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I Just Joined...

AnonymousUserAAnonymousUser Posts: 49,671
edited 06/11/2012 - 8:31 AM in New Member Introductions
Hi all,
I just joined this site, and wanted to say hello to all of the fellow members of chronic pain. I am a terrable speller, so please excuse me?
I have always had a bad back, but it always got better.
I took care of my parents for 10 years, Dad died 1st 6
years ago. My mom died 3 years ago. She was only 5'2",
and over 200 pounds. She was wheel chair bound, and had
many illnesses, poor mom! It was a strugle for me, when she had
a doctors appointment, wheeling her to the car, with her
oxygen tank in tow. Helping her into the car, then lifting
the oxygen tank and wheel chair into the car.
She was in the hospital 10 times in 3 years! I think that really did my back in. After she died, I went for a bone scan & an MRI. I found out that I have Osteoporosis, Scoliosis, a herniated disk,4 buldging disks.
I have been suffering for the past 3 years, I can't even do the shopping or cooking. My son and husband does these things for me. 3 days ago, I tried to do the cleaning, and ended up in bed for 2 days.
I have tried physical therapy, but it made me hurt worse.
My husband took me to buy some items to remodel our bathroom today at the Home Depot, I ended up in tears, had to go sit in the car, the pain got so bad. I even wore my back brace, and Lidoderm patches, didn't help.
I also have Lupus, Fibromyalgia, CFS, and I am DEPRESSED!
My doctor gives me strong pain pills, which I would rather not take. But, when the pain is unbearable, I take them. I just don't know what to do, what doctor to go to??
I live in NJ, so, any advice would be appreciated.
I'm sorry to complain, but this just isn't like me! I have always been so active, now, I'm just existing. I wonder if surgery would help? :?? Oh, I forgot to mention that when the pain gets so bad, I can hardly walk.
That's my story. I would appreciate any and all replies.
Thank you all,


  • I am so sorry for your loss and also for the pain that you suffer. What type of docs have you seen? Have you been to a Pain Management doc yet? I suffered through the same as you for many years. PT that just made the pain worse, etc. A Pain Management Specialist is the one that finally helped me to be able to function. I wish you much luck as I truly understand exactly what you are going through. You will find many here that do. Please keep us posted.
  • I am sorry for all your pain the past several years. Don't ever think you are complaining! We all need to talk and express our feelings. Please research all your options surgery, pt, etc... For me surgery has helped. Not for everyone as I have found in my few days here. I'm sorry that I don't offer much help for you other than you're not alone. Please try to stay positive, if possible. Communicate with you docs. It sounds like you have good caring people around you so don't ever be afraid to lean on them to help you through this. I pray the best for you.
  • So kind of you. As for the doctors that I have seen, I went to 2 differant Arthritus docs, but I didn't care for either of them. They seemed so "cold" and came off with the "just learn to live with it attitude." That was many years ago, before mt Dad died.
    I was so caught up in taking care of them, I guess I let myself go.
    Now that I have fnally accepted their deaths, I want to try and get better.
    I'll try a pain management doctor, also thinking of a surgeon.
    For now, I have been seeing my sons doctor, she helped him with his chronic Lyme disease.
    Thanks so much for your reply! You sure do have alot going on, I wish you well.
  • You HAVE helped with your reply. Telling me that it is O.K. to express my feelings. I am really thinking about surgery, I will research all of my options. If I opt for surgery, I would go to a Hospital in either NYC, or MD. The ones here aren't that great.
    I am so thankfull for my husband and 2 sons, they take good care of me. I'm just so used to tsking care of my parents, it feels weird having to have someone care for me. :S
    I truely appreciate your prayers O:) O:) I need all that I can get!
    It's getting late, need to go to bed (|:
    I'll check on your post tomorrow. You're in my prayers, also! >:D<
  • I am a mother of six children ages 25 down to 11 years old, 3 boys and 3 girls. and a wife for the last 26 years to my soul mate. Our youngest of the boys, 15 years old, a very active athlete, has endured horrendous lower back pain for the last six months, in particular after sports activity, but kept to himself fearing that we would not allow him to play football, wrestling, lacrosse, and baseball... after we figured out how much pain,he was in, an MRI was ordered at the end of January, which it revealed the following: Bilateral pars defects (spondylosis) at L4 with marrow edema along posterior elements of L4 as well as edema in the adjacent paraspinal soft tissues, reactive related to abnormal biomechanical stresses from the spondylosis. Degenerative changes lumbar spine with degenerative disc disease, spondylosis and posterior element hypertrophy, lumbar disc displacement, including at L5-S1 with small central disc herniation. Small synovial cyst is noted along the dorsal aspect of the left L4-L5 facet joint, as well as synovial cysts on the right at this level. L1-L2 through L4-L5 generalized disc bulging at every level. Posterior element hypertrophy especially at L3-L4 and L4-L5. Bilateral foraminal disc bulges are seen at levels sagittal T2 where there is a superimposed prominence of the small disc with herniation with annular fissure on sagittal T2. L5-S1 degenerative retrolisthesis uncovering the disc with "pseudo disc" phenomenon. Bilateral neural foraminal stenosis. The Peds Ortho Surgeon referred to his care did not seemed to concerned with the diagnosis, and simply prescribed stretching prior to sports, and for us to give him Tylenol and ibuprofen therapy upon of flair ups--whatever that is supposed to be...anyway... In the meantime we had a family emergency, which took me away, while our son, who is extremely tough and never lets you know when he is in pain,having a physician who did not put any restriction upon his physical activity, our son kept working out playing sports and getting worse... As I returned home this week, I immediately observed his pain progression, so I took him to the Children ER,which after reading the MRI report from back in January of 2009, saw no need to order a cat scan to see if any additional damaged had occurred, they prescribed 1000mg of Lortab,which by the way did not touch his pain, forward us to a Peds Neuro Surgeon which has a focus on back degenerative diseases,which he will be seeing tomorrow. Has anybody any suggestions as far as pediatrics alternative treatments?
  • Welcome to S~H.

