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going back to Oxycontin

dmoonchildddmoonchild Posts: 383
edited 06/11/2012 - 8:29 AM in Pain Medications
Well, Ive tried the Fentanyl patch for a month now. I was really hoping it would change my life, but things have gotten worse. I started out at 50mcg every 72 hours...my Dr changed it to every 48 hours and still no relief. 2 weeks ago he upped it to 75 mcg. It is better but I get exactly 24 hours of feeling ok. My husband and I actually timed it. My Dr called to see how I was doing on it and I told him. He said we can go back to oxycontin on Monday ( my next appt). The problem is is that he doesnt prescribe over 40 mg of oxycontin. I was takin it every 12 hours. That only lasted about 6 hours for me, if hat. Im so hoping he will allow me to take it 3 times a day. Im so sicj and tired of not having a life. I cant do anything. The kids are starting T Ball and I wont be able to take them. This pain is just sucking the life out me. Im getting so discouraged, and not only is my lumbar hurting, its now my upper back. It hurts to breathe and I cant turn around. Does anyone use Oxy 3 times a day and does it make a difference?


  • but I do know that it is very strong! My husband took it for one month, and one month only. Thank god for that! He was so horribly moody, miserable, you name it with that med. It was also awful to come off of it :(. I hope that you can get back on it if you find that is what controls your pain. >:D< >:D< >:D< >:D<
    I also do know about the kid stuff. I feel horrible not being able to do the things that I want to with the kids.
  • I don't take oxycontin, but I take MSContin, 30mg three times a day. I take Oxycodone 15mg in between for BT pain. These I take when I start hurting. If I do more, I hurt more, and vice-versa. So, I don't take as many of the oxycodone when I am not being very active.
    Regarding the MSContin (or morhphine which is a long acting med) I don't really notice that much of a difference unless I don't take them. This does not make sense, I know, but I only notice how well the medication works when I don't take it for whatever reason (if I leave home without bringing some with me, poor communication between office staff and doctor, holidays falling within refill time and unable to get them since it's against policy to fill early, if I think I don't need them, etc).
    I tried the patches. But, they had to be changed every 2 days rather than 3, and then I'd forget to change the patches and I just found them to be counter-productive. I just could not wrap my head around the fact that even though I was not taking medication when I hurt did not necessarily mean I was not getting pain relief (doing something like taking a pill at least make be feel like I was being proactive in relieving the pain...). See? I am a complicated individual. I am still trying to figure me out.

    Hope you find some pain relief. Soon. Keep us posted.

  • I know how you feel when you say the pain feels likes it's sucking the life out of you. I feel that way often. My kids are both in sports and I drag myself to their practices and games. Most of the time I sit in my truck so I can be more comfortable. My kids are growing up so fast and I don't want to miss out on seeing them grow up. It's amazing the guilt I feel for just missing a practice..let alone a game. I missed my daughter's first cheerleading competition last year and I still haven't forgiven myself for that. I have to try not to be so hard on myself.

    I'm trying to get my doc to change me from mscontin to oxycontin. He originally tried to write Rx for oxycontin but my insurance need a prior authorization number and he didn't try to get it, just said they wouldn't approve it. I've told him the mscontin wears off after 6hrs then I take my BT meds. I am now taking 1-2 BT meds/day which is supposed to be saved for major flare ups. He says I need to learn to deal with pain and get back to work. This was before my new diagnosis of failed fusion and broken hardware. I'm waiting for a return phone call from them to see if I can get this changed or have mscontin changed to 3x's per day.

    We all just want to find a way to be at a level that's atleast bearable to live with and continue on with raising our families and take care of our households.
  • Oh I have a mojor case of the guilts with my kids and my husband. Some days I feel like such a failure. My house is a complete mess. Im not asking to be pain free, but I really am just trying to get some quality out of life. Since my latest MRI showing several herniations in my upper back and along with my lumbar being a mess, Im not too hopeful for my appointment with the neurosurgeon on April 27th. I will be asking for other alternatives such as SCS but for now, I want to watch my kids grow. And yes they grow up so fast. I feel lik Im missing it all.
  • hi
    i have been taking both the oxy drugs for 4 years now and i have found them to be very good with out many side effects {only constipation } remedied with movicol} i take 80mg of oxycontin and 20mg of oxynorm in the morning and at night and 4x20mg of oxynorm throughout the day.its a fine pain killer ..i would say that it take about 50% of the pain away
    320mg per day if you were wondering! this may sound like a lot but there are many on here on a lot more
  • This combo is not doing the job. :( It is a general practicioner potion. The Soma makes me very foggy. Darvocette is going off the market. A year ago a medical person recommended morphine, but the GP did not get it - could not comprehend debilitating pain.
    I use ice, heat, patches, traction at home, TENS, and it takes up most of my life - only able to work part time as my right arm lost its function after neck fusion. Anything I do that presses on my hands and arm causes a pain episode that does not go away for days. Half the time I wear a sling. The arm is there but no good. :O Any household activites create severe pain reaction, even writing. I want a medication that works all day and actually lets me use my right arm and not feel like my neck is porcelain and I have to consider every move I make. My lower back disk herniation was removed but then came back when I fell.
    So entire right side from neck into upper back r arm down to hip area lowwr back is compressed in pain. My right side is pretty useless. This started with a fall injuring my upper back and worn out neck disks with bone chips resting on nerves in my right backbone. I lost my life as I knew it and now everything takes 5 times at least as long to accomplish. I can't afford a lot of help in my house or yard, so it is frustrating that I cannot do it.
    That's my story I hope to find a medication that works all day and night to help me get my life back and actually date and do activities such as walking, hiking and lifting. What works for everyone else?
  • I have been taking Oxycontin since my surgery, November 23, 2008.

