Hi to everyone. I joined this forum because I am a 37 year old male at a complete loss and am having trouble keeping myself going.
I've been living with a vertebra sized Hemangioma, degenerative disc disease and the cushion between L4-L5 is gone so bone is rubbing bone for 5 years now. Anyway the hemangioma has totally taken over my entire L1 vertebra and a new MRI last friday picked up a new one in my Thoracic. The pain is constant and I have been on 40mg methadone/day for 2 years. This dosage now barely keeps me functioning. Other symptoms include extreme trouble urinating at times.
I went to a very prominent Houston surgeon yesterday and he basically said I am making the pain up and ANY SURGEON THAT DOES ANYTHING WITH A HEMANGIOMA SHOULD BE RUN OUT OF THE COUNTRY! He said my symptoms scare him? I asked him if every case he sees is "textbook" and what if its not, his reply was then there is nothing that can be done.
I left the office with a complete loss of confidence in the medical profession. I felt he was calling me a liar even after I said I spend most of my time laying on my stomach to avoid severe pain.
If anyone else out there can tell me anything about help with hemangiomas PLEASE let me know there is hope and what I should do.