Hello all, so...I recently found out that for the past 12 years I've had a C2 fracture of my odontiod with a complete non-union. But let me give some history before I get into too much details. I'm sorry this is so long, I tried to keep it to the facts. Though it is a rather interesting story about me severely breaking my neck.
It started when I fractured C1 and C2 in a car accident back in October 1997. (C1 was fractured in half on the anterior left and posterior right; C2 fractured my odontoid off completely, right at the base). So I pretty much broke the 2 vertebra responsible for the majority of head/neck movements. The Neurosurgeon decided not to do surgery considering that it seemed to be a straight compression fracture and all the bones remained properly aligned. Wore a halo for a bit then was told that everything healed fine. At the time I was only 17 years old so I figured that considering the extent of my fractures, I should've been dead or paralyzed. But instead, since the day I left the hospital with my halo on, I was 100% ambulatory and fully functional 3 months post accident. With the exception of some minimal range of motion loss I went back to my normal life playing sports, skating, etc.
Now fast forward to last month when I found out the big news. A bit over a month ago I had an atraumatic neck injury. I was using my head and feet to pivot my body to change position on my recliner and felt a sharp pain shoot from the lower occipital area down my neck into my left shoulder a bit. My neck was completely locked up for 1 day then gradually started to retain motion over time while waiting to see a doctor. Got MRI, CT and x-rays done. After looking them over it seems that my odontoid never did actually heal because there was a gap at the base where it is supposed to be fused to C2. Instead of being fused to together it's connected by scare tissue fibers. On the flexion/extention lateral c-spine x-rays there is a 5mm shift of C1 forward for flexion and back for extension so it means that instead of acting as a stable post for C1 to pivot on, my odontoid is bending. So the only thing I can think of is when I was changing position I tore some of those scare tissue fibers causing my upper neck to become extremely unstable.
At this point, I have seen two surgeons and both of them agreed that a C1-C2 fusion is totally necessary because of the instability and both of them have deemed my case too complex due to my previous cervical fractures and the way it healed so they have referred me to another surgeon that I am seeing in the morning. This guy is supposed to be a top notch neurosurgeon so I'm hoping we will figure out a method of treatment.
I am mainly writing to find out if anyone on here has had any experience with the different methods of C1-C2 fusions and, if so, how things went with post-op and healing. In my research it seems the two main methods are posterior bone graft blocks with wires and transarticular screws.
Thank you all for your time and looking forward to any replies.