I looked through the forums and couldn't decide where to post this, so I decided this would be the best forum... as this is a chronic pain condition.
My 15 year old son, Zach, was just diagnosed today with Trigeminal Neuralgia. Zach has been prescribed Neurontin to take twice a day, starting with the first dose tonight.
Since Zach was 5 years old, he started having migraines. He didn't have them often enough for his pediatrician to prescribe a daily medication for him to take. We were told to give him Tylenol and Advil at the same time, as soon as his right eye started to hurt and have been doing this for 10 years. I have charted his diet and activities over the years, to see if anything triggers his migraines. Since there has been no correlation with his diet or activities, the pediatrician has said it is probably genetic. (Zach had scans done on his head years ago to rule out tumors). Zach has been able to participate in sports and makes excellent grades.
Last Thursday, Zach started complaining of severe cheek pain. At first we thought it could be allergies and sinus related. He took several hot showers a day and we put the vaporizer in his room. We tried nasal sprays and also the Tylenol and Advil combination. I then wondered if it could be related to his teeth. He has regular check ups with his orthodontist, so I went ahead and got him in Wednesday morning. They took Xrays and nothing showed wrong with his teeth or the sinus area he had pain in. (Zach was running no fever and had no suspicious sinus discharge over the past week). Wednesday night, Zach took a turn for the worse. Mike had to take him to the ER at 9:30pm, as the kid was in excrutiating pain. They returned home with a prescription for Vicodin and the attending physician referred him to a well-known Pediatric Neurologist. We were lucky to have a cancellation this morning with the Pediatric Neurologist and Zach was able to be seen right away. The Neurologist is awesome, plays golf with our Pediatrician and feels Zach will do very well with the Neurontin. I am relieved, as it's been horrible to watch this kid suffer when he gets migraines and to see him in pain with his cheek... well, you just feel completely helpless.
My questions are... does anyone have this diagnosis and are there any "bad" side effects with this medication? He will be taking nerve medication for the rest of his life, which is fine and Zach is fine with this too. This all is brand new to us and just would like any feedback from others?
Thanks a bunch,
P.S. I was out and about for 3 hours today without my walker or wheelchair. I'm a bit sore, but isn't it amazing what adrenaline can do? I would have RAN with Zach to see this specialist, if I had to. But, I held on tight to Mike's arm and made Zach carry my heavy purse... lol!