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Nerve roots, Scar Tissue, I have questions?

cateyesccateyes Posts: 123
edited 06/11/2012 - 8:36 AM in Chronic Pain
Hi Everyone,
I could really use some info about scar tissue and nerve roots. That's one of my problems. I've had extensive scar tissue impinging several nerve roots (that was the last count 8 years ago, no telling how much I have now) and need info about what can be done about it.
Here are the options that I know about:

(1) surgery to remove scar tissue (which will come back again)
(2) Having the nerves cut or burned to ease the pain.
(3) PT to loosen and help break up scar tissue. (It's my understanding that this works best when started early, not over 8 years layer)

I would appreicate your input on this, especially from those who've gone through some of the options above. If you are aware of other options please tell me about those also. It's time for me to finally do something about this and I would like to be as well informed as possible.

Thanks ahead for your help!!!!!!!!!!!!!
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Comments

  • I don't know what happened, it was supposed to say "Nerve roots, scar tissue, I have questions?" I'm in a great deal of pain so lease bear with me.
  • Sorry you've got this.

    Surgery-yeah, same thing I've heard. Some folks will do Kenalog(steroid) injections into the scar tissue to try to calm it down, but in the long run will make it worse.

    Burning nerves? Well, depends what you're burning. If you do, you'll have to have it done again and again and again and again forever. You may not be able to have it done. I begged and was told mine would leave my leg paralyzed. I said that's fine, I'll put a brace on my leg and drag it, that's OK with me. Well, for some reason docs are a little hesitant to do that!

    Therapeutic scar tissue massage. Had it done and believe in it, but you are right, best shortly after surgery. Can't hurt to try, but it only frees up the upper level of tissue, lets the skin free up from the muscle fascia. It cannot do anything about scar tissue wrapped around nerve roots.

    What have I done? I've corrected the mechanical problems that I can(hardware removal, BMP overgrowth((which was initially read as scar tissue)) massage, PT, etc.) and now have a perm spinal cord stim which is so far helping but I am very fresh postop.

    The more you mess, the more scar tissue you get. Make sure it really is scar tissue(like no BMP overgrowth on nerve root) and work from there. Arachnoiditis is an underdiagnosed condition where there is clumping of the nerves, vessels, and scar tissue. If you want treatment, you don't want that on your record cuz ins companies shy away from something that is so costly and permanent and progressive.

    Good luck, if you find some new info, please post. There's a lot of us in the same boat(not the Titantic, I don't think) together!
  • Is this an issue in the lumbar area?
  • Never been told anything bout no scar tissue causing my back pain, so don't know what to say. But heard alot about it here. But do have scar tissue from c-sections(16&18 yrs ago) wrapped around my small intestine,yes,on top if everything else. Not having it removed yet, but have had bouts of blockage off and on and will do whatever gastrologist wants to do which is eat more fiber and help things along and just keep an eye on the situation.
    Hope you find answers, like I said, I know I've seen others here with that problem!
    Good luck!
  • that in 99.9% of surgical cases there is some degree of scar tissue ..in most cases its not a problem but in certain parts of the body it is a major problem and the spine is about as bad as it gets .and i have also been told that when you have your scar tissue removed it grows back even quicker and more of it the second time and the third time it get worse its a bad situation .and scar tissue {epidural fibrosis} can be just as painful as a disc out because its still bone on nerve same thing! you end up in pain.i mam sorry that you are in pain my friend and you and i have a good laugh i know that you aren't laughing at the moment but just keep pounding down the pain killers and email me when you feel better
    STRAKER
  • cateyes said:
    Hi Everyone,
    I could really use some info about scar tissue and nerve roots. That's one of my problems. I've had extensive scar tissue impinging several nerve roots (that was the last count 8 years ago, no telling how much I have now) and need info about what can be done about it.
    Here are the options that I know about:

    (1) surgery to remove scar tissue (which will come back again)
    (2) Having the nerves cut or burned to ease the pain.
    (3) PT to loosen and help break up scar tissue. (It's my understanding that this works best when started early, not over 8 years layer)

    I would appreicate your input on this, especially from those who've gone through some of the options above. If you are aware of other options please tell me about those also. It's time for me to finally do something about this and I would like to be as well informed as possible.