    I initially was taking 60mg twice a day, but it was wearing off way too fast.

    I have been on 60mg three times a day for approximately 3 months now. It will sometimes wear off around the 6 hour period, but this dose seems to work well the majority of the time.

    Hope you get on the proper dose you need to relieve your pain.

    I can very much relate to your frustration with pain... I am a mommy myself.

    Best wishes to you.


  • Just a guess, here, but reading your post, sounds like the "shots" he gives the receptionist are not on the "up and up". It may be just the way I read your experience, but seemed like when you mentioned the shot is when he went ballistic on you and tried to get you out the office as soon as possible.

    Gosh - he was being such a JERK! Can't blame you at all for changing doctors. One thing I'd have done differently, though, is not letting them know you are switching doctors.

    Well... it's a shame that whole ugly scene occurred. I hope this next PM doc treats you with the respect, compassion, empathy and dignity you deserve.

    Keep us posted!

  • Jeaux, The jerk was the one who suggested I find another Dr. He said he couldnt help me anymore. I think you hit the nail on the head about the shots. Gee I hope I didnt get the receptionist in trouble, she is a sweetie and always very helpful.
  • I'm sorry your doctor caused that scene in front of his patients and staff and humiliated you. I was in shock as I read what happened. Is he the new PM doctor that you switched to after having problems with your old GP? Yikes. Hell yes it's time to move on- you did the right thing quickly. I can't figure out the deal with the shot thing; at family clinics they give you Nubain (narcotic) shots when you're in a lot of pain, and also Stadol and Toradol. Why would he blow up if he stands to charge more for the office visit by giving you one. You should call the business manager about this situation, they don't like blow ups and it looks bad on the clinic. At least put a complaint in so it can be documented. Did he write the Oxycontin for 40 mg's ? I hope you have enough meds to get you through until you find another doctor.I really don't think this has to do with asking for the office injection because it makes no sense. Maybe he's frustrated because the Fentanyl didn't work out, who knows? I have heard of doctors getting this way when things don't go as planned. Also, he mentioned that he hears "what am I supposed to do?" from many patients, and I think this is also strong indicator that he is burned out, or worse- he's being audited by the DEA. Whatever it is, he should NOT have treated you like that and it was cruel and unprofessional. Just keep your head up and move on, and hopefully this horrible episode will be a distant memory. Take care sweetie >:D<
  • dilaurodilauro ConnecticutPosts: 9,859
    that was an animal disguised as a doctor. Even if the doctor did not like what was going on, didnt agree with you, whatever, they does not give the doctor the right to treat you like a criminal.
    I can imagine you were totally taken back by surprise about the comments and making it known to everyone else.
    Well, thats the time, you stand firm and put the doctor in their place. They may have a lot of degrees and a lot of education, but that does not make them any better than you or more.
    There is a level of common courtesy that should always be part of the situation.

    On another note.... IF you can really avoid it, try not to go back on any Extended Release medications, at least no longer than a month. Sometimes we have flare ups that give us more pain. A short stay with Extended Release medications should get you past the hurdle. I believe that every patient should have an objective to
    - Eliminate Extended Release Medications
    - Limit the use of Breakthrough Pain Medications
    - Work hard to get your body , physically and emotionally to deal without narcotic pain medications
    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
  • Im still in shock and getting more angry as the day goes on. Im starting to remember more of what he said. He also criticized me for not working. he said when you first came to see me in July 2008 you were still working, and now look at you!Im telling you guys this Dr was totally off his rocker. Thank God for my wonderful husband. This Dr now has me questioning myself and what I did wrong. I did NOTHING wrong. I am so sick of people treating me like this. Maybe its my mistake for expecting human beings to be good. Ive had my fill of rotten people in the past year. Im done! The only good people in the world are my family and all of you Spiney's!Im officially dropping out of the human race!
  • I can't believe how you were treated. I agree with meydey, you should report this to the office manager and make sure something is put in your file. You never know what he is putting in your file regarding that visit. What if he puts something in there indication he thinks you are a drug seeker? From the sounds of this man, it wouldn't put it past him to do that. This would prevent you from getting the level of care that you need from another PM.

