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strakerstraker Posts: 1,851
edited 06/11/2012 - 8:36 AM in Chronic Pain
we folks
kath and i went to the hospital today and was told that due to all the damage in my spine another operation was out of the question ..there is not enough healthy spine to do a fusion and the surgeon did not think that would help anyway .but he has ordered another MRI scan because i wants me to see one of his colleagues about possible artificial disc replacement but again he was not too happy about this option as he has not many results in the uk for this type of major surgery ..i would like to here from any spine health member that has had this done ..so i am upset and angry i am only 43 and my life has been ruined with constant pain ..it looks like this is it for me ..i am not self pitying its just a statement of fact ..anyway thank you all for your support


  • Straker about your news. I have only heard of one person, who is in chat frequently, that had lumbar ADR and his is not a good story. I hope this other doctor can give you more answers.

    Best to you,

  • So sorry bout the news. It gets old not to hear nothing good like that, I know the feeling. You still gotta think past it and think someone will finally be able to come up with a GOOD solution. Like all proceedures.. What works for one may be great for another and it may not. But no one truly knows til they experience it themselves.
    I hope you find answers and your drs can give them to you.
    We all know you're not a quitter!
    You're in my prayers everyday!

  • Straker,

    I am trying not to cry because my little one is next to me and she sees enough tears. I just signed on hoping to read a post from you with good news. I thought about you all day, hoping for a good outcome with the Dr.
    Please just know that you are in my prayers that you can find some relief.
  • Tony, I'm sorry that you feel badly about your visit. But, think of the good thing, that your surgeon is referring you to another one, to search for more answers!! Keep searching, and keep up hope that your situation can be helped, if even a little, that's a little better than where you are now, right? Try to have a good day, and keep us posted!!
    APROUD CANADIANveteranButNOTa doctor, my thoughts are my own
  • i know hearing your drs report isnt bringing any joy. try to look at the good things in life as i am sure there are still many happy things to think about. a wise man recently said to me that he knew a man with no shoes who was very sad until he saw a man with no feet. dont loose hope there are new things coming our way. maybe the adr can do it or the pain pump but in the mean time be thankful for what we have....pete
  • That was NOT the news I wanted to wake up to this morning.
    You are such a good friend to all of us that we were all hoping for something better.
    I just know you will find the strength to reach deep down inside you and pull yourself out of this funk.
    Each and everyone here have rallied around you and will always be here for you just as you have been here for us.
    Thank goodness you have Kath!!
    I do wish there was something I could say to help but there is not so I will shut my fingers up, make them into a fist and pound the table in flusteration!!
    Sending a special hug to the two of you. >:D<
    Patsy W
  • At least he did not shut the door on you completely. If he is referring you to a colleague, at least there is still a chance.

  • sunny1966ssunny1966 VIRGINIAPosts: 1,385
    You have to keep believing that the mri will show that things aren't as bad as they think. Don't give up hope my friend. I sent you a pm.

  • Fight and fight until you are sure that all options have been seriously ruled out by competent physicians.

    Sent you a PM. I don't know if they do mail in MRI readings for a long distance second opinion, but this group lead the world in cervical and North America in lumbar disc replacements.
  • You are usually the first one wanting to kick our tails for wanting to throw in the towel... don't do it to yourself.

    Even if you do have to live like this the rest of your life remember AT LEAST YOU STILL HAVE A LIFE, AND WITH IT A HOPE FOR TOMORROW!!!

    I am prayin for you dear friend, and know that we are all here for you.

