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Pudendal Nerve Implant

AnonymousUserAAnonymousUser Posts: 49,622
edited 06/11/2012 - 7:34 AM in Back Surgery and Neck Surgery
Quick History.
Chronic Back pain led to discectomy June 08. Woke up from surgery with numb bum and legs and unable to pee or poop. left hospital 10 days later (private not NHS)with indwelling catheter and enough suppositories for the entire street. Learnt intermittant self catheterisation with help of local incontinence Nurses. Bowel continued to be a problem as regularly constipated. Finally my surgeon confirmed I had CES (Cauda Equia Syndrome)Sept 08. Several months later referred to Neurologists and various specialist. Advised of a trial where the pudendal nerve is the one stimulated. Following a load of tests that were very embarrasing accepted on trial. Had temp stimulator implanted 12 July.

Next Tuesday I get the final fully upgraded permanent version. This will be similar to a pacemeaker but will be implanted in my left butt cheek. Have no feeling there so dont see it as being a problem.

It isnt really known how or why it works. From a personal point of view it seems to make it easier to poo. Less straining and getting nowhere! It seems to make the muscles there work more as they should rather than being totally paralysed as they were from the original surgery last year The nerve is continually stimulated not just when I need to use the loo. I only turn the box off when I wash. I can feel a tightening sensation in the perineal area when it switch it back on although i quickly get used to it.

It also seems to be helping me pee but I cant empty my bladder this way yet so still cath most times but this does seem to be getting better each time I try.

Pudendal nerve also goes to the sex organs so it is hoped that I will see some improvement in feeling there. Anything is better than the NOTHING I feel at the moment, Havent tried it yet though as too scared of disloging the stimulator lead that goes to the temp magic box as this comes out of my butt cheeks at the moment.

So roll on 4th August!

If anyone in the UK particulary wants to find out more about this to see if they may be a candidate for this please PM me and I can pass on more details.

J
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Comments

  • So sorry to hear of your troubles! I'm getting a perm lumbar SCS here soon. Question tho related to your situation(and thank you for bringing up a topic that many would not have the courage to do)-do you ever get "tazer" shocks to your saddle area? I mean without the stimulator in. Are using tampons painful for you? If any of this happens to you, did your trial help those symptoms?
  • Welcome to SH! Wow, you have been through a lot the last year! I'm glad you were accepted for this trial and hopefully the permanent version will give you more relief and security as time passes. I hope you will keep in touch and give us updates as it sounds like something that could benefit many others with CES.

    Good luck the 4th!

    Kathy
  • With all the side effects I've had since surgery, I'm very glad I didn't get the one you did! I'm so glad there is something to help you. I pray you get continued improvement.

    Linda


    3 level spinal fusion, L3/4, L4/5, L5/S1, November 2008. Stiff, but I can walk.
  • WOW - you've really had it haven't you? You sound so very upbeat and mentally well - kudos to you, you've been added to my list of Spiney heroes!

    Glad to know that there is something that can be done for you. Best of luck on Tuesday!
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