I reacently started a thread on having my SCS(spinal cord stimulator) removed.(It does nothing for my pain)
In that other thread I mentioned I was still on high doses of pain meds during my trial. I was on ER (extended release) and IR(instant release) pain meds.
Someone wanted to know why I always mention this when I say anything about my stimulator.
MY PM wants ALL his SCS trial patients off ALL pain meds during their trial, something he failed to tell me before my trial. The reason for this...How do you know just how much the stimulator is helping your pain if you are still on pain meds?? That makes perfect sense to me and still does. For the trial to be a success you should recieve a 50% reduction or more in your pain.
I am now on 15 mg IR meds. Much than less than what I was taking during my trial. The stimulator does nothing for my pain...nothing. And I really need the help of the stimulator.
In the book that came with my trial package ANS recommends you not be on narcotics during your trial. But It's up to your PM as to what he wants you to do. All PM's are not the same and do not do their trials the way my PM does.
Did the fact that I was still on high doses of narcotics alter the outcome of mt trial?? I feel it did and so does my PM. He admits it was his mistake for not weaning me off the narcotics before my trial. He said he did not know i was on high doses of meds...but he did.
I can not speak for any other PM or anyone elses trial. Perhaps I am one of those that has a good trial but the permanent implant failed me. That can and does happen.
I am happy for those of you the stimulator helps. Who would not be happy for something that reduces your pain by half. We will all still be in some pain and still on pain meds.
I will be seeing a new PM about a pain pump implant and I prey this works for me. It is my last resort. Please keep your fingers crossed for me.
I am only exprssing MY opinion about MY trial. I can't speak for anyone else or any other PM.
I am very happy for those of you who were able to cut their pain meds by half because of the stimulator.
Do any of you think all narcotics should be stopped during your SCS trial as my PM does? If you did not stop all your pain meds...how did you know the stimulator reduced your pain by 50% or more? Or were you just happy to get SOME help from your stimulator?
Sorry for this looooong comment.I have gone on to long now.
Patsy W :H