Hi I'm Jennifer,
I can't begin to tell you how grateful I am to find this site.
I had a fusion (L-4,L-5)Jan2003. The surgeon used a new technique/product called the LT Cage with BMP instead of the traditional hip graft. This was my fourth spine surgery,third with this surgeon. I had some difficult abdominal pain during the five days I was in hospital directly following surgery but went home as planned on the fifth day. The night I got home I developed some pain and a nasty burning sensation (hard to describe)in and around my spine. By the next morning the pain was more than the meds could handle and I had a fever so we called the doc and his office sent me to the ER. Great, I HATE the hospital ER. The blood work and x-rays revealed nothing but they admitted me for 48hour obs just to be safe. The pain does not resolve so they say "hey you just had back surgery,recovery can be difficult" and I go home again. Some of my frustration at this time comes from my surgeon not being available. I still dont know where he went because I've never seen him or spoke to him again, even his associate didn't know what to do because the product and procedure were new to him. Great! Home two days and the pain and burning have become unbearable,fever still present,nausea uncontrolled so I called the doc got referred back to the ER and after waiting 13hrs left that ER and went to another a little closer to home.
I was in that hospital 45days. Surgeon never returned their calls, my gastroenterologist fired me(Crohns disease and I didn't tell him I was having back surgery),my GP whom I had been with 10yrs was at wits end and I was psychotic from the high dose IV steroids and Dilaudid,Fentynl,and whatever else they had me on. No exaggeration,psychotic.
At this point my Dad and husband decide if they don't get me out of this hospital I will die. Probably a good call,not popular with the docs but still a good call.
I'm home with a port-a-cath,psychotic from drugs and I need all new docs. Let's just say that's a challenge considering I looked like a walking malpractice suit.
New neurosurg says don't think it fused and I don't think the cage is in there anymore BUT you have bigger problems from the IV steroids and the damage the 45 days in hospital. Oh and what were you thinking letting someone do this to you? Really you aren't a virgin to back surgery yet this didn't sound crazy? OK Got it.
My point in all this is I had that surgery in Jan 2003 and have never been ok again.
I have no trust left for any doc. I've tried drugs (80mg oxy 3x a day) and hate the sadness that comes with them, I've tried PT, I've tried to pretend it didn't hurt. I've been suicidal,angry,depressed and nothing seems to evolve. I'm not sure if I'm crazy. I hate not knowing if I'm crazy.
I think I'm deteriorating,my back problems have always been nerve pain,numbness but over the last couple years I've developed a place next to my spine that is so painful to even touch that I can't sit or sleep without being very,very careful. It seems to be under the muscle or tendons....I don't know but it's not going away and I've become so distrustful and disallusioned I'm not sure where to turn.
I'm a mother,a wife. I'm isolating. I'm angry. I'm on disability. This is not living.
I've obviously tried to keep this somewhat focused and of course there's more but I have a hard time even venturing out here.
Can anyone help?