  • yes i was upset when i wrote this post ...you would be!! but i have had a few hours to take it all in .and now i am feeling a little better .so i will wait for my MRI scan to be done and we will take it from there ..i think is was just a shock today being told that there was nothing that could be done with my existing spine as most of the healthy tissue has gone bad ..they could not even have done a fusion as there is no healthy bone to fuse to.so ADR is the only way .but over hear we are light years behind the rest of the world .the top surgeon over here has only done 100 operations and he told me today that there have been poor results and its the very last option .and like my original back operation years ago }14} i think whilst you guys were having microdiscectomies we were all having massive open surgery and the technology has come on so much regarding standard back surgery for us over here..we are about where you were 10 years ago..if that makes any sense! i don't fancy being a guinea pig as i am still youngish!! i think that maybe i can wait a few years while the technology catches up ?? i don't know ..lets just see what the new MRI says .it will be in about 6 weeks ..once again thank you all you are wonderful people and very caring
  • Soo sorry to hear you are running out of options. But at least you are not out of them yet,?!! I know it is hard to get news like that and I hope that you can find some comfort in the fact that the door isnt completely shut. I know you said you dont feel like it is done enough over there yet. I am surprised that only 1 Dr does them there. I am 49 and kind of know what you feel like to be in so much pain at a young age. It sucks big time, but please know that my thoughts and prayers will continue to be with you for another solution to your pain. Love, Robin
  • I'm glad you're feeling better, and the initial shock is over. It is like being slapped in the face. Let's not give up hope on what the new surgeon can do for you!!! Hang in there.
    APROUD CANADIANveteranButNOTa doctor, my thoughts are my own
  • j.howiejj.howie Brentwood, Ca., USAPosts: 1,730
    I have had to many surgeries, too much scar tissue, and too much plaque that could get knoked off and cause massive trouble. So a regular surgery is out of the question.
    I just saw a surgeon, who has a new FDA approved technique, Where he goes in from the side, arthroscopicly and dose all his work and installs some kind of a new "basket" All with a 2 inch inssision. A out patient type surgery done in a surgery center with just 1 night stay for observation. As I get more info. I'll send it to you. I'm in Northern California, U.S.A.
    Good luck, Jim
    Click my name to see my Medical history
    You get what you get, not what you deserve......I stole that from Susan (rip)
    Today is yours to embrace........ for tomorrow, who knows what might be starring you in the face!
  • =(( Broken Hearted for you but at the same time still not giving up hope that with the right doctor and procedure, your life could turn around. Are you a candidate for a pain pump or SCS? I read your medical history and didn't see anything. Is your spine too messed up for that?

    You know there are teaching hospitals here in the US and I should investigate where orthopaedic and neurosurgeons go to do their fellowships. This is the world we're taking about here -- as you said England is behind in their procedures but other countries may not be. Sometimes surgeons will take cases at teaching hospitals and you don't have to pay anything.

    And as Jim said in his post, there's a new technique he's looking into. Where there's a will -- there's a way!

    I'll just keeping praying for more little miracles for you and just maybe you'll get the BIG one you really need.

    Thinking of you and sending you a >:D< and a :D ! Send you a PM later.

  • I'm sorry to hear about your condition but at least he's ordering another MRI to see if something can be done. Never give up hope. Healing thoughts and a prayer for you my friend. Charry >:D<
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • So sorry to hear about your bad news but hopefully this colleague he's referring you to can really help you out. That stinks that your health care system is so behind in times. If you and I weren't married already I would marry you and bring you to the US where we have better technology. Just add this to the tons of other proposals you've gotten over the last month or so lol. No...but seriously....I pray that they will find something helpful in your MRI that can bring you comfort and pain releif. My prayers are with you and Kathy.
  • With everyone else I am sadden to hear this news.

    I don't know zip about your country so I may be 100% wrong here - but do your hospital ever get "our" Drs from the US that come over to to teach other Drs how to do things?

    Like years ago when a US dr learned how to do a heart transplant then he and others went around to other countries and taught others Drs how to do it. Maybe you could get a qualified Dr to do the ADR?