    I'm glad that you made an appt to see a new PM and I hope he/she is more sympathetic and understanding. The other doc needs to go on vacation or find another job that's more rewarding to him.

    What does your husband think of that? I bet her wants to go down there and pop him in the face for treating you with such disrespect.
  • He is definitely way out of line. Do you think that doctors everywhere do this 'act' sometimes, hoping to dismiss you and then you leave their facility volunteerily? I get that feeling this is how they do it.

    My current OS is treating me the same. Just last week, I didn't ask for the MRI or CT. The ID doc did, called him up and asked him to order the CT. When he saw me, he was a little furious already. He said in an aggitated voice, 'I know you want the CT.' I didn't even suggest it, the ID doc did. Then he said, 'I am ordering an MRI.' Now I spoke up, 'Didn't the ID doc wants a CT?' Then he went on saying the MRI gives a better picture etc. He didn't even test my phyiscal nor ask about my symptoms. I think he gathered all these info from the ID doc already.

    With a final note, he yelled out at the nurse to order a MRI stat. I went for the MRI that day. The same day, he had a discussion with the radiologist, and found out about the infection. Immediately, he ordered the CT. Crazy.

    Good luck with your new appt to the pain doc. Hope you are heading the right direction.

  • You mentioned that the doctor offered to raise the Fentanyl to 75 and I was wondering how you felt while on that dose and how long did you try it for. Did you have side effects? I never had problems adjusting to it, even when I went up to 100 mcg. The thing is that I'm always in constant pain and I never experience a moment where there was no pain. When the patch wears off, the pain starts to climb fast and that's why I need the 2 day schedule.

    I read the other stuff that was said to you, and I can't help but thinking that he's put out for some reason. Doctors do get pissed when everything they've tried to do doesn't work, and unfortunately they take it out on patients. Was he irritated because of having to switch your meds? Even if he was, this behavior was abominable and he needs to be reported to the state board that regulates physicians. Not only did he humiliate you, but he also breached your privacy by having the whole office hear his tirade. This sounds like HIPPA violation to me- people have ears and are not deaf. He shouldn't have treated you like a drug seeker just because he got frustrated.

    Well, at least you have your new appt. Friday. Have you picked up your records or does the clinic want to send it directly to your new PM? I hope there's no language that is detrimental to your treatment. Just hang in there and try to stay calm (easier said than done, huh?) and I hope you find the "Dr.Ross" (ER) of pain specialists ;) Take care sweetie >:D<
  • Wow..... just wow. I am so sorry you had to go through that. Being in constant pain is depressing enough without a person you are supposed to trust to have your best interests and health at heart to suddenly turn into Mephistopheles in front of everyone around. I only remember once a doctor getting frustrated enough to ask me "what do you want me to do Kat?", and I only remember that now after hearing of your mistreatment.

    I agree that you need to report this guy, and fast. You should also get a hold of all your records from him, and go over them with a fine tooth comb. If there are lies there may be cause for a lawsuit. Protect your chance at fair treatment by all future doctors at all costs! Nobody deserves to be treated that way!

    Take a few steps back, relax, talk here on the forums, and when you are calm, start straightening out this mess with this idiot, and show him what's what.

  • the dr increased my patch to 75 with out me even asking. I have been vigil in taking my meds exactly as prescribed. My husband actually has controll of them and gives me a days worth of pills . I have never asked for early refills and have always been kind to all staff. This incident came out of the blue. Since the Dr visit, and from the total panik attack I had I have been in so much pain and basically in bed for the last three days...very depressed and trying to figure out what I did wrong. Was I supposed to lie and tell him how great he was anw wonderful I feel? NOT I was consistant and compationate care. Im hoping to get this from my 3rd PM dr. The web site says they cover all aspects of pain management from therapy, both physical and mental along with invasive techniques from injections and so forth. I also still have my appointment with one of the top srgeons on the 27th to see if he can help. Im very dissapointed. It was kinda like meeting your idol and finding out they are an ass. what a bummer. But all things happen for a reason and this may be a blessing. I am going to the office to pick up my file, when I can get out of bed.
  • dmoonchild said:
    But all things happen for a reason and this may be a blessing. I am going to the office to pick up my file, when I can get out of bed.
    Great way to look at it!
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