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new here, wife has problems

AnonymousUserAAnonymousUser Posts: 49,671
edited 06/11/2012 - 8:34 AM in New Member Introductions
Hello, I am from Illinois and my wife is having serious back problems and I am not sure what to do. We have been to the doctor many times and she has had 2 or 3 surgeries already. One was to remove a ruptured disc (which he did not remove all of and left a herniated disc below it), and she was told she had Degenerative Disk Disease and the doctor fused her back by putting 2 18" rods going from the base of her spine, up. She had an MRI and yesterday she was told that she crushed a disk in her back (apparantly where it was fused) which no one knows how this happened. From the top of the fused part, up, she cannot stand up straight and they told her she will have to get the rest of it fused or she will be hunched over permanantly. Now she is having trouble walking for more then 15 minutes. One of here doctors tried to get her into a doctor in Indianapolis but he said he will not see her because she has had too many surgeries. I am lost and I do not know what to do. I support her in everyway I can but I do not think the fusions are helping and she says they make the pain worse. Thank you for your time and any help or advise would be greatly appreciated.


  • Hi truckhaulin,

    You certainly sound like a very supportive husband. So wonderful for your wife. There is a lot of information on this site. Most of us live with chronic pain and disability. I hope you can find some answers in your quest. Has your wife gone to a pain management specialist?

    Best wishes to you and your wife!

  • Your wife is lucky to have you by her side, being an advocate for her best interest in this matter.

    I'm sure many people in our community will post and share their experiences with you. And for information, as marianne noted above, there's plenty to review on this website.

    Take care,

  • jlrfryejjlrfrye ohioPosts: 1,110
    I am a previous fusion patient that has 2 collapsed disc from failed fusion(3 prior surgeries). I also was unable to walk any longer then 15 min. I am currently 5 weeks post-op and walking 3 miles per day. There are some surgeons who will not do additional surgeries but there are some who will. If your wife is wanting to at least speak to another surgeon for her options do not give up. I have a wonderful surgeon that seems to take the patients no one wants. I have a friend whose sister had a surgical instrument left inside her from a previous surgery and not one surgeon would touch her (litigation perhaps). He did. She drove here from 3 states away and is now living a painfree life. I live 45 minutes north of Indy so if you like you can private message me and I can give you his name and number. He is as I am told the top neurosurgeon tri-state. I have had atotal of 6 spine surgeries of which he has done three. He has been cleaning up the mess left behind by others. lol. I will never let anyone else touch my spine again that is how much faith I have in this man
    Good luck
  • Hi Trucker and Welcome to Spine Health.
    My name is Patsy,I also live in Illinois (Byron)
    I had my share of finding a surgeon myself..But I finally did. A 3hour drive to Madison.(but well worth it)
    I have a wonderful neurologist here close to Byron. but that to was not easy I went through 4 before finding him.
    I don't have the same issues as your wife. But I have many that got in the way of getting someone to help me.And all the time that past as I was looking did more harm to my body. I can speak for my family and I.It is very frustrating and I am still upset. especially with the first surgeon I seen over 3 almost 4 years ago. If I would of gotten the much needed help then I would not be in the shape I am now.. But like he and many surgeon have said after seeing me "Patsy you just have to many issues"
    I have to look at it like this.... I don't want someone cutting on me if they don't think they can help.
    The first surgeon should of at least tried to help me to find someone that could help with my neck problems.
    I had one surgeon in Rockford say I needed fused from C3 down to thoracic spine,Then went on to tell my Hubby and I in graphic pictures exactly what needed to be done and told me I had a 50/50percent of living through because of other issues.and after truly scaring us with his details.. And they where awful.. H e says "I cant help you"(too many issues)So When Mayo denied seeing me. I called Madison Wis.Myself..(This was in Jan-09)... First I had to see the surgeons spec. Neurologist in Madison,.. got in the next week(A nice lady,only have seen her the one time)She took look at all my MRI's and I boom bang she said need surgery ASAP.. seen surgeon and had surgery 2-4-09.He is a great Doc.many surgeons don't take the time to look at the whole picture and what is best for you...And I have a right to say this I have seen many..

    I do run my fingers when I reply...that's just me.

    I can give you some names.. and some suggestions.. I also worked in medical field for years before my disabilities.
    P.S. My hubby is a Truck driver in Rockford IL
    (when I started to read your post I thought it was him..but after couple sentences I realized it wasn't)smiles
    You are a Good Hubby..
    P.M. If you would like to I can give you names and phone numbers that way..otherwise you can ask me on your thread and I will do my best..If u want me to private message=P.M.you just ask.
    Who knows we could be neighbors. Byron is a smaller town, between Dixon-Oregon and Rockford. I think bout 1 hr or so from Chicago...

    Sending many smiles today (sometimes a smile can work like a pain pill, they just don't last as long, but even just a breather of relief can help.
    Hugs to all-Patsy
    P.S.I get many smiles(these days)..I'm a new PROUD grandma, June 23rd-09 Patsynow has 3grandchildren. SmilesForMiles
  • Sometimes I think it is not us who are in pain or are disabled with the biggest problems, I think mostly the torture is on our significant others not knowing and wanting us to be better. Thank you to all of you.
  • yes as a matter of fact her pain management specialist is the one who got her the MRI and noticed the crushed disk. He has also tried to get her anther back doctor with no luck so far. thank you for your support.
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