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Hello. Long intro story...

AnonymousUserAAnonymousUser Posts: 49,671
edited 06/11/2012 - 8:39 AM in New Member Introductions
I have dealt with chronic pain for about 15 years. I was working for a hospital 20 years ago and had injured my back (misdiagnosis as Shulermans Syndrome) at that point went thru the fun filled workers comp ordeal. I was sent to countless orthopedics countless physical therapists and countless chiropractors. I had 2 MRI’s done, several cortisone injections, tons of painkillers muscle relaxers I was also given a T.E.N.S unit. I was not in chronic pain like I am now. I was only in pain 3-4 days of the week and was moved from the position I held at the hospital to a desk job, once that desk job was filled I was offered to either go back to school or to take a settlement amount. I decided to go back to school and get workers comp during this time. Anyways long story short I was in pain but it was not controlling my life and I felt was something I could live with. I was not on as much pain meds as I am today and I had a lot more movement then I do now. About 5 years after this my pain became more and more severe and finally went back to seek further medical attention. They compare my MRI’s from 5 years ago to those that were recent and had notice that the discs in my back were becoming more solid from my neck to my lower back the MRI’s showed a big difference. I was also told that the original diagnosis was not correct and that they had no idea why the discs in my back were becoming solid.
Within the last 10 years I have had rotator cuff surgery which made the pain worse than it ever was before and I plead for them to do another MRI since I felt the surgery was not successful I have limited movement of my left shoulder since this surgery. My sleeping pattern is completely messed up since when I do fall asleep I wake up within 2 hours of falling asleep from the pain. My right should also has a tear in the rotator cuff but I will not have surgery on it since I fear the same thing as my other shoulder I have since gone thru a 6 month pain management program gone thru severe depression have been switched from about 180 pills of norco a month to Oxycotin have been on countless types of muscle relaxers (using soma as the one I feel works best for me) have been on sleeping pills. My marriage and my kids have suffered due to my chronic pain since I cant do many of the things I use to love to do.
I have been with my current Dr (a pain management specialist) for the past 5 years, I have lost a job a worked at for about 8 years due to my attendance. I tried to get put on permanent disability but my DR said that my pain was manageable with pain meds. I had no choice but to seek further employment I worked for another company for about 3 months also let go to my attendance and currently working now and fear I will also be let go due to my attendance. I have asked several times to be placed on permanent disability but he continues to say the pain is controllable with meds . He has stated that he would be willing to put me on temp disability for a week or so but I think in order for me to get pain I need to be off work for a specific amount of days. I guess I just don’t understand his thought process on this whole thing he is more than willing to up my dosage but not put me on perm disability. I have recently (since 10-15-09) had level 10 pain each day and begged him several times to order a MRI he choose to send me to PT instead. I finally could not take it anymore and called him and asked him why he would allow me to go through this much pain without doing a MRI he up’d my dosage and told me that he would need me to make an appointment to see him to req a MRI I showed up on 11-9-09 and he basically did the knee tap reaction test and said that he doubts the MRI will show anything since he could not see any nerve damage from the results, he finally agreed to order a MRI which showed bulging discs (never had before) and what he said was discitus. He referred me to get blood work done to see if I had elevated white cells the blood work came back with no elevated white blood cells but he states that the radiologist still wanted me to come in and get a bone scan. (still awaiting this) I cant tell you how pissed off I am the treatment of this dr. I almost feel like he thinks I am scamming him to get pain killers yet he has prove from the MRI’s that show why I would be in pain. I have never been told a specific name for this condition if anyone else has this condition please let me know.

Sorry if this post seems really scatter brained in thought but this is the first time I really kinda put my story all in one post..



  • Welcome to Spine Health!

    I am sorry that you are experiencing so much pain and get so little sympathy and help. Must be very frustrating. But now that you finally had your MRI, does your dr. have any suggestions how your pain could be relieved? Did he refer you to a spine specialist? If not, perhaps that would be your best bet. If he is reluctant, insist on it.

    Good luck and hopefully you will find a dr. who offers you some help.

  • from all of us. I'm a newb too, but I've found a great place to talk about our issues and people who really DO understand what's going on with you.

    I think my great-grandfather had what you have, and I've seen a name for it, but I can't come up with it right now. At the end of his life, he was bent over into a bass clef and had to drink through a straw. I would like to think we've progressed in our treatment since the forties and there's something to help you.

    Incidentally, your pain meds are essentially what my mom is on right now; she's barely functional.

    I'll get back to you when I think of the name.

  • I'm also a new member here, and my knowledge about backs and pain is worth very little...........but, I have other medical issues.....as far as I'm concerned you are the Boss and these docs work for you......if your not satisfied with this one, fire him and hire another.

    My opinion

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