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AnonymousUserAAnonymousUser Posts: 49,670
edited 06/11/2012 - 8:36 AM in Lower Back Pain
Just looking for some advice, not sure what to do next or where to turn. My story in a nutshell: (I’m 41 working full time , married mom of 2 4th grade boys)
Summer of 2007 I herniated a disc (L3/L4)
Went to Neurosurgeon – got MRI
Diagnosed with Herniated disc, DDD and Stenosis. She didn’t think surgery would help so she sent me to PM doc for treatment.
PM doc #1 – RX Vicodin 750mg & Robaxin 750mg
did Decomp on DRX9000 for 3-4months. – (Ugh! Made things worse I think!)
Monthly shots – facet / ESI (which didn’t work at all) Nerve Block, SI
They also do Laser, Weekly Massage , PT & Chiro
Summer 2008 – PM doc #1 thought I might have Fibromyalsia so I went to a Rheumatologist And she did tons of test and confirmed Fibro – but I didn’t want to take the long term meds so I didn’t go on Lyrica or anything.
Spring of 2009 PM Doc #1 left the practice so I get PM Doc #2
#2 hates all meds. Cuts me down to Vicodin 500 with the Robaxin 750. I’m good with this. Less pain meds still work fine.
All this time still getting constant shots – some work some not, he tries different things
Depending on my insurance and what BCBS will pay for.
So here I am – 2 years later.
Probably more pain than before.
PM doc #2 thinks I should be off all meds – Don’t know how I would sit in a desk at work without them. – I have tried over the counter and it doesn’t touch the pain.
I never run out of meds. He gives me 60 a month and I use 1 to 2 a day so they last 6-7 weeks. But I need them!
So now here I am. I have a NS I can go back too for more MRI/tests.
I have a Rheum that wants me on Lyrica or something like it.
I have a PM that is just managing the pain.
What should I do? I can’t live like this, I want my life back.
Anyone have any suggestions?


  • To get a second opinion, and that is where I would start. Ask your PCP to send you to another Neuro for a second opinion, then go from there. As for the Fibro, some people do respond well to Lyrica, I personally did not respond to these types of meds, however, if Fibro is a major pain problem it is well worth the try on these meds. From my understanding they really do help with pain for those that it works on. (made me extremely dizzy and gave me headaches as well).

    See if you can change Pm doctors as well, you need someone who is willing to listen to you and not always demand "off drugs", not much of a PM doctor that won't allow pain meds if needed.

    Honestly I think it all starts with getting a second opinion. It always pays to be well informed and having a second look with fresh eyes.

    Hope things improve for you soon.
  • I agree that you need to start over with a different spine specialist. Try to find a fellowship-trained spinal specialist. This can be either an orthopedic spinal surgeon or a neurosurgeon who has additional fellowship training beyond their residencies in the spine and back, and who devotes his/her practice to patients with spine and back problems.

    You will need a new MRI to see if there have been changes in your degenerative disc diseas, stenosis, etc. or otherwise in the spine. I would think you would be a candidate for a discectomy and/or a procedure to clear out some of the stenosis to make more room for the nerve.

    I'm curious if you went to a chiropractor for the Dx 9000 treatments? Also, I am curious about the injections you were given. Generally speaking, if an ESI is going to have any effect it will happen within the first couple shots. There is not point in continuing to inject if the trial is a failure. Also, many doctors do not like their patients to have more than three/year, even when they are providing some relief.

    At this point, I think I would regard your fibromyalgia as a separate disease and try to get a diagnosis concerning your back problems.

    Different surgeons have different opinions about when it is appropriate to perform surgery. It is always a good idea to get at least two opinions.
  • hi and welcome to the forum! :H we are here to offer you support and answer what questions we can. i have found Lyrica made a big change in my pain levels with my sciatica. i would not want to do without it now! perhaps it is something to try!! you might talk to your doc about it.. :-C good luck and i hope you find some pain relief soon! :D Jenny :)
  • Gwennie-
    I did go to a Chiro for the DRX9000. The Pain Managment group I go too includes 1 - GP, 1- Anestisologist(yeah like I can spell that!), 2 - Chiros, and several different PTs and Massage Therapists.
    I started with Facet shots that were seriods, these were monthly. The I had SI and SNRB (I think this is the block)
    serveral times. Some more than once a month.
    I had one and only one ESI as it cause way more pain than helped. So I haven't had another one.
    These docs act like the shots are nothing, maybe I need a whole new group! I have been going weekly (sometimes more) to see them. Insurance covers it all so I haven't really had too much out of pocket. I guess I just started thinking is this it?
    I will find a new specialist and start again.

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