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Facing Disability

AnonymousUserAAnonymousUser Posts: 49,671
edited 06/11/2012 - 8:35 AM in Back Surgery and Neck Surgery
I am 48 and had minimal disectomy to my L45 area, but I am having trouble with my right leg and right buttocks area. As well, I have one slipped vertabrae and the beginnings of what the MRI states is slight bulging in another vertabrae in my neck. My symptoms from the neck is pain going down my neck and into my shoulder, then into my right arm and into my fingers. The neurologist recommended pain management doctor, but I haven't had an M.R.I. since 2007. I was on Neurontin 3500 mg a day, Valium, Hydrcodone, Adderal, and Ambien. I attempted to take my life three times and couldn't figure out why until I was told it was the Neurontin. I have my disability hearing in November; I don't know what I will do if they deny me. The Neurologist said he wouldn't recommend surgery; so what do I do, just stay in pain forever? What to expect from the pain management doctor. I had migraines in the 90's but through yoga and meditation they went away. After the Neurontin they have returned. If I don't get the disability I will be living under a bridge, my savings is almost gone.


  • Aw, hon... I'm sorry things are going this way for you. On the bright side, YOU HAVE A DISABILITY HEARING SCHEDULED FOR NOVEMBER! This tells me you've been at this for quite some time, too.

    Do you have attorney representation for your upcoming hearing? If not, get one - NOW. Be sure it's someone who specializes in Social Security Disability.

    Good luck. Hope everythign works out for you!
  • I would get a 2nd opinion, and even I'm going for a 3rd referral to a NeuroSurgeon. The first 2 were OrthoSurgeons who refused surgery and referred me back to my own Primary Dr. who has sent me to 2 referrals to Pain Management Drs for injections in the past year and a half since I've been on LTD through my insurance at work. I had to ask my Primary Dr for meds and even my 2nd MRI as well as most of the tests I've had. So I've received epidurals and facet joint injections as well as trigger point injections and tried different meds for treatments. Never give up because there may be the right Dr and treatment for you. Good luck with your appeal for Disabilty benefits. Take care. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • Sorry to hear about your outcome, unfortunately it usually takes 3 trys to get SSD from what I've seen, to try to rule others out of it.
  • I hear in your voice the frustration I went through with every spine surgery I have four levels fused after eleven operations I will spare you the details.I want you to know if your Doctor is not connected to your employment(company) I believe all Doctors want the best for thier patiens.I would try the pain Manegment Dr. I would not go in house to learn how to live but to see them for pain only.There are a lot of good things they can do for you some times it takes a while,but let me tell you failed back surgery last for the rest of your life.Never opt for surgery unless you have tried everything out there.I live in constant pain I have a pain stimulator implanted like Jerry Lewis on Tv it is God sent, my Drs.tried there best I do not blame them the best medicine is to keep a positive attitude do not let your pain run your life enjoy events with your family even when you know its going to hurt more for a few days if you don't you will miss out of a lot of joy.God Bless
  • sorry for all your pain.i had so many different docs and meds before myL4,L5 fusion in 06. i did find right ortho doc and had few really bad pain mang docs.
    i had one pain doc i really went off on,and told her not to bill my insur cause she was a witch doc.
    i am going always for diff docs and different meds.
    i suffer from neuropathy and other variour nerve problems,i know it seems hopeless at times but never give up.also reach out here or anywere churches, anyone till someone listens and helps. u will find a doc,keep trying
    take care
    try try everyday
    neck,bone spurs pain started 04, back issues and fusion l4,l5 06~hardware removed.
    good few yrs. 09 pain sharp, numbness feet,legs, diagnosed fibro, neurop. legs.lung issues.
    daily goal do good thing for someone.
  • Hello, and welcome to this wonderful support group.

    First, you said your last MRI was 2007. If it were me, I would be pushing for a new one. Also, you said a neurologist wouldn't recommend surgery. Maybe you should schedule an appointment with a neurosurgeon or fellow-ship trained orthopedic spine surgeon for another opinion.

    Wow, that is scary that neurontin caused you to be suicidal. I'm assuming you are off the stuff now. I take neurontin, but my doc said the max for neuropathic pain is 2400 mg/day, prescribed at 800 mg 3 x day. You didn't say what other medications you are taking now since you can't take the neurontin. There are other ones out there that could help, but it is doubtful anything will take all of your pain away. I live in constant burning pain, even with an array of medications, but with time we all learn to manage it the best we can. I am so sorry you are going through all of this.

    As for your financial situation, good luck with the disability hearing. Do you have family support? Have you checked into public assistance or some help from your local church? I would hate to see anyone living under a bridge. In fact, I was recently in Atlanta and drove through an area crowded with homeless people. It was a real eye opener for me, especially when watching a woman who seemed to be hurrying to find a place to go to the bathroom, and she eventually just dropped her pants right there in the park, behind a tree! I had never thought about that aspect of being homeless.

    Surviving chronic pain one day at a time, praying for a reprieve because living another 40 years like this doesn't sound too fun!
  • Welcome to spine-health. I agree with the others as to being seen by a spine specialist. Surgery may or may not be warranted at this time. I notice you make no mention of emg studies, have those been done and if so what were the results. I further think you need new MRI studies a lot can happen in two years. Good luck with the disability hearing and hope you qualify. Once again welcome to spine-health.
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