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My Resume

jay911jjay911 Posts: 540
edited 06/11/2012 - 8:34 AM in Chronic Pain
Don't get this wrong, I'm not soliciting for a job... :) Like many of the other members, I have been actively trying to diagnose the source of my pain for some time now. Last week I went to see yet another neurologist at the request of my primary care doctor. Why? To get an LP as part of a MS diagnosis. When we were reviewing my file he had remarked on how I had so many procedures done, mentioning a bone density test. I've never had that done and when we told him this the response was something like this: "Huh. that must have been from someone else's file." He then tore it out and moved on like it was nothing. The end result was he told me I should do PT and take drugs, and I never had the tap; we really felt blown off. My wife had gone with me and she nearly broke down when we left the office.

We were discussing this later and one of the things we realized was that every time I see a doctor I never give the same information. Two problems I have is short term memory issues and the inability to concentrate. So what happens when I see a doctor? I remember some things and not others. And it's never the same thing that I remember. Could this be one reason I seem to be going around in circles? So I have decided to write a resume: my medical resume. It's still a work in progress, but I have accumulated a chronological list of symptoms, procedures and meds along with changes that have happened along the way. I'm hoping this helps my doctor visits be more productive.

I hope everyone is having a good week.
Spiney hugs :hug:


  • That is a great idea! I should write up mine as well. It is so hard to remember everything. Our pain fogs the brain! And if you do have MS, that is one of the symptoms as well. Hope your next doc visit is more productive.

    HAGD my friend,

  • Yes - I resorted to writing notes on my Dr visits and giving him a copy, after a visit with the 3 of us, went horrible.

    To this day, I keep notes and give monthly progress reports for my file.

    Up here - there are 5000 waiting for a Dr, so you keep what you can get and work within the system. There is not much else out there!

    Canadian eh!
  • Sounds like a great idea to me. Bummer about your visit with the neurologist. Do they think we just have money to blow?

    Is your primary care physician the one trying to diagnose whether or not you have MS? Are you heat sensitive? That's one of the symptoms. I just read an article about diet and how MS can be managed by eating the right foods.

    Following your journey and praying you will get a resolution to your issues.

    Take care,

  • Jay

    It's a great idea! Are you "computer savvy" enough that you could put this all on a CD? Or save to a "flash drive"?

    That way, you could copy them and give to any "new" doctors you are scheduled to see about a week ahead of time so they can review and make an educated decision...

    You could have different sections; one for lab work, one for xrays or MRIs, etc., one for any pure medical records (from your doctor's office) and finally one for your take on things (such as your impression of what the doctors have told you, how treatment plans are working out for you, whether or not your pain has changed, etc).

    WOW! I just gave myself a good idea! Too bad I'm not in the 'computer literate' group...

  • Marianne: Yes, there's nothing like "the fog" is there? I just want to make sure I'm giving the same info to all the docs instead of what I happen to remember that particular day.

    Centurion45: How difficult that must be to deal with, I can understand your true need to have everything all spelled out if it is that difficult to even get an appointment!

    Judy: So far that journey has been a circle. And yes, it is my PCP driving this. I have an appointment with her this week, I know she'll be unhappy with recent events. And yes, I am quite heat sensitive, have been that way as long as I can remember. It's bad enough sometimes that I wear shorts when it is snowing and the rest of my family is finally getting used to the "meat locker" temperatures in my house.

    Jeaux: Yes I am quite "computer savvy" and could come up with a good electronic version, something like a CD that would open up a web browser that a doc could click and view any specific piece they might be interested in. Hmm I could even make it an online version and provide a login, no CD burning at all, just log into my site and see the most current info. I kinda like that idea...

    I'm going to be soliciting my PCP and PM docs for more specifics on procedures and their notes. Once I have the baseline stuff I can add to it just like I would my work resume.
  • Jeaux,

    I wonder how useful something like that would be for other people to use as well. I would have to really look into the legal side of things but I might be able to put together a secure website that would allow anyone to do the same thing. Assign doctor access to records, make them printable or even faxable by the user. I'll have to think about that a little bit but my network at home could support that. (My home network rivals that of most mid-size companies.)
  • Really good idea! I did that a few times and found that the work comp doctors would often just dictate in front of me exactly from my list.

