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In severe pain and running out of patience and hope

Hi everybody,

As I've mentioned before I'm 19 years old and I have low bag pain and severe radiating pain down my butt, legs, feet, and toes. I also have weakness and trouble urinating.

I've had an MRI and and X-Ray that haven't shown anything. The orthopedic spine specialist gave me an epidural steroid injection and said if that didn't work I should make an appointment with a neurologist. The same day I had the injection we told the orthopedics to make me an appointment with the neurologist...just in case.

This happened two Wednesdays ago and we still have not heard back from the neurologist. My mom has called the ortho's several times to tell them that the neurologist still haven't contacted us and they keep saying, "Oh, they usually take a while."

Last night I went to the emergency room for the second time in 2 weeks. I had severe pain and weakness and I couldn't pee at all. They didn't run any tests because I already had an MRI so they just gave me morphine and sent me home with vicodin like they did the first time.

I'm in college and it takes all of my strength to get to class. I have to go to class drugged up and loopy and drowsy. On the nights and weekends I have to stay in and lay on this couch to save my strength for class. I can't even go to my school's football games.

I'm becoming really upset about missing out on so much. The doctors don't seem to believe me or something...I don't know why else they would just let me live like this. I'm in so much pain. I can't remember the last day that I wasn't on some kind of pain killer. I don't want to waist my youth like this. I know that sounds stupid but it is how I feel.

If anyone has any ideas on what I should do please let me know. I'm really out of ideas. I just don't want to hurt anymore.



  • You poor thing, so sorry you're having to deal with this at such a young age.
    First of all, I hate that your mom is having hard time getting appointment set up. I know how horrible you feel but it's gonna be okay even if it doesn't seem like it right now.
    Try to stay calm and relax with a hot bath or shower. Get comfy!
    And most of all know you are not alone.
    Let your mom deal with getting the appointment and get your dr to push for it to happen quickly. You're in the right place here, I don't know exactly what to say other than I am here for you and if you stick around a bit,many others will be too.
    I'm just so sorry for your pain and that is why the rest of us are here, to support each other through our struggles.
    Take care and sorry I'm not much help, but I can listen and I know your pain.
    You will be in my thoughts, sweety! Just keep your chin up!

  • It is so nice to get support from people who know exactly what kind of pain I'm going through. Thank you, it really means so much.
  • I'm sorry you are having such a rough time right now.
    I would suggest calling the Neurologist directly besides your Ortho Dr. office calling. If you don't get a response soon, ask for another reference, you need help NOW, and keep calling until they get you in there.
    You may need a discogram to see what is happening. This is a diagnostic test used when MRI's and x-rays don't show any problems.
    My best wishes that you get help soon, take care,
  • Did you hurt yourself or what started all this? I am 38 and started having back pain at a young age. Had my first back surgery at 14. I understand missing out on things at your age. I still am suffering everyday and still missing out on many things. I have a son 18 close in age with you and off to college this year. I know how active his life is as I'm sure yours is. It really sux to feel hopeless. But even as bad as I've had it and as hopeless as I get, I don't give up. Think about things that have happened to others
    That could be worse. Think of your goals in life and grab hold of them. But never give up. Your just at wall that you have to climb over. But there is always hope.
  • See there.... There are people here to help you girl....
    Good luck!!!!
  • Jesse,

    Just want you to know that I deeply sympathize with you as I too have severe sciatic nerve pain from a herniated disc and have been in tears all weekend because the pain will just not go away in my leg no matter what medication i take. I have read numerous blogs and tried home remedies people have suggested but i have found nothing that relieves the pain. I will be going in for surgery this Thursday to have the disc fragments removed that are sitting on my nerve. It is just so lousy that you cannot get in to see a good doctor that can help diagnose your problem so that you can correct it. Mine has been ongoing since March and i opted for surgery b/c i cannot stand the pain anymore. I was told that if you let it go too long you could be stuck with permanent nerve damage so i cannot believe your doctor is not helping to rush your appt. with a neurologist. Sorry i cannot be of much help to let you know how to ease the pain but my thoughts and prayers are with you for fast help and recovery. (I have used a heating pad rapped around my leg over the weekend along with taking my pain meds and it seem to help a little)
  • sunny1966ssunny1966 VIRGINIAPosts: 1,385
    I wish I could help make your pain go away. You're at an age where you should be going and doing all the things you like to do. I hope you can see a neuro soon. I agree with Lisa that you should try to call the neuro. Sometimes ortho offices are so busy they don't get in any hurry to schedule for you. I hope you get help and answers soon.
    Good luck

