I'm so glad I found this website! Three years ago, I was about 4 months pregnant, and my sciatic nerve on the right started bothering me. PT made it worse, and soon I could hear clicking and popping. Since that time I've had severe coccyx pain.
The labrum in my right hip was torn, and I have calisified cartilege in my hip joint; however, a cortisone shot given in March 2009 has taken that pain right now. I can still hear it pop and click, but it's more like a pressure release than actual pain.
After being misdiagnosed for months, I finally learned last month that my coccyx luxates (or moves back and up) into my saccrum when I sit down or stand up. This is a severe click/pop - probably a 9 or 10 on a scale of 1-10 - brings tears to my eyes and takes my breath every time. On a normal day my pain-in-the-butt starts about 20-45 minutes after I wake - usually around a 4-5; then after I drive or ride to work for an hour, my pain level will usually stay at about a 7-8, until I get home and take my pain medicine, of course, it makes me sleepy, so I can't take it until the baby is in bed. Usually I go to bed at 8 when he does.
We haven't been able to locate a coccgectomy specialist in my state - trying to get my insurance to pre-approve out-of-state physician in LA.
My husband tries very hard to understand, but I can get moody and irrational sometimes. The rest of my family doesn't understand chronic pain - they just can't 'see' anything wrong with me, and I don't whine about it all the time - after months of being told this severe pain was in my head, I'm having a hard time expressing emotion - unless I'm alone or with my husband - he's my rock!
I'm normally a very happy, energetic person. This has affected every aspect of my life, and I'm not the mother, wife, sister, daughter or friend that I was before this pain came into our lives. My pain limits EVERYthing we do.
My pain mangement doc told me he was 'afraid' it would come to this (having my tailbone removed); I told him, 'hey, don't be sad - I've had this pain in my butt for three years - it's my number one enemy - I'll be happy when it's gone.'
Sorry this is so long, I'm just so glad that there are people out there who understand and don't think I'm werid or looking for narcotics or a hypo-chondriac. It's just been a really long three years. . .