Welcome, Friend!

It looks like you're new here. If you want to get involved, click one of these buttons!

Veritas-Health LLC has recently released patient forums to our Arthritis-Health web site.

Please visit http://www.arthritis-health.com/forum

There are several patient story videos on Spine-Health that talk about Arthritis. Search on Patient stories
Protect anonymity
We strongly suggest that members do not include their email addresses. Once that is published , your email address is available to anyone on the internet , including hackers.

Notice
All discussions and comments that contain an external URL will be automatically moved to the spam queue. No external URL pointing to a medical web site is permitted. Forum rules also indicate that you need prior moderator approval. If you are going to post an external URL, contact one of the moderators to get their approval.
Attention New Members
Your initial discussion or comment automatically is sent to a moderator's approval queue before it can be published.
There are no medical professionals on this forum side of the site. Therefore, no one is capable or permitted to provide any type of medical advice.
This includes any analysis, interpretation, or advice based on any diagnostic test

Narcotics and Nerve Pain

davedave Posts: 860
edited 06/11/2012 - 8:35 AM in Chronic Pain
Meydey, you almost got it right in regards to narcotics and nerve pain. I definitely have to differ with anyone saying that narcotics do not help nerve pain. As it stands right now, its the only drug I have left that provides any relief. It's not 100%, but beggars can't be choosy.

As for those of you that say narcotics don't help, why do you continue to take them? I really want to know the answer to this question. I have heard so many people come on here and say that narcotics do not touch their nerve pain and yet they still take them.

Dave
meydey321 said:

I just wanted to mention that narcotic pain medication can be effective against nerve pain if it is prescribed in high doses, and so much more when it is done by using a pain pump delivery system.
advertisement
134

Comments

  • Go back to the original thread to see my response. Thanks
  • First off I moved this to a separate thread rather than hi-jack someone else's.

    Not trying to pick a fight here. I'm disagreeing with your premise that it takes high doses of narcotics to treat nerve pain. I am unable to take the nerve prescriptions that you have mentioned and I can only tolerate small doses of narcotics before they totally screw up my system. I'm only able to tolerate up to 30 mg of Oxycodone a day. It's not a lot, and believe me when I tell you if could tolerate a larger dose, I would. It's all I have and I'm very thankful for what I get.

    Dave
    meydey321 said:

    What do you think I got wrong? I also agree that narcotics play a role in controlling nerve pain but it has to be dosed right in order to be therapeutic, and this falls on the expertise of a pain specialist. I also think that medication such as Lyrica, Neurontin, or Cymbalta should be used along with narcotics for better pain relief. This of course has to do with taking oral medications.

    From what I understand, when you use a pain pump, the doctor hopes to get you off the nerve pain medications. Some patients will have to stay on it, but at a reduced dose. This is what I've been told and they hope I can get by on 30mg of Cymbalta instead of 60.

    I also believe that those who do take narcotics as part of the regimen for nerve pain mgt, go on to do so even if they think it doesn't do much good because it's better than taking nothing. They are probably underdosed and may need a nerve pain medication to supplement whatever narcotic they take. The combination of both will not take the mechanical and nerve pain away, it will only make it manageable. I'm saying this from my own experience. I take 80mg of Oxycontin daily, 40mg oxycodone daily, 60 mg Cymbalta, and muscle relaxers. My nerve damage is permanent and I also have bilateral sciatic pain. My stim trial failed a long time ago and I also had a morphine trial that was successful. I think that I will get better relief with a pain pump once I have my surgery, since during the trial I had better relief than the stim trial.

    Again, I'm speaking from what I went through. What works for one may not work for the other- it comes with the territory when you're dealing with chronic back pain and sciatica.
  • Hi,
    I have both nerve pain and pain pain.
    My neurontin does nothing for my pain and my pain meds do nothing for my nerve pain.
    Thats how it is for me.
    Patsy
  • The same is true in my case, as well.

