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Need advice

kyapupkkyapup Posts: 54
edited 06/11/2012 - 8:34 AM in New Member Introductions
X( Hi my name is Donna I am 50 live in New York State, and I am absolutely miserable. I had a spinal fusion L4-L5, S-1 about 4 yrs. ago. I was in very good physical condition before surgery because like most of you I lead a very active life. A single Mom of two now 22 & 26 I worked in corrections so I was very fit. I healed well and fast. But now for the past two yrs the pain is getting worse every day, I just got on disability so I could not afford a Dr. until now. My primary has me on vicodin 1 pill 4x day which does nothing! She wants me to go to pain management and I would like some advice as to what is out there that REALLY HELPS! i COULD TAKE 10 VICODIN AND IT'S LIKE BABY ASPIRIN. i DON'T WANT AN ADDICTION BUT AT THIS POINT i AM SO ANGRY ALL THE TIME THAT i WOULD TAKE ANYTHING. My children are getting the brunt of it. I can't cook, I can't sit for long, I can't travel more than 45 min. in my car. I am going on vacation in 2 wks to honor a friend who passed. It is a 7 hr ride. Does anyone have any advice as to what to speak to my M.D. about using for this trip.I am sorry if I am babbling, but I have so much anger built up inside of me since all this happened. To top it off the person who ran the red light that caused all of this had no insurance. So I am also financially ruined. Right now all I want to do is be pain free for at least part of the day to spend some quality time with my kids. Someone please help, I don't have things set up for therapy yet so thatsgot to wait. Besides, I think only people who are going through it can only understand. Thanks for any advice you all may have. X(


  • i'm pete and i've been getting help on this site for 2 months now...
    good to meet you.
    sorry youve had this misfortune. we cant turn the clock back but we can look forward and make the best of our lot....stick with us spineys here at SH AND YOULL LEARN A LOT AND MAKE SOME FRIENDS....
    ABOUT THE TRIP....CAN YOU LEAVE EARLY AND GET SOME REST before the time you are worried about functioning...thats what i do.
    regarding drugs....i'm not on narcotics so what i do is take the max. tylenol dose along with the max ibiprophen dose and i seem to get enough out of it to somewhat enjoy myself. are you traveling with anyone else...i hope so. a long trip isnt easy
    keep us posted...pete
  • i just looked up vicodin and it has tylenol in it so forget my advice re tylenol.
    if vicodin doesnt work for you tell dr. maybe he can switch you to a different narcotic. also either neurontin or lyrica is good for nerve pain. ask him about one of them...
    in addition the anger thing doesnt help pain...only makes it worse. study some of the threads here to see how people who have been in accidents have combated their anger....pete
  • As Pete said you are amongst fellow "spineys" here. WELCOME.

    Firstly, I am so very sorry to hear that you have had such an unfortunate experience and that you are suffering so much pain as a result of it.

    Firstly, about your car journey, I concur with Pete in that it would be a very good idea to take someone with you. Secondly you might benefit from a "MEDIC-AIR: inflatable back pillow in the car. I used one of these for some years prior to my spine surgery and it really helped to take away the pressure. It is a special pillow designed for that very purpose and you can get one on line at businesschairs,com who have free shipping at the moment. There are many on line vendors where you can get one of these. The amazing thing about this pillow is that you need very litte air for it to be effective.

    On the subject of pain management, I would suggest that you go to one of the major local hospitals that have a dedicated pain management department. Pain management of itself is very subjective and if you get an understanding doctor or team of doctors who will work with you you should derive great benefit from the relief that they can provide. A proper pain management department will treat each patient individually using the latest equipment and various innovative procedures to diagnose pain and determine a patient's care needs. They assemble the appropriate interdisciplinary team of healthcare professionals who can best help you. They may not cure the problem but they can certainly help your pain.

    In the meantime, I wish you a good journey and please come back and tell us how you are doing.

    John B
  • Welcome to SH. Sounds like you are on the right track. Ask that Doc of yours for that referal to pain Management. Most pain management docs specialize in dealing with chronic pain patients. My pain management doc worked with me to find the right meds for my pain. My primary doc used to pump me full of viodin too, for a while there I was eating them like tic tacs, the orange tic tacs. While vicodin worked a little. Neurontin and tramadol have given me much more relief. Good luck kya hope yah feel better soon!
  • hi and welcome to the forum! :H we are here to offer you advice and answer what questions we can. you will be surprised what a good pm can do for you.. =D> it sounds like you need to be on a long time acting medication.. you would only need it maybe 3 times a day and would not have the ups and downs of vicodin.. after a few days your body adjusts to the meds and you will not even know you are taking it!!! :D good luck and get that good pm... :-C Jenny :)
  • Thanks for your reply to my post. I am taking someone with me on the trip, and we are planning our time so we do not have to worry about stopping often. I will keep you posted and try to look forward to this trip instead of dreading it! Thanks again and I am looking forward to making friends on this site, you included of course! :) Donna
  • Thanks for your advice, I have already found a place to purchase an inflatable pillow. I think it may help. Thanks for your good wishes and I will let you know how it all works out, including pain Management. Thanks....Donna
  • Welcome to SH :H I'm sorry you've been having such a rough time, but we understand because we've been there and know where you're coming from.

    My life is the same way despite having my second back surgery, a 2 level fusion, over a year ago. I can't sit for too long, driving is miserable, walking aggravates things, and the only way for the pain to be bearable is to lay down. I couldn't get by without the help of my pain specialist. I go to an integrative pain clinic which offers a variety of treatments to combat chronic pain. I'm waiting to pass my pain pump trial so I can get it permanently implanted soon. It won't cure me or take all the pain away, but it should help me function better. See, it's not the end of the road when you go to a pain clinic. They can help you live your life better without so much pain and suffering.

    If you get a referral to one, they will probably put you on a long acting narcotic that stays in your system all the time. It doesn't wear off in a couple of hours like Vicodin. I take 40mg of Oxycontin twice a day, and oxycodone every 6 hours for breakthrough pain.

    Well, we're glad to have you here and look forward to getting to know you. Take care
  • Dear Skibum, I need to thank you for referring to me as "Kya", you see Kya was a puppy that was given to me two months before my fusion. She was a rescue and I just lost my Dog. I think Fate stepped in that Sept. day because that puppy was sent here just to be my Angel Dog. I don't know if you like dogs, but they can be very theraputic. In three months we noticed the puppy limping, the vet said it was because she was very active and growing fast. She became a 90lb dog. I had my surgery, started to improve and within nine months returned to work for three yrs. In the meantime Kya's condition worsened. By the time she was two she had lost use of her hind legs. But she never left my side. I truly believe she was sent to me to get me through this difficult time in my life. Two yrs ago at three yrs of age we had to put her down. I will always have a special place in my heart for that dog even though I have had others.

    We now know she had Degenerative Mylopathy of the spine. But you touched my heart when you called me by her name and made me feel grateful to have had her, and to have found this site. I am proud to be considered a new "Spiney" who also had a Canine Spiney. Thanks again.......Donna
  • As a new member of SH and a Spiney I'd like to thank :H everyone who responded to my letter. I know I tend to go on a bit, but finding someone who understands finally is great! I look forward to making new friends and getting the help I need.

    Thanks again.........Donna
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