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AnonymousUserAAnonymousUser Posts: 49,670
edited 06/11/2012 - 8:34 AM in Back Surgery and Neck Surgery
I am new to this board and signed up to it after reading about the effects of Nucytna. I have been taking it since yesterday every 4 hours along with a fentanyl patch (75 mcg). I thought $60 bucks was bad, I paid $75! I have had 3 back procedures since Oct 07; partial removal of a disc to alleviate sciatica, discetomy,non invasive to clean out disk debris, several facet blocks, epidurals and most recently spinal fusion between L's3/4 and 4/5. I have been taking dilaudid, (not effective for me at all), Vicodin ex, ( some relief), Norco,10/325 (better relief), oxycodone (relief similar to Norco), Fentanyl, (since last fall) and now Nucytna.

I think it's too early to tell how effective it will be, however, I felt better after taking my first dosage. End of day 2 and quite honestly, really do not feel any different than I did with the Norco.

To be fair, I will continue to it and update my post every 7-10 days.



  • You're still having so much pain. I have not heard of the med you are taking. I did Fentanyl patches for a while and then just went to oxycodone. I take it occasionally now, but don't need it every day. When I have bad flare-ups and get pain down my legs again, I need the oxycodone and lyrica together. The lyrica really helps with the nerve pain.

    I hope you find something that works well for you.


    3 level spinal fusion, L3/4, L4/5, L5/S1, November 2008. Stiff, but I can walk.
  • I had not heard of this new medication either. We can all learn about it here, if interested: http://www.nucynta.com/nucynta/
    It sounds interesting. Please do let us know what you think of it.
  • I have had 2 back surgerys this year 6 screw 4pins 4 fractures filled with cadaver bone a fusion on L4 screw broke for second time on L5 doc gave me 100 mg of this new drug called nucynta this the 3 day I take it 4 times a day and I must say it really does me good close to a oxy go in for 3 surgery in 2 weeks will it ever stop LOL :SS :S I have to have a 360 degree fusion do they cut my belly open and my back??? :sick:
  • Hello,

    Well after almost 3 weeks taking nucynta, I still have the same level of pain. Today, my dr doubled the dose to 100 mgs. That may help, only time will tell. I have suffered from a lack of sleep for the past week, hoping the new dosage does not continue the sleepless pattern.

    He also has me on a fentanyl (duragesic) 75 mcg pain patch, but has me replacing it every 2 days instead of 3. I will give an update next week.

    I also started seeing an acupunturist as well as p/t 2x's per week and swimming 3x's per week.

    Good night

  • It's only been two hrs. for my first dose of Nucynta,It's knocked out most of my pain.I was on morphine sul.35mg and perocet 10,which finally had very little effect on my low back pain.I begged Pain Managment for something else.They put me on Nucynta 75mg every eight hrs. and lyrca 75 mg.
    The more I type the better my pain relief is,I'am glad it's working.I spent some time on spine-chat with some wonderful ladies,thanks for your words of kindness it really help getting my mind off my pain. Mas71, I'am looking forward to hearing back from you on any side effects.
    stenosis L-4/L-5,HNP L-5/S-1,laimnetomy with fusion,hip bone and metal fixation
  • Sounds like its very similar chemically to tramadol, it was really in June and the DEA made it a class II controlled substance. Spinalosis - if they but you on the nucynta & lyrica together how can you tell which is working? I'm glad your getting relief, regardless. It be great if to hear other people's stories about this drug - both positive and negative.
  • Hello Spinalosis,

    Day 2 on 100 mgs of Nucynta every 4 hours along with the Fentanyl patch and I am cautiously optimistic. It's been raining here in northern NJ and usually with the dampness and drop in temp, I would be climbing the walls, not today. I will give this dosage another week and then I will gladly share my thoughts and condition with this group.

    Have a good night and terrific wknd.
  • I was on Lyrica 50mg for three weeks before taking Nucynta and Lyrica 75mg,I still have some pain but not as bad as before and this is only day-one on new drug.Yea,I got much need sleep earlier today
  • I have been suffering for back, leg, arm and joint pain for most of my life. I have had the strongest of meds and after my 1st back surgery was left sediated for a brief period of time due to withdrawal symptoms being so severe from taking Percocet 10 and Oxy 80 for nearly 3 years before insurance would agree my back was bad enough to have surgery. About 6 weeks ago I was given Nucynta 50 every 4 hours for pain due to a ruptured c5 that is intruding into my spinal cord. I am due for surgery again next week. This will be number 10. The Nucynta seems to helping a great deal right now. I adjust to pain meds quickly and I am seeing how long this dosage will help before they need to increase or change me again. I am taking it with oxy 30 right now and the combination is controlling the pain for the most part. I am a realist and know that no pill will completely mask my pain. But, I do work 40 hours a week and it helps me control it so I don't find myself collecting disability at the age of 39.
    Best of Luck to everyone. I know the cost of the script can be costly but remember the copay on this drug is normally the same if the doctor prescribes 20 or 100 pills at at time. Just remind them of the cost. I was the 1st patient my doctor had tried on the drug due to my history.
    ONE MAJOR SIDE EFFECT... I have lost 31 lbs in a month due to this drug. I am still eating but I am not sure why there is such weight loss.
  • It's been a long week for me, I'am taking nucynta 75mg. every 4 to 5 hours for low back, buttock, hip pain relief and lyrica for nerve pain that I have in my feet and legs.

