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Is there Success Stories for Spinal Stenosis with back, hips, legs & feet pain..

AnonymousUserAAnonymousUser Posts: 49,671
edited 06/11/2012 - 8:33 AM in Spinal Stenosis
I have not had surgery yet. I am looking for success stories or unsuccessful stories for Spinal Stenosis with severe pain in the legs and feet..not to mention the back pain that goes along with it. Need advice on what works and doesn't work. Have been dealing with this for about 10 years. I am 55 years old and this summer has been one of the most painful summers I can remember..although the pain is etched permanently in my mind. Has anyone had any luck with the E-injections? Pain pills do not work for me only make me crazy and make me sleep. Thanks and hats off to all who suffer with this. May God Bless all of us.


  • LizLiz Posts: 7,832

    I had my surgery on L4 L5 S1, after so much weakness and nerve pain. I was housebound and hardly able to walk. It was a slow recovery 2-3 months of taking things slowly, the pain eased almost instantly, and after a pain-management course (no pain meds) I was able to have a life again, although never the same as pre-stenosis. I do have flare-ups but I never regretted my surgery.


    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • What about the leg and feet pain? Did you have it as well as the lumbar pain? When my back hurts usually I get some relief in my legs and feet, but when my legs and feet are killing me my back seems somewhat easier to live with. Sitting or lying is my best position (most of the time). Standing is totally out and walking for more than 10 min is almost unbearable.
    I see you have suffered terribly. My dad had polio as a young man and has always had lots of problems. I have been in pain for approx. ten years. I too am seeing my life getting stolen. Thanks for replying and God Bless You.
  • You will find many of us on the board who have stenosis. There is a good, basic article on the condition: http://www.spine-health.com/conditions/spinal-stenosis/lumbar-spinal-stenosis-treatment-and-surgery

    It seems to me that while conservative treatments are worth trying, most people with significant stenosis end up having surgery. When there simply is not enough room in the spinal canal for the nerves to fit through, there is no other way to make space than surgery.

    Depending on what level of the spine is narrowed, a corresponding nerve root is compressed. The pain will follow along the path that particular nerve takes. You can search for a "dermatome chart or map" if you are curious what nerve is causing your particular pain. They run on a predictable course -- the doctor knows if you have pain running down the back of your thigh, it is probably the L5 nerve root that is being "squished."

    Have you had a MRI and are you under the care of a spinal specialist? A neurosurgeon or an orthopedic spinal surgeon would be the specialties that are trained to diagnose and treat this condition.

    Please post often with your questions. There are many people that will be able to provide some support and share their experiences.

    xx Gwennie
  • LizLiz Posts: 7,832
    Hi Lois
    Yes, I had pain under my feet (arches) which always raised eyebrows when explaining to the surgeon. Leg weakness and pain seemed to be worse then any back pain I experienced. For 3 months before surgery I spent all my time lying down, walking and standing just were so difficult.
    This all improved 100% after surgery, standing is still hard at times, but well worth the surgery.
    Although hard for me to say which is caused by my stenosis and which is from arthritis.

    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • Lois,
    I'm concerned that you may be in the same situation I am. I was diagnosed with severe spinal stenosis 10 years ago. My symptoms included lots of neuropathy pain in my feet, including the sensation of heavy weights on the top of my feet.

    I saw an orthopedist for several years who wanted to do a fusion but I was scared of surgery. Recently I was evaluated by a neurosurgeon who ordered new MRI's and a CT myelogram. He thought he could help with a laminectomy in 3 places. I had it on 3/31.

    My pain is no better, nor has there been any improvement in mobility, navigating stairs, or rising from chairs (my legs are weak). This week my neurosurgeon told me that I had waited too long to come in. The surgery decompressed my spine but the spinal nerves are permanently damaged. I didn't even realize that this was a possibility.

    Needless to say, I am crushed.
  • I forgot to mention that I have had success with ESI's. In fact, I was told that they are far more effective on folks who have the majority of their pain in their legs. I have had relief for as long as 3 months from them, but after a while the pain relief only began to last 4-5 weeks.

    I also had spinal decompression treatment from a chiropractor. It was helpful but my health insurance did not cover it. I had about 20 treatments in all, but you have to return every few weeks for maintenance.
  • anyone diagnosed with minimal and very mild spinal stenosis at L4 to S1. I have terrible pain and I also have short pedicles that cause the measurements of the central canal to be at the lower limits of normal.
  • Hi I was wondering does anyone else have pain that starts in the buttock and radiates to the anus? I am awaiting a L5 S1 fusion and my nerves are badly crushed. I am finding this is the worst pain of all making me feel totally debilitated. I am not having any problems urinating or defecating.
    I would be grateful for any input.
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