    As a nurse, I find that most doctors prefer the "short story"-a concise yet complete chronological listing of the symptoms/treatment/diagnosis. Always make copies and leave one for the doc, even if they say "that's ok." Leave one on the desk anyway, sometimes they go ahead and look back at it to dictate later in the day.
  • I had a visit with my PCP today, she was also excited about the "resume" idea. She also thought there may be a market for an online version that others might take advantage of. Anyway, she printed a stack of documentation of all the doctors notes she has in my chart (it's like an inch thick) and asked if she could have a copy of my resume when I have it done. By the time our visit was over all those documents were ready for me to take home.

    It was difficult to bring up, but we discussed handicap placards. I told her I was almost embarrassed about it but wanted to discuss the criteria. I think it was a psychological "line in the sand" to cross, like when I decided to buy a cane. She said I easily met the criteria and signed the paperwork right there. That's a little demoralizing, it kinda hits home when you have the paperwork in hand with "permanent disability" checked off.

    Last thing we talked about was FMLA for my wife. I have two weekdays off every week and try to schedule everything on those days. My wife doesn't have that luxury and if she accompanies me, she must take time off. She mentioned that she had gone past the "allowable" amount of sick time and I was suddenly worried that there could be problems at her work. I know we are nowhere near resolution or even diagnosis of my problems so now we're covered there too. I am still shocked at how you feel crappier after leaving some doctors and others just by talking make you feel so much better. My PCP and PM docs both make me feel better just by talking to them for only a short time.

    Time to go through a bunch of doctors notes & records, holy cow this is going to be difficult to turn into a simple summary!

    Hugs to all my spiney friends >:D< >:D<
  • I have finally given in to a TEMPORARY handicap tag. I fit the criteria for a permanent one, but that's asking a little too much of me mentally right now. I think I understand a little of what you went through getting yours.

    I got the mirror hanging tag instead of plates because if I have a good day, I want to park in a regular spot and not be singled out because I'm in a handicap spot. Maybe it's my imagination, but I think I'm under a microscope from other people in the world so I try to be as normal(HA!) as I can be.
  • ernurse I know what you're saying about feeling "singled out" and also the mental thing. It kinda hits home a bit, no doubt about that!

    I'm getting the placards too, I have "firefighter" plates and can't bring myself to replace those =((
  • That is something that we all should do, as not only does chronic pain cause memory and recollection problems, but the pain and intensity varies all the time, so even with a good memory you are unlikely to be able to explain it all coherently.
    I take a brief note if I have several things to discuss, and just go through it with him.
    I now keep a daily diary where I note everything significant that happens to me.
    So all medications, pain locations and levels, baths, massages, activities undertaken-that sort of thing.
    May never refer back to it, but at least the record is there should it be needed.
    I can track medications taken very easily, as I would quickly get muddled otherwise.
  • thanks for starting this thread jay911. I am glad your last dr's appt went well and that your doc. was receptive to your ideas. I'm sorry you have so many difficult decisions to make though, and hope you can feel some peace with them.

    I agree with what others have said, that keeping a medical record is so important.

    I don't have super advanced computer skills, but what I started 5 months ago when my back injury began was a simple spreadsheet on excel. I have four columns: Date, Event,(ie: hospital visit, dr's appt, work related, symptom related, etc), Type of Interaction (ie: fax, face to face, telephone call, etc) and then a details column. Being in excel, I can quickly 'sort the data', so that if i want to view only issues say related to my symptoms, I can pull of that up in seconds. I also have the document synced to my ipod, so when I am not able to sit at the computer, or want to record something after a medical appt that I know I will forget, I can do it right away.

    This has saved my butt more than a few times already with work issues, disability issues, details of medical appts, etc.

    I hope this can be useful to someone else as well. It would be impossible for a person not in pain and not on pain meds to keep track of all of this, let alone someone in pain and on meds.
  • brightside, you understand exactly my dilemma. How can I remember things when so many things are happening to make me forget? And I don't forget the same things. Anyway, I will share a sample once I get it the way I like it, maybe someone else can benefit from it.
    Thank you all my best friends >:D< >:D<
  • Wow, this is a fantastic idea. It's so frustrating when you get home after the doctor visit and can't remember everything.

    I can't wait to see what you come up with.


    P.S. - the offer in my PM to you still stands.
  • I was in the same boat, I'd go to the doc,couldn't seem to keep up or seemed contradictory from last visit, I started taking my Mom with me and I wrote an in depth med. history, it took me a month. I keep it updated and take a copy to every new doc I get sent to. I write down my questions before hand and get copies of all my test results to give to my primary since nomatter how many times I say send a copy to Dr. E they never do. Its over-whelming, my pharmacist has a better handle on my situation than the specialists.
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