right relief for me , I would not go back to that Dr. I was not Dr. shopping at all, I always made sure they knew what the previous Dr. gave me and how much I took and how long it lasted, which in most cases was not long. I am blessed to have found my current Dr. He is open and wants to keep me in good state of mind, along with controlling my pain. I only have to see him because he takes care of me all around, if I am sick he treats me with antibiotics or whatever is needed, for me this is how it should be for all. Your Dr. is responsible for you, so whatever is needed to keep you feeling well and out of pain as much as possible "as long as the benefits outweigh the negative." Most of us know that no pill is going to eliminate our pain all together, but keeping it under control is very possible.

    Good luck, Jan xxx!
  • I posted the last one to many times, it was an accident, my pc was not posting it so I kept hitting the post button; "SORRY"
  • jojomuffintoe said:
    I posted the last one to many times, it was an accident, my pc was not posting it so I kept hitting the post button; "SORRY"

    glad im not the only one it happens too!!! :))( =))
  • LoL..I was button happy just wanting to click...
This discussion has been closed.
Sign In or Register to comment.