  • I am sorry to hear that you are dealing with so much pain, coupled with the fact that no one seems to want to listen to you. I went through much the same thing at your age and did end up having to have a discectomy at the age of 19. It did help me for a while. Please do not stop asking for what you need. The fact that you are in so much pain that you can't urinate is a big sign and one that I would keep bringing up loudly. Encourage your Mom to keep calling the docs or do it yourself. Use the resources that you have here. Unfortunately for me I did not have this sort of support and kinda stumbled blindly. Spine-health was here for me for my last surgery and I am so very grateful for that. Keep on trying girl and know that others are thinking of you, praying for you, and cheering you on.

    One Love,

  • sorry to hear you have you go thru so much to get any help . i would like you to get help from the doctors but first i would like youu to get information as much as you can from this web site on your condition. i have read on the back pain for three yrs. the right diagnosis means everything . please look at every option before surgery.
    hang tough girl !!
  • :H Bless your heart! Way too young to be having severe pain ~X( . I'm for the greasy wheel theory -- make some noise and ring some bells at both your ortho and neuro's office. Please let them know about the trouble you're having with urination. Seems like they'd be jumping through hoops to get you seen.

    Sending you an O:) to watch over you. Please keep us posted on your progress and, of course, you'll find valuable information on this site.

    Take care sweetie :D ,

  • Today I was having another excruciating day so my mom called this morning to see why the Neurologist hadn't called us back yet. They said that I could get an appointment sometime in OCTOBER! There is no way I could wait until then to get this thing fixed. My mom was so mad considering I have been to the emergency room twice for this and I haven't gotten any help. She threatened to call the patient liaison so they finally got me an appointment for tomorrow afternoon. I'm not sure why, if this appointment spot was open, they were going to make me wait until October. Probably because I'm so young.

    Anyways the good news is I get to see the doctor tomorrow and hopefully this is the first step towards recovery. Does anyone know what they might do tomorrow at the neurologist? Does anyone think surgery is in my future?
  • I hope you get some help from the Neurologist tommorow. You'll probably get a full work-up from the Dr. with your pain history, physical symptoms and what has been done so far. Maybe he will have new x-rays done at his office. For your own sake please let him/her know what pain you have been dealing with, don't downplay it at all. With what you have posted you need help, I don't care what your age. Is your Mom or another adult coming with you? I hope so. Good luck, let us know how you make out.
  • Yes my mom will be going with me. Thank you and I will definitely be posting their findings. This is the first time I've ever been excited to go to the doctor! :)
  • I don't know if you take any nerve meds like neurontin
    But I noticed that it can cause a little urine retension for me.
    Before I took that med I had the opposite problem.
    And then when I was about twenty five I could not urinate for nothing and had to go to urologist & after 3 visits back to him.. I had to self cath at home for about a year and finally it started working on its on.
    for me back then..they said I had poor muscle control and it was either stuck open or closed and as hard as i would push with all my muscle strength i could not make it work.
    This probable does not pertain to you but thought i would give you my experience.(you never know)

    Hope your appointment tomorrow works out good and they can help you.
    Hugs to all.....Patsy
  • Hi Jessy, I just read your blog and I am so very sorry for all you are having to deal with at such a time when all you should have to worry about is making the grades and the fun of being in college.

    I am very curious what happened at the Dr visit as are most here I am sure.
    please keep us updated.
    I pray they have given you some answers, to me it sounds like you have a herniation followed by siatica but that is just my opinion with all that I have been through.

    *The squeeky tire gets the oil*
    Persistance is never a bad thing when it comes to these Dr's.

    Good Luck!!!
  • Hiya Jessy, I am 19 years old too so I can relate what it feels like to be so young and have continuous back problems. It is awful and I'm really sad to hear of your situation and pain.

    So you said you have had an MRI scan? And it didn't show anything-no disc problems? When did you have it? I'm very concerned about your symptoms because the problems using the toilet sound like CES - cauda equina syndrome, and I don't mean to worry you - but this needs immediate attention.

    How did the doctors appointment go? Keep us up to date with what is happening =). It sounds like you need another scan and more tests doing. Did you have an injury or accident of some type?

    I hope the doctors can help you, the first thing to do is find out what the problem is so you can start doing the right things to fix it. Unforunately there's no quick fix to back problems like this- but hang in there, and be strong! We're here if you need any advice/help or just kind words. =)

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