    Any ways - like others have said yes wait and see what your MRI shows and mean while we will all pray that this Dr is wrong :)
  • Hi Tony, aww Tony im so sorry to hear your news BUTTTTTTTTTTTTTT all is not lost yet!, you just never kinow what this other surgeon might be able to do for you........like someone else said where there is a will there is a way and i really do believe that
    Thinking of you and praying that you get the help and treatment YOU DESERVE.
  • haglandc said:
    At least he did not shut the door on you completely. If he is referring you to a colleague, at least there is still a chance.


    Not to make light of the situation but I couldn't help thinking of this youtube clip.
  • That's about the worst news you could get, I'm so sorry. I haven't had ADR surgery so can't help you there. Don't lose hope! Maybe the technology will catch up to you one day and you'll get that chance to be better. Thank you for reaching out to me, I appreciated the pep talk. Please let me know how your MRI turns out. I'll be thinking of you my friend.
    Faith M
  • I'm so sorry to hear that, but maybe it's for the best. I would hate for things to get worse for you if you had another operation. Even so, I understand how bad you feel because you're still young and I know that you would give anything to feel better. We're here for you and pray that life is kinder to you and your wife. Take care my friend
  • So sorry to hear they can't do much. Let's hope there is some good news from the mri and the next appt!
  • Tony - be thinking of you! keep your attitude up, I know that I would have a hard time of it too! Keep going!

    I don't know if you ever saw the cartoon of the pelican, with a frog in its mouth, legs are hanging out of the pelican beek and 2 arms, of the frog - wrapped around the pelicans neck, so it cannot swallow. Under - it saw, "Never, ever, Give up!"

    Cheers David
  • Tony - be thinking of you! keep your attitude up, I know that I would have a hard time of it too! Keep going!

    I don't know if you ever saw the cartoon of the pelican, with a frog in its mouth, legs are hanging out of the pelican beek and 2 arms, of the frog - wrapped around the pelicans neck, so it cannot swallow. Under - it says, "Never, ever, Give up!"

    Cheers David
  • Well, I'm not in the same boat you are. I just had my 3rd surgery and things are looking up a bit finally. Don't lose hope. As my wife tells me, be glad you are having these problems now and not 20, 30, 100 years ago. Technology is advancing so rapidly that one would have to assume help is only over the horizon. Imagine what happened to people in your condition 50 or so years ago. Now THAT would suck! Good luck man. Keep trying. I'm sure things will work out eventually.
  • Hang tough. Many of us have been told more once that nothing more can be done with many of our problems. Don't believe 'em or give up. That is all that particular doctor can do. Push on (even if you have to cry and curse along the way). Keep consulting doctors. No matter how slim the chance, follow every lead. There is help - it's finding the right doctor that's like find a needle in a haystack and so frustrating. 5 years ago, I really got to the end of my rope but, by the grace of God, had some good folks placed in my path. I went through so many doctors at one point, I really thought there was no hope. I did get finally get significant relief for 3 - 4 years. I know you have "hit the wall" and are feeling horrible. We, of all people, truly understand. Doctors can be quick to write patients off but you need to stand firm and not write yourself off. I truly pray you get some relief soon!
  • j.howiejj.howie Brentwood, Ca., USAPosts: 1,730
    has always been my hero! Straker, never give up!
    Goood luck, Jim
    Click my name to see my Medical history
    You get what you get, not what you deserve......I stole that from Susan (rip)
    Today is yours to embrace........ for tomorrow, who knows what might be starring you in the face!
  • Everyone else has said it first....Don't give up. Can you come to the US? I know it's expensive, but your quality of life is worth it! Perhaps the new dr can help, or knows someone here in the US that is profecient in doing the ADR. Never give up hope.

    Praying for a miracle for you.
  • We can all relate to your life. The ups and downs of chronic pain. I am glad you are getting to see another doctor and I will pray that together you find a way to decrease your pain. A friend of mine here in California is going to see a specialist in spine pain. He injects a gel like material in between the discs and has had huge success. It is deemed non-invasive and the procedure has very little recovery time. I guess it would be a form of ADR but the material he injects is new and he developed the technique himself. New treatments are coming out all the time.

    Take care,
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