I first posted here to find out about diagnosed FS C&.
After waiting since March I've managed to have my MRI and finally my appointment with Neurosurgeon. Im wondering if anyone can help me with this -
Saw the NS who after examining me agrees with the FS-C7 but is not happy about the pain in my hands as the main sympton.
I've dislocated my little fingers so many times Ive lost count, one of them has just stayed out and theyve said they'll sort it once Im sorted, my ring finger is now starting to come out of joint. No clue why this is happening as Im not doing anything to irritate anything, seems to be first thing in the morning or when I wake up that they appear in spasm, giving serious pain.
My arms now, manly shoulders are killing me, but yet just some stiffness in neck.
NS wants "Nerve conduction" tests now and Im getting them pretty fast, which here in the UK isnt a good sign as we wait for everything health wise.
NS says he'll see me after the tests (and his waiting lists) to clarify and discuss the results with me but he's quite sure its not related to the stenosis.
Apparently FS is quite common when youve had previous surgery, Ive had 3 but in the lumbar region that have left me with disentegrating,degenerative (something else beginning with D)
My lower back is now playing up now too and Im losing control of my legs. Mainly walking but now the problem is control over the actual movements themselves. Im trying to walk and my legs appear to have a mind of their own and go their own way. Crutchs dont help, only grabbing walls or anything to keep me upright works to get to the bathroom.
I never knew my legs could bend in these directions.
I am more or less bed ridden and cant hardly wait until theyve done what theyve got to do. Im the biggest scaredy cat but am happy to embrace anything that will help this pain and give me my half a life back.
Mentally Im on top of it which is the main battle but I must admit Ive lost it a couple of times.
This has been almost a year waiting on lists for MRI's appointments, tests and then another 2 lists to go through (God please no more) and almost the whole time not knowing why Im in his amount of pain.
Not being able to type, write, or even cut up my food.
Not nice and it doesnt help the positive attitude you try to keep and me personally value it greatly. I have to have mind over matter state of mind therwise I wouldnt cope.
Anyone have any idea why my hands are as bad involving my little fingers, ring fingers but pain over the whole hand? If the NS says its not stenosis related, I cant hardly wait to see what else it can be.
Any thoughts would be much appreciated.
xx Husky xx