I had a L5 S1 discectomy last year with great results except for the major nerve damage I suffered in my lower back, leg, groin, and paralyzed toes. I found out too late that my symptoms last year were indicative of Cauda Equina Syndrome and my case should have been treated as an emergency instead of me waiting around 3 weeks(in debilitating pain) from my 1st ER visit up to surgery. If I'd found out sooner, I'd have sued.
But back to the current problem. The T12 L1 herniation caused me excruciating pain and I was totally locked in spasm from armpits to hips. I had an Epidural Steroid injection a month ago, but my idiotic primary care Dr. did not send my MRI to my neurosurgeon, so when he referred me to pain mgmt, he had no idea I had the new herniation. Pain mgmt assumed it was a L3-4 problem and gave me an injection there. It caused me severe pain, worsening spasm, weakness, and more radiculopathy. Neurosurgeon thinks it aggrevated my scar tissue from last year and ordered a new ESI at T12,L1. 2+weeks later nothing has been done, but the ESI has worn off and I'm not in so much pain now. I was bedridden, unable to move due to the spasm for 4 weeks. The spasm eased up, but my neuro ordered me to lie flat on my back for 4 weeks and do nothing- he said only to get up to use the bathroom and shower. As much as I've tried to do that, I have 4 kids, one who is still home with me and not quite 2. my hubby works from home, so that's been a huge help, but he gets stuck on conference calls often and I HAVE to care for the baby. We've hired a gal to come in 2 afternoons to help with the cleaning, not that we could afford it, but we can't afford not to either. My 11 year-old was helping so much before school started, but she's finding Middle school to be too demanding and is having a hard time getting in all her homework, viola practice, etc every afternoon and can't help as much with the bambino.
I overdid it Monday when hubby got stuck on a call for 4 hours and I had to care for the baby. He's a busy boy, gets into everything, like most almost 2 year-olds do. I've paid dearly for it. I'm locked back up with spasm, in extreme pain, having difficulty sleeping, etc.
It's been over 6 weeks. I can't continue to live like this! The dr. does not want to do surgery because of the risks involved and how invasive this particular surgery would be, but I can't keep this up. I've had it. My mid-back pain is still excruciating, I am barely able to sit for 20 minutes at a time due to how bad it is. Forget walking further than across my house and back. I have a family to take care of. My husband does not get paid FMLA time, so he can't take time off, plus his job is on the line right now if he did because he's working with deadlines, they're understaffed, and he's crazy busy. He's the only one who can do his job and if it doesn't get it done, he'll lose it. He manages the website for Blue Shield of CA and has to coordinate everything that gets put up on the site- for customers as well as doctors and staff. We're basically screwed as far s him taking any time off.
Has anyone had T12, L1 surgery? Is it as bad as my Dr. says? Is it really so invasive that I should be expected to live like this, totally incapacitated, unable to care for myself let alone my family? This is riduculous!
Thanks for any info you guys can give me.