I was diagnosed with RA back in November 2008. I went to another rhemmatologist in Jan or so of 2009 and she repeated some of the lab work. Now, I am negative in all of my lab work. However, I have what I think is a strong history of symptoms. I have/had joint pain, stiffness, swelling, a feeling of just not feeling good almost like a getting sick but I dont actually ever do. The worse stiffness is usually the first hour or so in the morning when I get first get out of bed. My hands and fingers seem to the worst for pain and stiffness but I also have flares in my shoulder, feet area, and my elbows.
Sidenote, I have DDD in my back and have had surgery there. I was having neck pain and suffer with migraines so my nerologist ordered an MRI of the neck and for the most part it was okay but a couple disks have some problems and I noticed on three areas it mentions Osteophyte complex.
Now heres the rub.. when I saw my doctor the other day she tells me that she thinking the is not a connective disease, not RA. What?? She said all along that even though I was negative on my bloodwork it did not mean necessarily that I did not have RA, and with all my symptoms, the fact that I improved so much on Plaquenil and crashed again when I went off of it, plus I have 3 fingers on my hands that are going kinda of crooked, this has happened in the last six months or so. My questions: Why would this doctor tell me this, has this happened to anyone here, your labs are negative but you still have the diagnosis? Why do you think the doctor would change her thinking on this?
I am so very confused about all this. What would you do at this point, if you were me? Would you seek another opinion or wait it out?
Is is unusual to be negative on all labs?
Thank you SO very much for all of your help,