This was sent to me from a friend who also shares my problems of chronic pain. She belongs to a chronic pain group. Author is unknown.
I don't need an excuse to be stoned, I don't take pain pills to treat some psychological need to do drugs. I take what my doctor prescribes to get some level of relief so that I can do what I can, on a daily basis.
It's very hard for me to "act" normal, just as hard as it is for you to see me as disabled, I know I look the same. I see the looks from strangers when I park in the disabled parking space, I know that my pain is sometimes invisible, I know that I can't stop every person and explain that walking sometimes causes spasms that last for hours. It doesn't even matter to me if those people don't understand, it does matter to me that YOU understand.
I want you to understand that my pain and medications don't take away my emotions; love, joy, sadness, etc. My need for human contact and friendship has outlasted the torture that my body sometimes endures. The touch of a loved one, a gentle word of encouragement, these are the things that lift my spirits and make me better. When you ask me "why don't you just go to the doctor and take one of those new drugs on TV," what I hear is, "why don't you just get over it."
I know my limitations, my pain dictates that. From years of researching and reading about my disability, I know what my options are. That's the part that I CAN accept. Now I need you to accept it.
See me as I am, for what I am.
My pain is only a part of the whole me, sometimes it's a very big part, but it's still only a part.
Love me for my abilities, not my disabilities.
Believe me when I say I'm having a bad day and please, don't take it personal.
Know that it's acceptance that helps me cope, not criticism.
I promise not to hide behind my pain as an excuse not to do something.
Let's spend the rest of whatever time we have left celebrating what we have and enjoying each other's company.
I will endure the physical pain, I need you for the emotional part.
I love you, no amount of pain could ever change that, sometimes it's the importance of your love that gets me through another day.
Best wishes to all,