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New to Site and I need help

AnonymousUserAAnonymousUser Posts: 49,671
Okay, the doctor's have diagnosed me with myositis, but didn't give me a specific kind. When I researched myositis, the symptoms don't exactly fit and so I'm lost. About a month ago I started having muscles spasms in my left thigh, two days later I woke up and could bareley walk on that leg. I went to the ER and got an ultrasound and they verified that I did not have any blood clots in my leg. The pain has since spread to my lower left leg, left buttock and left foot. The pain seems to get worse when I'm lying down or when my leg is elevated. The pain in the lower leg is like a throbbing pain, where as the pain in my foot has a burning sensation on the big toe. The pain in the thigh feels more muscle related. If I sit too long, the thigh muscle gets aggrevated and starts to hurt worse. I experience the pain in my left buttock when I sit or lay on it too long. We took blood test and my doctor's says the result did not indicate any connective tissue damage or did not appear to be neurological related. He says in a couple of weeks if the pain continues we will do a muscle biopsy. No pain medication that I have been given works. Has anyone experienced this and know what it is? Can someone recommend what kind of doctor's I should seek out to help treat because I don't feel comfortable withmy diagnosis and treatment that I have been given. I'm supposed to get married in August, but I am considering putting it off because the pain in so intense. Any help would be appreciated. I am only 36, but feel like I am very old!


  • I would get an MRI of that leg. Have you ever had backpain? I guess you would or you wouldn't be at spinehealth. I would get an MRI on the back. Good luck. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • Morning I've been diagnosed with Cervical Spinal Stenosis due to Spondylosis at C4-5 Add C5-6 and Disc Herniation at C6-7. I'm a 40 yr old 135lb Woman. My 1st Neurological MD consult 3/30/09 has recomended Cervical Decompressive Laminectomy at C4 through C7. I've been having Chronic Neck pain with Left arm/hand numbness/tinglling and right middle/pinky finger tips burning sensation and Chronic/Major visual muscle spasms since October...In February I had a cortisone injection in left side of my neck,followed with nerve test.. Nerve test was negative for damage at that time. Numbness and tingling stopped in left arm /hand, but the chronic muscle spasms are still there, as well as the burning in my r finger tips. The pain level on my necks left side befor the injection was a 9-10. It is down to a 5-6 but the pain/numbness has moved over to the right side of my neck and down the r arm and spasms have returned. Went to Dr on 3/23 for followup because my pain level was again out of control ( 24/7 Pain patch and hydrocodone only takes edge off but helps ).. Dr noticed muscle athropy in my left arm and took me into do a "FREE" nerve test.. I know have Nerve Damage to left arm and my pain level is 9-10 again... Hence the MD Surgeon visit diagnosis...I hope this is making sense .. It's 2:52 AM in Seattle and I don't sleep for more than 2hrs (if I'm lucky),and I don't move from my upright sitting position to sleep and ontop of that, my pain is a 10 and Arms are having spasms. I've also been having Chronic lower back pain but I keep getting told it's from my upper muscles compensating to keep my neck safe... I call BS and I will address that next week with another surgeon visit... Thanks for reading my Vent and thank you all for sharing your stories.. I see alot of positive out there along with the negative.. In the mean time I am just thankfull my degenerative disk disease can be improved to make the rest of my years with chronic pain more tolerable and managable..

    Have a great day
  • Actually I haven't had any back pain other than when I would sleep on my stomach and my alignment would get out of whack and I would visit the chiropractor. I read through research that the leg pain could be related to back problems. What kind of doctor should I go to so that I can get my back checked out and to check out my leg other than a general practictioner?
  • My first MRI was ordered by a GP when my back and leg pain continued after physical therapy.

    So the first two were ordered by GP or internist.

    The last two were by spine specialist.
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