    Hey-I'd rather be at a Stones concert myself!! ;))

    Much research and time on the surgery I hope..and I wish you the very best.I hope to read more from you here at S~H,and I'm so very sorry for your loss.

  • I'm sorry you are in so much pain.

    I strongly recommend a pain specialist (as has been mentioned). My primary care doc sent me straight to a pain specialist who specializes in back pain. He had me go through PT (what kind of PT were you doing?) and has been working with various medications. THEN when those were exhausted we started talking surgery.

    The pain specialist would be able to take all of your ailments into consideration, too, and talk about quality of life.

    If you don't like the first one, find another. Be pro-active and take care of you :)

    I hope you get care... please have someone hug you :) gently of course.
  • save surgery as a very last resort. There are no guarantees with surgery it sometimes even makes things worse and then it can not be reversed. I highly suggest that you exhaust all conservative treatment options before opting for surgery. Good luck.
  • hi lin. welcome. i'm new to SH too. i understand about feeling like you're complaining when you talk about your pain to others. it feels like no one else understands what you're feeling and that the pain you feel is REAL!! however, i am finding in this environment, everyone is open and accepting and i have never been made to feel like i'm complianing on SH. i agree with the others above. i'm thinking surgery to fix the herniated disk and good, solid pain management specialists to help you live with the others. hang in there and let me know if you ever need a sympathetic ear!!
  • I'm so sorry for not getting back to any of you sooner. I finally got an appointment with a Spine & Pain Doctor. Before going, I downloaded a ton of forms to take to my first visit.
    They requested that I bring my original MRI, and reports. When I called the place where I had them done, I discovered that they had closed! I called an associated office, and they gave me a number to call, to get my MRI, but all I got was a recording, saying to leave a message, then they said their mailbox was full, click!
    I had my written reports, so the new Doctor said to come in anyways.
    I am very dissapointed. He insisted that my pain most likely didn't come from my disks, located in the L1-L4 region :??
    He spent all of 5 minutes with me, and told me that I just needed steroid injections. I tried to tell him that I have Osteoporosis, and that I've been told never to take steroids, because it would make my bones thinner! (would'nt you think that he would know this?)
    He wrote an order for a new MRI, and xrays, which I need anyway, the original ones where done in late 2006.
    I'll go for the tests, but I'm not to sure about this doctor.
    Now, I am feeling very discouraged. I don't know who to turn to, who to see?
    Is anyone familuar with the Laser Treatment? I found it online, there is a place in FL, and one here in NJ.
    I guess it's back to the yellow pages, to try and find another doctor.
  • Hi Lin.Good call on keeping the appt and getting the new MRI and X-RAYS out of this Dr.,but it sounds like he is only after ESI's..and there is a lot of cash in that.I only say this because I don't know how he could say that your pain most likely didn't come from your discs,but proceeded to offer you ESI's...where,in the L1-L4 ? ha?
    Sounds to me like he's contradicting himself just a bit.

    I don't know anything about the laser,but I would get the MRI and X-RAYS for sure(b/c they can sometimes be hard to get),and take them to my NEW DR.Maybe you can ask around and find someone with a good reputation in your area.

    Good luck to you..please keep us posted,and try not to let that discouragement get you down!
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