Never been in a chat room before but thought I'd give it a try - pretty desperate to connect with real people who know what it's like to be in chronic back pain & going through surgeries. Unless you've been there, others simply cannot grasp what we are going through.
I've had back pain & problems my whole life. It was never fully explained to me as a kid, just that I had scoliosis. Turns out it's degenerative scoliosis. Three yrs. ago I had a run of bad luck with my health. Here's the low down:
May 2007 broke my collarbone due to a tumor in the bone
May 2007 thru Sept. 2007 had three surgeries for kidney stones & infections
Dec. 2007 T12 laminectomy for a tumor on my spinal cord
March 2008 L1 to L5 spinal fusion due to collapse of my lumbar spine from the scoliosis
Just this Aug. I had to quit my part-time job from too much pain in my back, butt & legs. Finally got in to see a new specialist (the dr. who did the fusion doesn't believe in pain meds at all - tylenol just doesn't cut it)
Turns out the rest of my spine has now collapsed. I'm going in on Oct 5th & Oct. 18th for more spinal fusions, this time from T10 thru S1. The good news is, 75% chance of getting 75% pain relief. Not so great news is, I will never be able to bend again - ever. Pretty scared. How do you go thru life & never bend? I'm already house-bound & extremely isolated from the world & now I'm facing another 9 mo. to 1yr. recovery from the upcoming surgeries. Fear, sadness & anger. Sometimes it's just too much & wish I had someone to connect with, to know I am not alone. Someone who understands what this is like. Hopefully y'all can be my connection with the world & I'll be happy to share any knowlege & experience I've gained so far. I try to be a positive person, but lately it's gotten pretty hard. I had no idea any of this was in my future & wasn't the least prepared for it. Trying very hard to learn from this but the constant pain takes up most of my time & energy. Anyone out there that can relate? :H