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Balance Problems With Cervical Spine Damage

AnonymousUserAAnonymousUser Posts: 49,671
edited 06/11/2012 - 8:35 AM in New Member Introductions
Hi- I'm just very happy to find this site as it seems to be the most promising I have come across so far.

I have a disequilbrium balance problem. And I have had it for 13 years straight now. To make a VERY long story short I was working as a longshoreman lifting 350 plus pond tires off the ground with my back. Also did some jackhammering.
I never felt anything snap or anything like that but I got really sick feeling at work one day turned white as a ghost and felt dizzy,weak & unsteady.

Okay lets jump ahead now past 5 emergency room visits, 1 sinus surgery, 40 medical specialists including 12 Ent's 11 Neurologists, 4 Chiropractors, Vestibular Therapists, Physical Therapists,Holistics,Psychologist, ENG,VNG,EMG
MRI"S,CT Scan,Flex X ray, Upper Cervical Treatment.........

NO answers no suggestions,no help. I forced one of my Neurologists to take an MRI of my neck & back. The balance problems started 13 years ago but the neck & back really started appearing about six years ago. They found bulging,herniated discs in my cervical spine. And still insisted it has nothing to do with my balance issues. I refused to listen to that and kept moving ion to others to try to find answers

Here are my symptoms -
1- Feel like I'm standing in a row boat, NOT room spinning!

2- I have sensations as if I'm walking in sand, sinking into the ground, My body feels like when your in an elevator going up and then it comes to stop. We all have felt that in an elevator.

3- I cannot sit up straight in a chair or I start tipping over.

4- Walking is a problem and the dizzy like feeling is day & night always.
It gets worse and worse as time goes on.

5- Extreme tightness,stiffness,soreness,burning aching in my back and neck.

The only thing that gives me any relief for a little while is a swimming pool of all things. :) Just slowly walking around in the water relieves all symptoms temporarily many times.

I lost my job of 17 years due to this and all my medical benefits,sold nearly all i own and have been denied SS disability three times. I know it's my neck and back that are causing my balance vertigo like problems. Cervical Vertigo perhaps? I haven't tried acupuncture yet because of funds. But I will someway some how.

Thanks For listening


  • hi and welcome to the forum! :H we are here to offer you support and answer what questions we can. i am so sorry you are having trouble getting a diagnosis. ~X( you might want to check out "teaching hospitals." there is a short article on them down in the "Health Insurance" forum. it might be an idea for a little further down the road.. don't give up on your benefits.. :T you must get a diagnosis first!!! :? have you tried a lawyer? :? anyway, we are here behind you all the way! stop by anytime. if you are a night owl, check out the "Sleep Problems" forum where a group of us hang out at night under "are you are asleep.." well, good luck to you.. :D get some sleep! (|: Jenny :)
  • Hi and welcome to this site which I've found excellent and incredibly informative.

    This may seem trite and I'm sure someone must have considered it, but it almost sounds like 'Labyrinthitis'. However, I'm pretty certain someone must have ruled it out, given you've had extensive tests carried out on your ears.

    Anyway, you say it's definitely your back and neck which are at the root of the problem, so I'm sure someone else will be able to help more than I can!


  • Welcome to SH. This is a great site with lots of info, support and people with varied experiences.

    Before I had my cervical fusion, I kept falling every time I turned my head to the right, bam I'd drop to the ground. Broke 2 bones that way. In the mornings especially, my legs would wobble and I'd have to hold on to the furniture for support. I went to a rehab hospital and had a Balance/Gait evaluation, etc. My therapist there felt that my vertebral artery was being compressed every time I turned my head to the right, causing drop attacks. Google drop attacks and see if you can relate.

    I had neck pain, difficulty using my arms, numbness and tingling in my hands. My rheumatologist for 2 years insisted that it was fibromyalgia. Finally, I convinced him I need an MRI. My neck was a mess. After seeing a few more doctors, I found a neurosurgeon at a spine center, went through all the conservative therapies, then finally my NS agreed I needed a fusion.

    I have recovered well from this and no longer fall and no longer get wobbly legs.

    Don't give up Mike, advocate for yourself, be assertive that you need HELP!

    Best wishes to you,

  • Thanks for the warm & kind welcome. I wish none of you had these problems but it is nice to know we are not alone when we do :)

    Marianne that sounds brutal, did this come on sudden? Or over a long period of time?

    I have been pushing but have a new found theory.. "You have to be well to be sick"
    Go here go there, travel etc... besides having 0 money because of this problem they expect you can just travel anywhere at anytime. I haven't even sat up at a dinner table in 5 years, never mind gone out to dinner. No wedding's, no holiday & family, no wakes. And they want me to travel into the city to a walk in clinic?

    I figured out MYSELF where the core of my problems were nearly three years ago now and still have received no help whatsoever.

    Is there anybody besides a Neurologist or Orthopedic to see about your spine? Because the 15 I have seen have been completely useless.

  • I want to know how your doing and if you ever got better/get properly diagnosed.
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