    Rusty
  • For those with mechanical pain, this question is not for you. It's directed at those who have damaged nerves and say that narcotics do not touch there pain yet still take them.

    Dave
  • You know me, I don't go around instigating O:) I have read that it take high levels of narcotics to make a difference with nerve pain. I can't recall where I learned that info and I'm sorry I can't relay it to you right now. I do feel bad for you since you can't tolerate anything higher and I understand how miserable this is. Also, I want to say how considerate you were to move this discussion in order not to hijack the previous thread. Did you say if you were contemplating trying out a stim or pump for your pain? Does you doctor have any plans for you? I really hope you get relief somehow. Take care :H
  • I'll be doing a trial stimulator sometime in the near future. Just waiting for all the i's to be dotted.

    If you research neuropathy, arachnoiditis (my problem) or any of the other nerve type problems, they all say that treatment with narcotics, particularly opiates (not synthetic), can be effective in treating nerve pain.

    I'm sorry, it irks me when someone says they don't help. The only way they can truly answer that question is to only have the narcotics available to help them, nothing else.

    Dave
  • I hope your stim trial is a success and you get your surgery soon.
  • I take narcotics for my nerve pain. I can't take Lyrica or anything like it because of bad side effects. I have problems with meds and have to be very careful what I take.
    I take 15mg Oxycodone every 4 hours or as needed.
    It has helped my leg and foot pain but does nothing for my back pain. Go figure...

    Patsy W
  • I have both regular old mechanical pain and nerve pain from severely damaged nerves due to CES and arachnoiditis. I take both nerve pain type medications and regular pain meds as well.
    I won't say that the nerve pain meds cover all of the pain from the damaged nerves, or that the regular pain meds cover all of the mechanical pain either. Together, for me, they are better together than apart or separately.
    I got horrible burning pain in my legs, along with severe muscle spasms from my lower back, down my buttocks, thighs, calves and down to my feet. At times, the muscles spasm so hard around my hips and into my groin that it feels like they are going to rip my legs off, and I almost wish that they would.
    Anyway, it may be that for some patients like yourself that oral pain meds might in fact, help with the nerve pain, but for the majority of us, I think that we need both to get the best level of pain relief that we are going to get at this time, without having a pain pump installed or a scs.
    It may come out in time that there may be yet another option for us, but we aren't there yet, so we each must work with our doctors to find out which option we have is best for us, individually.
    Sandi
  • I have nerve pain from the Stenosis. I use narcotics, because they control the pain. I am on ER and IR.

    Every day is groundhog day, I start again to control the pain from scratch.

    C45
  • I'm sorry to read that you are still struggling.

    I have been guilty of saying that narcotics don't help nerve pain, and for me they didn't. When I read others saying the same thing, I "assumed" based on my own experience and what others are saying that this is so. Also, way back when I first started with all of this my doctor told me that the only thing that would help was a nerve pain med.

    Maybe it depends on what type of nerve pain you are dealing with.

    I don't take a narcotic pain med. For a very long time I survived on neurontin, cymbalta, and amitryptaline. Before I caved in and started the neurontin, it was only cymbalta and amitryptaline. I did use Lyrica for a while too, but gained a lot of weight and then went off of all of it, and eventually returned to neurontin. Are you confused? That was confusing me just typing it, lol.

    Okay, bottom line, this is my experience. Without neurontin I cannot handle the pain at all. I know that neurontin has definite benefits.

    A few months back I added tramadol and mobic, because even though I was receiving some benefit from the neurontin and cymbalta combination, I continue worsening over time and was willing to try anything. I am finding that the tramadol is helping me with actual neck pain, but it does nothing to help with the burning extremities pain. I have actually experimented with stopping different meds (with doc's supervision) to see how I fare with the various combinations, and (for me) the burning, radiating, pain is not touched by anything except for the neurontin/cymbalta combination and adding the tramadol helps with the neck pain. *tramadol is a synthetic pain medication that acts much like a narcotic.

