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Have to go back to Pain Clinic

AnonymousUserAAnonymousUser Posts: 49,671
edited 06/11/2012 - 8:36 AM in Chronic Pain
Went to see my PCP today, after going over the MRI results I was told that I have to go back to the Pain Clinic and have the SCS done. That really isn't what I wanted to hear!

I have a terrible feeling about this SCS. I have never done well with a TENS and am worried that this will not work either. I have agreed to go and give it a honest try. I like the doctor at the clinic and I trust him. He told me he was running out of options with me and the SCS is one of my last hopes. And if it doesn't work what then?

I dunno what to think anymore, all I want is to have a somewhat decent Quality of Life so that I can really enjoy being a grandma to Madi. I am scared of the SCS, but then again I am scared of them operating on my back ever again as well.

The MRI shows a massive amount of scar tissue with nerves entwined within the scaring, bone spurs (3) and a bulging disc pressing on the L5 S1 disc. Other test confirmed the CES also being a result of the L5 S1 problems. More bone growth on the right side of the spine at the L3 - S1.

So how was your day?


  • Perhaps you will know more when you have the trial of the SCS. Still try to get a 2nd opinion from another spine specialist. I hope it works for you so you have a better quality of life to enjoy your grandchild. Take care. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • I'm sorry about the news you got today. Well, it's up to you whether or not you decide to go along with the SCS. I'm in the same boat as you and tried everything for my chronic pain. I even had an SCS trial which went terrible but I was given the option of putting in a pain pump instead. I'm hoping to have mine implanted soon but for now I keep taking my meds as usual. You can ask your doctor if this is an option for you, but as far as I know they won't present this to you unless you already tried the SCS first. Whatever happens, don't give up and seek another opinion if you want. Take care
  • My sister did the SCS and it went wonderful for her ! She said it took about 80% of her pain away and she was down to a 12.5 fentanyl patch :)

    However be VERY VERY careful! She tripped over a cord in her home and pulled everything out and broke her elbow.

    They had to remove everything - she was on her last day of the trial 8 week period when this happened. Now they are not sure if they want to give her another try. She said this is very expensive and they are PO at her - yeah she fell on purpose ~X(

    But my point to you is - she has failed back surgery and many other back issues and this was a "miracle" for her.
    I wanted to share a success story with you to hopefully help you :)
  • maybe this will work for you. they say it can work well for sciatic pain...i'm getting one sept 28. i sure hope trial is a success for you....pete
  • where is your pain? is it worse in your leg or back? if its worse in your back then don't have the SCS if its your leg well...consider the SCS personally i would not go within 100000 miles of a SCS i know too many horror stories .especially here in the uk we don't seem to have mastered it yet .and i have been told by my pain consultant that a scs will not do anything for back ache and she would not have one put in her body ..there is a third option you could try the acticare its a high powered TENS AND AN external SCS so no nasty operations .see www.acticare.com for more info .
  • I have an SCS and it does not work for me. Mine is a permanent implant.
    I will never say NOT to give it a trial.
    Best of luck on what you decide. You do have other options.
    There are pain pumps.
    Patsy W
  • to how you feel. My PM gave me a video and is trying to talk me into the SCS trial. It just freaks me out to have something like that "installed" in your body. I must say that if the meds that I am on now cease to work I will give it a try. Anything is worth trying if there is even a slight chance to get some relief and quality of life from. Good luck to you.
  • What gives you the right to criticize something that you yourself have not given a try? If you have nothing constructive to add to the conversation, keep your here say to yourself.
  • Thanks for your honest input on the SCS. To answer your question about where the pain is worse I would have to say honestly it's both my back and legs.

    My back of course can ease off with rest, if I don't stand much, walk much, much less bend over it is tolerable. But my legs at times drive me near INSANE.

    I am going with my SIL today to see our PM doctor while I am there I am going to ask for info on both the SCS and the acticare. Never hurts to be well informed. Thanks for the tip and trust me... I really don't want the SCS. I have a really bad feeling about the SCS for some reason.

