I need to share what's been going on. In July my PM increased my Kadian (ER Morphine) and a few weeks later everything fell apart. I began having burning sensations in my elbow, wrist, hand, fingers and not all on one side. Left elbow & hand, right wrist & fingers. Sometimes both sides but not always. Spasms from my neck into my shoulders. Shoulder and neck pain. Stiffness and swelling in my fingers. My upper extremities just went crazy for some unknown reason.
My "favorite" part was the top of my left foot began swelling and hurting. It was so bad that if anything lightly brushed it I would fight back tears. Couldn't lift my big toe on that foot either (Still can't bend it much). I tried toughing it out for a while but in 2 weeks had to see my PCP. He ordered a MRI of C, T, and L spine. First time the entire back were ever viewed . Lots of bloodwork to rule out vitamin def, etc. Even checked for STD's; glad to report that was fine!
)( At my request, he referred me to a neurologist; one he would trust with his life.
Back to PM two weeks ago. They were shocked when I reported my pain was worse and in new areas. They had me slowly stop Kadian. Said it could be causing an adverse reaction. :? Researched it and talked to the pharmacist. Cannot find anything that says the med could cause this but followed their orders. The foot is feeling some better but that's it.
I woke up one morning and my R ring finger was locked completely; used my other hand to move it. Next morning, same finger locked and wouldn't budge until I ran warm water over it and pried it open with other hand. Wearing a splint at night for now. That was no fun.
Back, legs, etc are killing me now. Only pain med is one 7.5 mg Percocet 4x/day. Not even close to enough. Last night I got to sleep at 4AM. I had to take another Perc to sleep at all. Today has been hell.
I am taking all MRI/CT films and reports to the neuro on Tuesday. Called one place that did a MRI of C spine Fall 06 for the report. They said no problem just bring ID and come in. Did it today. 45min drive. Report is in a warehouse (facility was sold to CRA) and can't be there until Monday or Tuesday. I started crying right there. Fought to keep it together a little. Lady said she could fax to neuro so I wouldn't need to drive back. Went to my car and completely broke down. Just sat there sobbing. This is rare but that was the final straw.
PCP's office called to say I could pick up the MRI report of C-Spine from last summer. Get that up on the way home. Open it and it is the wrong frickin' report! I'm going to the hospital that did it and get the report. I can't handle any more screw ups.
I want somebody to figure out WTF is wrong!!!! Find meds or something that will make life bearable. I have scar tissue pressing on my nerve root at L4-5, hemangioma at T7, and lesions (not sure # or size) have been noted at various locations. I'm scared. And I'm tired of impatient drivers almost running over me when I'm trying to get to my car. I can't help how slowly I walk. I don't like it but it's the best I can do.
If you made it this far, thanks. My tunnel seems to be getting longer and darker. I think I'm going to bed.