    I hope this helps. Sorry if I have offended anyone by saying that narcotics don't help nerve pain.

    Cindy
    Surviving chronic pain one day at a time, praying for a reprieve because living another 40 years like this doesn't sound too fun!
  • I'm not offended nor confused from you posting. From what I have researched, the synthetic narcotics have little effect on nerve pain. I have personally tried vicoden (left over from my father in-law after his death) and it really did nothing for me. I understand the importance of the nerve drugs. I have tried Lyrica, Neurontin, Cymbalta, Topamax, and last but not least Savella. As my PM Doctor calls it, I am very sensitive to these type of drugs. Most of them did help a little, just never able to ramp up to a dosage that could truly help.

    I'm sorry, it really irks me when people come on here and are disingenuous with their posts.

    Centurion45, we must be a very small minority where the narcotics actually provide some relief, albeit very limited for me.

    Dave
  • of course narcotics work against nerve pain .pain is felt in the brain .narcotics alter the brains perspective on pain .so if we take the prescribed amount we should get pain relief.i have found narcotics to work well regarding pain .i have tried the gaba range of drugs but there were too many side effects
    STRAKER
  • You sort of took the words right from my keyboard. I suffered far more pain for far longer than I needed to, because I bought into the idea that narcotics couldn't help with nerve generated pain. I was wrong. Thank goodness I had a doc I trusted and he said that (as you did Tony), that narcotics change our perception of pain. By doing so, it allows us to deal with the level of pain we have at any given moment. It also allows the other meds to work more effectively (or so we will perceive them to).

    "C"

  • Just one thing to keep in mind and "I'm sure sure u all already know this....."
    Is that when u find something that does work and the pain is tweeked by whatever u take, that under no circumstance should u try to over do yourself thinking you found something that is working on that pain so well that u are able to move,walk,lift, or anything more or better than before. It may b masking the pain but it doesn't make the condition any less than before. So u should always take extreme cautious as u proceed with ur activities and not over do urself! Alot of people run into trouble thinking they don't hurt so bad and can do more, when they could actually be hurting there selves more.
  • Thanks for the smile. You described my Sunday morning yesterday, except for turning the SCS up part. I don't have a riding mower, but I do have one of those self propelled models that matches the speed of your walk and an electric start. As a I call it, my motorized walker. I had loftier goals for the entire day, but the lawn pretty much did me in. At least my yard looks good.

    Dave
    Disabled American Veteran said:

    ...
    Yesterday mowed yard (rider) weed eated, blew the sidewalk, driveway off... and my pain rose above what I could handle and the naseaua kicked in. At that point the only thing I can do is lay down and turn my SCS up and watch TV.
  • No offense intended, but if I have to shut my life down because of my condition then life is not worth living. I am fused from L4 to S1. The fusion is complete for the most part. What I have is a condition that is only going to get worse with time. It doesn't matter whether I'm sitting on my ass or out there living life. It hurts, 24 hours a day, 7 days a week. Nothing I do is going to make my condition any worse than what time is going to do anyway.

    I choose living rather than sitting on the sidelines.

    Dave
    HollieSterling38 said:

    Just one thing to keep in mind and "I'm sure sure u all already know this....."
    Is that when u find something that does work and the pain is tweeked by whatever u take, that under no circumstance should u try to over do yourself thinking you found something that is working on that pain so well that u are able to move,walk,lift, or anything more or better than before. It may b masking the pain but it doesn't make the condition any less than before. So u should always take extreme cautious as u proceed with ur activities and not over do urself! Alot of people run into trouble thinking they don't hurt so bad and can do more, when they could actually be hurting there selves more.
  • All I was saying is take cautious and not over do urself.... That's how some people hurt thereselves worse. And they don't relize it at the time. I totally agree life has to go on and sitting on ur butts not gonna make things better either.