    Thanks again
  • Part of the reason I don't want the SCS is knowing what you have went through. I was first told about the SCS when I came here to SH. I was scared then and seeing what happened to you it scares me even more.

    Could you tell me a little more about the trial period?

    Hope you are feeling somewhat better since your fall, it sounds as if you really did some damage to your shoulder.

  • part is what scares me the most too. I have made my self down right sick about this. Thing is my PCP wants me off pain meds... I have been on pain meds for 7 years now. He is begining to freak out about this. His main concern is that should I ever get something worse than what I have now to deal with I would need much stronger pain meds and I am very sensitive to pain meds as they all make me sick.

    I am going to learn more about the SCS and the acticare that Straker mentioned as well.

    Thanks for taking the time to reply.

  • Straker is a dear friend and he knows that I am scared of the SCS and is just trying to offer me more options.

    And BTW he at least offered helpful info on the acticare, just what advice did you have to offer?
  • I can always count on you dear friend. I am going to get more info on the SCS and also going to take Strakers advice and check into the acticare.

    hope you are having a better day.

  • Sure wish your sister would be able to have her SCS replaced. Hearing a success story does help a whole lot. The funny thing to me is my PCP agreed with me in the begining about not doing the SCS, now he thinks it would be my best chance at a better QOL...

    Take care and again thanks for sharing the success story.

  • Would they even consider one on someone who is extremely sensitive to stronger pain meds?

    The reason I ask is that Morphine and Demerol make me SEVERELY sick, I mean one shot of either and I am sick as a dog for days.

    Exactly what meds do they use in these pumps? And if my PCP is wanting the SCS to get me off pain meds (fear I will need meds later should something worse happen to me) would not a pain pump make my body less tolerable to pain meds at a lower level?

    I have soooo many questions lol.

  • Offering other options is fine. Going negative on something that you have personally never tried is ridiculous. He has no personal frame of reference to base his advice on an SCS on.

    The only advice I have to offer is to try the Trial SCS. If, after the trial you decide its not for you, you can at least say to yourself that you made an informed decision. I'm having my trial next month, so I'm very aware of where you are coming from.

    To reject something because of here say, rumors, or I heard from a friend who had a friend who had a cousin who has a brother..... you get the point. Make your own decision,

  • Thank you again for your advice and thought. I hope your trial period goes well and this works for you. I am nervous about this procedure but have an appt for a consultation on the SCS on the 22nd. I will have to see how things go from there.

    Again I honestly hope that this works for you. Please let us all know how things go with the trial.

  • I think you should do the trial. I don't think it's for everyone. I have one and am having problems and looking to have it removed. But many have had good results and I too had good results at first. But I have a problem with drs using the last resort statement.
    Really, this isn't the best they can do is it? And if you have scar tissue stressing the nerves and a bad disc, this may not be good and I would get a second oppinion before you take the last resort option.
  • i guess looking at the fact that 70% of the people who have the implant find it helpful is a good percentage considering these people did not get relief with surgery. at least its an option for those that would not have had one. my surgeon told me of the 40 he has inserted 4 people wanted them removed. thats 10% that had it taken out. the dr said its not great for back pain and groin pain but works well for pain in the legs. i cant believe it will help me considering how pain is everywhere in legs but dr said it should help. they couldnt get my trial scs placed because if bone and scar tissue so they will implant it without my having had trial. so wish me luck that is as long as i dont chicken out :-C
    kathy...one thing you may want to check on is the scs affect on ces. maybe the company has some statistics on that. some people have reported negative feelings in their genital area.
    of course it can always be taken out that is as long as your insurance is active...right hollie :S :S
  • I have a friend who had horrible leg pain and had the scs implanted. It took 100% of her pain away. She is absolutely thrilled with it. She can do anything she wants now. I really hope this works for you. We're all different and what works for one might not work for another. I think it's worth a shot. Again, good luck to you and to others who are in the process of trying this.
  • stories like that are music to my ears :-C :-C :-C
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