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Creepy crawly feeling in legs

AnonymousUserAAnonymousUser Posts: 49,671
edited 06/11/2012 - 8:32 AM in Chronic Pain
Just wondering, I have lower back and neck issues. Herniated disc at L5/S1 and annular tear. I have been having weird sensations in my legs, which I do have nerve pain/sciatica and tingling numbness and all, but this is like something is crawling on me. Anyone experience that and know what it is? Do you think it can be from my back and nerves being affected? Let me know what you think! Thanks


  • hi!!! :H i have gotten that feeling in my legs and found that a lack of calcium was my problem.. :? speak to you doctor about this aspect of it.. :-C i have added calcium to my diet, through food and a supplement. i very rarely have the "Creepies" now! =)) good luck and keep trying till you find what works for you... :D Jenny :)
  • Hi ulyssia, I've got the "creepie crawlies" going on all the time. I think it feels more like electricity though -- like licking a 9-volt battery. Mine is definitely related to disc issues although they cannot determine exactly what is the cause so I'm in a morphine induced "holding pattern" 8} (actually more like (|: ) until something changes enough for the docs to diagnose anything. Nothing has taken it away except for my very first ESI. That gave me temporary relief (several months). I hope you are able to resolve it easily, keep us updated on your progress! I'm sure your MRI will be helpful.

    Jenny, I've tried many things, including a super B-vitamin supplement (Metanx) with no positive results. Maybe I should ask the doc about trying a Calcium supplement, although my bloodwork keeps coming back normal so I'm not sure if they'd be concerned about that. I'll ask next time I'm in.

  • I get that too, the doctor wasn't sure if it was nerve related or restless leg syndrome, as it generally happens at night.
    APROUD CANADIANveteranButNOTa doctor, my thoughts are my own
  • I got that all the time right now at this minute I have a buzzing in my knee and sometimes its somewhere else goes up and down my legs and is a pain in the ass (sometimes literally ). I have not tried anything to get rid of it I just deal with it.Good luck
  • hi all,
    i had the very same thing for months and months before my surgery it was so deliberating.
    i was told it was the damaged nerves and the lyrica sure did help it.
    way back on the first issue of SH there was a post about the same thing and someone described it as ants running up and down their legs!!! i think this was a very good explaination off what i experienced.
    i totally sympathise with all off you whom are having these symptons.
    mine did improve after the surgery but i am back on the lyrica now, i just couldnt deal with all the severe pain again,the thought off that scares the hell out off me and i know it will return sooner rather than later!!!
    good luck to all!!!!

    LOVE P
  • Just wondering if others experienced it. Its very weird because I already experience pain, weakness, numbness and tingling. It does feel like ants or bugs are crawling on my feet and lower legs. I do know I have some nerve impingement so maybe that explains why its happening. Last bloodwork I had done was normal, so I dont know if my calcium is off or not. My foot gets numb off and on, used to be just right foot now its both. Right heel goes numb an left 3rd and 4th toe.. I tell ya, this back stuff has some weird stuff that comes with it. When I was pregnant, I had restless legs SOOOO bad that I would put all of my weight on my legs and sleep on them to put them to sleep. I know it wasnt good, especially for blood clots, but I didnt get one thankfully. It was the only relief I had. That totally sucked and I still get that sometimes. More pain and numbness now, I dont know which one I hate more. They both drive me nuts!!
  • When my spine problems started I would get the feeling things were crawling up the side of my leg and was constantly brushing what ever it was off.
    As it turned out I had a ruptured disc in my Lumbar spine...L4 & L5...and it was pressing on the nerve that runs down the side of the legs.
    So yes, I would say that sensation could be caused by a nerve problem. Mine was.
    I no longer have that creepy crawley feeling but I do have savage leg and foot pain caused by permanent nerve damage.
    Best of luck to you.
    Hugsssssssss >:D<
    Patsy W
  • I have cervical myelopothy C5/6
    On an average day my pain levels never go below 6, when I experience a flair up usually its 8- to 10 , and the flair ups can last for weeks until it subsides,

    I’m constantly dropping thing, all glass ware in my house was changed to plastic, I have ceramic floors.. I have no feeling in my hands; I can feel pressure, but no sensation. In other words I can not tell if I’m touching sand paper or concrete, and touching steel is very unpleasent. My right side has been most affected. I can still use my arms and fingers I just got to focus on the task on hand. I learned to compensate, by applying thought and patients relearning tasks that healthy people take for granted.
    I will give you a prime example; a typical day , I make my self a mug of hot coffee, I hold it in my right hand (I’m right handed) as long as I’m mentally aware that the mug is in my hands everything appears normal the second the phone rings and my concentration is broken ,another one bites the dust,
    I find it amazing how the human body can adapt to changes. I had to re learn just about everything, I always must be aware of my present surroundings. My physical situation does not compare, pain wise, to my skin sensation with out medication.
    I can describe this as the most debilitating for me, This is the reason I have such trouble describing my pain to some one:
    My neck/head/shoulder blade area –burning, itchy pins and needles, always stiff and a dole soreness but constant. most of the time not bad enough to incapacitate me but bad enough to drive me nuts, then there is my right fore arms, in a flair up situation I’m convinced its going to explode just below the elbow, this pain usually radiates to my fingers which are constantly stiff and pain full but still usable.
    Then there are my legs. Extreme itchy, burning, ants crawling, those pesky shooting pains which usually hit with out warning; sharp stabbing pains in my ankles and feet mostly. This lasts maybe a few seconds, boy do they hurt. My legs are wobbly , they work but not like most peoples, once again I have to focus on my stride. When I walk my right leg has a tendency to drag. Two winters ago I was walking on ice and some one blow there car horn behind me before I new it I was in the hospital with a spiral a tibia fracture.
    And for the icing on the cake these nasty muscle spasms
    My neurologist tells me that most of the sensations I’m experiencing is caused by the myelopothy sending wrong signals to the brain,