  • Ok I have a lot of spine and pain problems from various aras, etc. but one thing I know for a fact is that my Oxyconton (a synthetic) kicks my nerve pains butt. At the L-5 S-1 I have a nerve root that's been completely 100% clamped shut from scar tissue. This is one of the worst pains that I have, I'm also sure that I have even more nerve roots being impinged upon since the last pictures that showed this were taken about 7 years ago.
    When my meds are due the pain is so high that I am no longer able to move, at all. I have to take my meds and stay still until they kick in and I'm free to move about as best that I can. If not for these drugs I don't know what I would do.
    I also have a lot of nerve damage (permanent) left from living with sciatic pain for over 2 years without any help. Again the Oxy helps it a great deal. Yes, narcotics work on nerve [pain at least for me.
    Maybe what really happens here is the fact that we are all different and react to meds in various ways. What works for one person may not work for another. But none of us can make any blanket statements and try to speak for everyone. It also helps to keep the friction down, wouldn't that be best? I haven't been here very long but in what short time I have I've read where people will tell others "That just can't happen", when the other person knows darn well that it did or can. Maybe all of of us or any of us don't know everything. Is that a fair statement?
  • Ok I have a lot of spine and pain problems from various aras, etc. but one thing I know for a fact is that my Oxyconton (a synthetic) kicks my nerve pains butt. At the L-5 S-1 I have a nerve root that's been completely 100% clamped shut from scar tissue. This is one of the worst pains that I have, I'm also sure that I have even more nerve roots being impinged upon since the last pictures that showed this were taken about 7 years ago.
    When my meds are due the pain is so high that I am no longer able to move, at all. I have to take my meds and stay still until they kick in and I'm free to move about as best that I can. If not for these drugs I don't know what I would do.
    I also have a lot of nerve damage (permanent) left from living with sciatic pain for over 2 years without any help. Again the Oxy helps it a great deal. Yes, narcotics work on nerve [pain at least for me.
    Maybe what really happens here is the fact that we are all different and react to meds in various ways. What works for one person may not work for another. But none of us can make any blanket statements and try to speak for everyone. It also helps to keep the friction down, wouldn't that be best? I haven't been here very long but in what short time I have I've read where people will tell others "That just can't happen", when the other person knows darn well that it did or can. Maybe all of of us or any of us don't know everything. Is that a fair statement?
  • dilaurodilauro ConnecticutPosts: 9,720
    Dave, I'm sorry it took me this long to jump in.
    To start with, I fully understand you in terms of having to work, continue to function with your pain and spinal problems. I've been doing that for years, something that we just have to do.

    I have a lot of nerve pain, especially in my right leg/foot. That came as a result of the 4 lumbar surgeries that I had. The last EMG test I had, show a number of dead nerves and I really have a drop foot on the right.

    Because of my ongoing/neverending Thoracic disc problems, I am still taking narcotics (now , its only a low dose of OPANA (5mg) PRN. Some days its only one pill, some days it 4 or 5.
    I also take Neurontin for the nerve pain.

    Honestly, I do know that the Neurontin helps with the nerve pain, but every night around 7:30pm, I start with hip pain, leg pain, etc. I take the first dose of Neurontin at 4:00pm (600mg) and the second at 10:00pm (600 mg). But I know that around the 7:30pm timeframe, the only way out of the pain and discomfort is using the OPANA.

    So for me, its hard to distinguish just how much the Neurontin is doing for my nerve pain. I would venture to say that IF I was not taking that, I would have more nerve pain problems.

    What am I really saying?

    Right now, I can not get through a day without using Neurontin and OPANA.