    Thanks ahead for your help!!!!!!!!!!!!!
    I can tell you 1 thing cateyes i have 2 out of the 3 your talking about, and not relief. hang in there. I know easier said than done. What were your operations on? spinal fusions L5,L4
  • The formation of scar tissue near the nerve root (also called epidural fibrosis) is a common occurrence after any back surgery. It's occurs in everyone that has surgery, even those with favorable outcomes. For this reason, the importance of scar tissue (epidural fibrosis) as a potential cause of postoperative pain is controversial.

    Scar tissue formation is part of the normal healing process after a spine surgery. It can be the cause of back pain or leg pain. Scar tissue is rarely painful since the tissue contains no nerve endings. The back and/or leg pain is thought to be the binding of the lumbar nerve root by fibrous adhesions.

    Just wanted everyone to be aware of the actual reason why scar tissue would cause pain.

    Dave
  • Ok, here's what I've been through. I had a laminectomy on the L5-S1 disk, then 5 weeks later it ruptured again and my surgeon made the (huge) mistake of choosing a fusion for the next surgery. I found out later I only needed another laminectomy. Oh well, what's done is done. The fusion was a huge mess, the hardware came out on it'swn and way too much bone was taken from my spine. I was no longer connected from the L5-S1 to the rest of my spine. Yes, I felt very wobbly and came very close to being paralyzed. My new (and very good) surgeon could only go in and do reconstructive surgery. He knew he couldn't save me from pain but had to put me back together the best he could. Around this same time I had a Mylogram done and that's when we saw the impinged nerve roots, lower lumbar area. Completely squeezed off (at least 3 at the time) and this was about 8 years ago. I haven't had a new mylogram done, my PM doc won't allow it. I did have a recent MRI that showed that almost every lower disk is now protruding. Plus a bunch of other stuff that I can't remember right now and my records are at home, far far away. And this is just my lower back, my mid and upper are also very screwed up, some doc's think I may have scoliosis. My spine is a mess from my neck down and the pain right now is overwhelming. I daydream about sticking a sharp knife into my lower back, where I assume those nerve roots are and just slicing through, I imagine the sweet relief I would get from feeling those nerves take their first unrestrained breath. Of course I would never really do this but my fanatsy's sure feel really nice. Hmmmm, sweet releif would be sooooooo nice!

    P.S. Thank you soooooo much for fixing my topic thread, whoever performed that little miracle!
  • Now that I've provided more info I would really appreciate your thoughts. I did and do appreciate what has already been given, thank you for that.

    I would also like some input from those of you who have had pain pumps implanted. A close friend of mine suggested that I wait and think long and hard before I take that leap. I think he may be right. But in the meantime I would like to know what the pitfalls are that could come along with it. What are the bad side effects, what can go wrong, etc. etc.? Or, has anyone had their life changed for the better, significantly?


    cateyes said:
    Ok, here's what I've been through. I had a laminectomy on the L5-S1 disk, then 5 weeks later it ruptured again and my surgeon made the (huge) mistake of choosing a fusion for the next surgery. I found out later I only needed another laminectomy. Oh well, what's done is done. The fusion was a huge mess, the hardware came out on it'swn and way too much bone was taken from my spine. I was no longer connected from the L5-S1 to the rest of my spine. Yes, I felt very wobbly and came very close to being paralyzed. My new (and very good) surgeon could only go in and do reconstructive surgery. He knew he couldn't save me from pain but had to put me back together the best he could. Around this same time I had a Mylogram done and that's when we saw the impinged nerve roots, lower lumbar area. Completely squeezed off (at least 3 at the time) and this was about 8 years ago. I haven't had a new mylogram done, my PM doc won't allow it. I did have a recent MRI that showed that almost every lower disk is now protruding. Plus a bunch of other stuff that I can't remember right now and my records are at home, far far away. And this is just my lower back, my mid and upper are also very screwed up, some doc's think I may have scoliosis. My spine is a mess from my neck down and the pain right now is overwhelming. I daydream about sticking a sharp knife into my lower back, where I assume those nerve roots are and just slicing through, I imagine the sweet relief I would get from feeling those nerves take their first unrestrained breath. Of course I would never really do this but my fanatsy's sure feel really nice. Hmmmm, sweet releif would be sooooooo nice!

    P.S. Thank you soooooo much for fixing my topic thread, whoever performed that little miracle!
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