    I still love life
  • I have the same L5-S1 with anular tear and had numbness and creepy crawly feelings that would've drove me batty. MS Contin helps the pain as well as Lyrica and now I'm on Cymbalta for that. I had 5 epidurals and hardly get those feelings anymore, only the weakness and numbness and I need to use a cane. Lyrica was a life saver at 600mg and the epidurals. I'm going for my 3rd opinion NeuroSurgeon and if he suggests surgery I may consider it after 16 months off work and don't go out anywhere. I hoped it would heal on it's own and it's about 40% better with the ESIs. I also take a multivit-multimineral as well as have yogurt for the calcium. Take care. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • its from the nerves in your lower back receiving strange signals because they are damaged .i also get a wet feeling or hot or cold {even though my leg is normal temp} dont worry too much about it its normal with bad backs!
  • I get the hot and cold feelings too. People look at me crazy when I tell them that I feel like someone has poured cold water on my back. I get the burning too, but the cold water feeling is freaky. Anyone else experience that? My mom said she does, but she also says people look at her crazy
  • I get the hot and cold feelings too. People look at me crazy when I tell them that I feel like someone has poured cold water on my back. I get the burning too, but the cold water feeling is freaky. Anyone else experience that? My mom said she does, but she also says people look at her crazy
  • I don't necessarily get the sensation that something is crawling on me - but do get bizarre sensations and feeling as if something is crawling INSIDE my leg - which typically signals to me that I will have cramps and pain not too long after.
    I had micro discectomy done in May of 2008 - 17 months later; I am still having many issues; primarily at night or if I have to be on my feet or even active for more than 20 minutes at a time.
  • I take Requip every night and I love it! I had terrible unbareable creepy crawly feelings in my leggs. My dad and mothers side of families both had it. Calcium did help but not enough. The Requip had been a lifesaver.
  • I have had back pain in my upper back in for last 5 years due to a diving accident. Chiropractic treatment helps temporarily like 1 hr and so does massage. But it will hurts, making it almost unbareable to sit or sleep at night. The pain radiates along about 6 inches of my upper back. MRI, CT SCAN, or Bone Scan, I have never had anything like this.
    Would the pain from a herniated disc or bone spurr be alleviated for even a short time from a chiropractor?
    Does anyone know how safe cortizone injections are at the spine?
  • I've been getting that same feeling for the pass 2 months and I have Herniate disc to. So should I speak to my regualr doctor or my pain management doctor about this problem? :(
  • MommaBear65MMommaBear65 Posts: 1
    edited 01/17/2015 - 1:27 AM
    The past 4 months I've had this feeling that there is a bug or something crawling on my lower leg and sometimes u get like a electric shock go through them its on both but manely on my right leg. What could this be help me please

    There is nobody on the forum qualified or permitted to make a diagnosis, what does your doctor say?
    Welcome Message
    Susan Jordan
  • I have nerve damage in the root at C7 and this causes these feelings in my hands and feet. It is so annoying that some nights it causes me to be up all night.
  • rtconant1rrtconant1 Posts: 348
    edited 01/18/2015 - 4:26 PM
    I have similar problems. I have dealt with this for 3 years. The muscle spasms and the weird tingles in my arms and legs, everything. I had surgery in September for my C5/C6 issues. I had the myelopathy and am still having issues with the pain and the weakness including my legs. I have severe headaches caused by it also including external pressure headache issues. They said that I have the "migraine like quality headaches due to the degradation of the nerves in my cervical spine". I had a CT scan on Friday of my head and neck and apparently it was normal. I don't understand how that's possible. Something has to be wrong yet in there.
    Tracie C
  • I get waves of goose bumps that are almost painful. THey start from head to toe and keep going down. I do get the crawlies sometimes too. And I have felt like there are "drips" of something internally. I go to brush the feeling away thinking its real but there is nothing there. I get a lot of weird looks from this stuff.
    Tracie C
  • Tired of the painTTired of the pain Posts: 197
    edited 01/19/2015 - 7:41 PM
    If you just had surgery in September, some of your tingling may be due to your nerves reconnecting and firing after not working for so long. If it does not get better, you might want to get a nerve conduction test to see if you have any nerve damage from waiting so long for surgery. This is what happened to me.
  • I get this feeling to except I have multiple sclerosis xx
    K miles
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