    I'am supposed to take nucynta every 8 hrs. as needed, that's just not gonna happen with this pain.
    Some of the effects that I notice are my taste buds get a burst senations every time I eat, kinda like eating those sweet & sour candy. MY driving is effected also, I noticed missing a couple of turns that I never miss, I assumed I was ready to drive,... NOT!

    I hav'nt been sleeping well either, about 5 hours a night and I know how important it is to sleep and eat good.
    So I'll keep going as is for now, hoping something changes for the better.

    I don't think the side effects are much of a problem overall, could be much worse. I'll grade Nucynta an "a" on side effects on me.
  • I came across your messages as I was trying to find out more about Nucynta & Opana ER, which are the pain meds my new pain specialist put me on. I relocated to another state & had to get new doc. He took me off Avinza 120 mg & these new drugs leave me in agony & unable to sleep. I don't find them effective.

    My prior docs needed me off Tylenol based & codeine meds and showed me encouraging data on Avinza, an extended release morphine, which indicated a very consistent level of medication in your body over a 24 hour period. It worked very well for me. I liked that I took only ONE pain pill a day and all the ups & downs of past meds were gone. There was no euphoria or "high" where you felt tons better followed by a "low" from the recurrence of pain few hours later like other meds that wear off. I wasn't constantly thinking about next doses of meds, feeling crappy when I was busy & forgot a dose, or in pain wishing time would speed up so I could take the next dose because my liver metabolizes everything else quickly after 15 years of pain meds. For me, I never "felt" Avinza working-it just took away the pain without highs & lows.

    I have tried everything mentioned on these boards & am happiest with how Avinza keeps consistent levels of meds with only one dose every 24 hours. That also meant I didn't have to carry around such strong meds
    with me.

    By the way, anyone familiar with fentanyl patch problems? I tried those for awhile, but was allergic. Now I keep seeing these ads on tv for class-action lawsuits on behalf of those who have died using the patch. Now I guess my allergy wasn't such a bad thing.
  • It's been a few weeks now with Nucynta 100mgs and Fentanyl patch 75mcgs, (sometimes I add another patch and cut it in half when I'm really feeling it), and my pain has been been manageable. I have been averaging a 6 to 6.5 on the pain scale which is great for me. Looking forward to the day, it's a 3 or less. Although it costs more, I have been taking 1 every four hours til early evening when I switch to Oxycodone before I try to fall asleep. My sleep pattern has changed, I fall asleep around 1:30 am and up between 3:30-4:00 am go back to sleep til 6:30 am, catch a few more hours of sleep then up for the day. I have been catching a nap here and there most recently. I am dealing with this side effect rather than taking all the vicodins, norcos and oxy's which were only helping the pain for 2-3 hours. I have taken sleeping pills to counter the side effect, but they are not too successful, so why have even more chemicals in my body, right??

    I will write back in a few weeks to give you more of an update on Nucynta.

    Best to all
  • Well almost been two months i've been on nucynta.
    Nucynta has not been real effevtive lately and has been messing with my head and giving me blurry vision.PM has put me on a Oxy compound with tramadol and zanaflex two times daily. I wish u all the best of luck with your pains.......
  • Please dont do it. There are other pain meds that will help you. The fentanyl patch you are on can be increased alot. It will help you with your pain. Also, what else besides meds has been done? Have you been back to a nuero or ortho for your problems. Ending it is not the answer. There are alot of caring people in the world that will help you find the relief that you need. Please rethink what you are doing. You cant go back. Think of the people who care about you and what it will do to them. We lost a brother to this, and it is hard on the whole family. Please rethink!
  • Brenden, I too was prescribed Nucynta and it did nothing to help my pain. I know you are pissed off (and rightly so... your doctor should have his/her licensed revoked in my personal opinion) but please don't kill yourself. :( There are so many other medications and other doctors that you can see and can help you. Feel free to send me a private message if you'd like. I'll be by the computer for a while longer tonight and we can even chat in the chat room if that would help.

  • I have to wonder if it is the Actiq that is blurring your vision. I was on the suckers and patch until Blue Cross quit covering them, I then started alternate between Dilaudid and Nucynta. I specifically asked for something that wouldn't mess with my head, and that is how I obtained the nucynta.

    I found it to be helpful, although it didn't knock the pain all the way out. There is not going to be anything that will alleviate all the pain without some side effects to the head.

    Do you think that you are taking too many meds and are possibly addicted to them? I don't know your situation, but I do know that Fentynal is a major drug, and I had many bouts of depression.

    Hang in there.
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