    My biggest complaint about Neurontin (and also when I was on Lyrica) is the short term memory problem...
    Which basically is shot

    Dave, take care, continue working and doing everything you can for yourself and your family
    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
  • just watch your waistline mt friend with lyrica! i was on it then gabapentin and i put 3 stone on in as many months also i went into urinary retention and i was swollen up like a balloon ..my legs were on fire with fluid {this came on suddenly} i stopped taken them {and spend all that weekend peeing!} and thank fully no kidney damage done ..but i think that the gaba range of drugs do more harm than good ,that's just my opinion before everyone start jumping up and down!
    STRAKER
  • Thanks for the words. I don't mean to stir up trouble. I'm just very frustrated right now. I had to call my PM Doctor Friday night in regards to my latest nerve prescription attempt. I am now tapering off something that has my heart rate well into the 100's. Needless to say, it's making me a little anxious. To top it off, I'm under medicated because my body can't handle anything.

    I wish my nerves would just die instead of interpreting every sensation as pain. I'm supposedly lucky in that only the sensory nerves are broken and not the motor control nerves.

    I've been following certain threads as I research what my next step is going to be. It frustrates me the way some of the members come on here acting like they are God's gift to pain enlightenment. I've said enough.

    Dave
  • Oh oh oh ... can I jump up and down?!? Paleeze sir paleeze!

    I have to chime in for the wonders of the gaba range of drugs here, most specifically Neurontin. If it were not for that drug, my SCS would be spitting water on a 4 alarm fire. My body does a great job of dealing with the Neurontin and thankfully utilizes it's pain soothing qualities as well. I just ensure that I drink a substantial amount of water each day and watch what I eat when it causes cravings and I suffer no known ill effects from it. I have been on Neurontin since 1998 and take very large quantities 3 times a day. If I miss a dose by even a few hours, my legs begin to ache. I can totally vouch for the effectiveness of it in my system.

    "C"
  • Dave - Pain that we have has a way of wearing us down sometimes.

    I hope you find a solution. I certainly don't have a whole answer either. I am getting sleep in 2 to 3 hr spurts and waking with my hips, shoulders and back aching like heck. And it takes an hour for the meds to come online and provide some relief. For the moment, I don't want to increase my intake either, so I put up with the pain. It is not easy.

  • You may want to consider talking to your Doctor about Trazodone as a Sleep Aid. I've been taking it for about 3 weeks now. It's not perfect but I am able to fall back asleep right away when I do wake up. I'm getting a better nights sleep for the time being. At least there's one drug out there that I can actually take advantage of one of the side effects.

    Dave
  • Not 100% pain free of course, but I take opiates for the nerve pain and I would have to plug myself without them. They do a pretty decent job overall. I take neurontin at night to help sleep, but it makes me too groggy so I can't take it during the day. Pain sucks.. Nobody really understands what it is like to live with and have to re-do every aspect of your life into something that is somewhat in resembalance of your previous life - you know, the one you loved... I'm personally pretty sick of the whole damn thing...
  • I had no idea there were so many people with my problem. I have always felt so alone with it. Even my husband does not really "get it". I want to retire so bad because it is such a horrendous ordeal to get out of bed, take lortab, wait for it to really kick in, get ready for work and get in here. He is in construction and says, jeez, I wish I had a job I could go sit at a desk for nine hours a day and whine cuz my back hurt.. It pisses me off! He does not see that I can hardly garden anymore, I can NEVER ride my beautiful black stallion again, what is wrong with people? Even people you love do not understand. This is no life, this is crap. Someone commented above, about "this kind of pain wears you down sometimes". That is my sentiments exackilackily. It does and sometimes I just think, what is the point... There are dark times when I have seriously considered driving up to the mountains, walking as far as I possibly could and just ending it all with a bullet. When I feel a little better, I think, jeez I would have missed all this stuff and that would have sucked. Do you all ever get those black times when you think such hideous thoughts? After reading thru some of these posts, I cannot be the only one who has considered such a thing. I am surprised by the number of people here who post things that I am thinking.. Maybe I'm not as alone as I think I am..
  • Thank God we're not ALONE.

advertisement
This discussion has been closed.
Sign In or Register to comment.