Welcome, Friend!

It looks like you're new here. If you want to get involved, click one of these buttons!

Veritas-Health LLC has recently released patient forums to our Arthritis-Health web site.

Please visit http://www.arthritis-health.com/forum

There are several patient story videos on Spine-Health that talk about Arthritis. Search on Patient stories
Protect anonymity
We strongly suggest that members do not include their email addresses. Once that is published , your email address is available to anyone on the internet , including hackers.

All discussions and comments that contain an external URL will be automatically moved to the spam queue. No external URL pointing to a medical web site is permitted. Forum rules also indicate that you need prior moderator approval. If you are going to post an external URL, contact one of the moderators to get their approval.
Attention New Members
Your initial discussion or comment automatically is sent to a moderator's approval queue before it can be published.
There are no medical professionals on this forum side of the site. Therefore, no one is capable or permitted to provide any type of medical advice.
This includes any analysis, interpretation, or advice based on any diagnostic test

needing some input

leocat46lleocat46 Posts: 125
edited 06/11/2012 - 8:40 AM in Neck Pain: Cervical
as you know i have had acdf in june of 09. well the solid burning in neck, and upper back is progressing again, just like before surgery. as well as new pain from throracic i think, that wraps around my upper chest. i do suffer from RSD . my neck also has severe pain when turning certain ways, i try not to at all. i have to sleep on right side at nite. i cannot even lay on my back for very long, before having to turn because of pressure on my neck, and back, muscle spasms, shooting pains. i realize rsd is a result of some of this, but the neck definately does feel like it did before i had the surgery. i had herniated disc, and did not even know it. the burning pain is always there just like before. this is before i even had any of my surgeries, and was walking around like that, and could not even look up, like now also. i am afraid of what it could be again. does anyone have any input? or suggestions? i would appreciate it , thanks Leo ~X( :?


  • Do you have a follow-up appointment with your surgeon scheduled? If not, I certainly would call to be on the safe side.

    Best wishes,

  • I have had some of the same issues as you. I had ACDF on c5&6 in 3/2009 and since surgery I am in more pain than I was before I had the surgery. The doctors do not know where the pain is coming from, so they say. They have now got me going to PT and the pain is getting worse, even though I didn't think it could get any worse!!! Needless to say, I would call your doctor and let him/her know what is going on. Make sure you document, in a journal, the pain you are having and what you are doing at the time the pain comes on or if it is all of the time. Also, be sure to put if certain things make it worse/better, if it is constant or worse at certain times/with certain activities, etc. I know being on all those meds can make it hard to remember everything, I have a "pain journal" myself, so if you write it down a few times a day then you will not have to remember, it will be all written down for you :)

    Good luck. I will keep you in my thoughts.
  • The upper thoracic is often ignored because injury is rare there. Ask them to look at c7-t2. This whole area causes similar symptoms.
  • I hope you find out what's going on by calling your Dr. I was given lyrica to take for neck pain as well as switch to Oxycontin from MS Contin. Take care and keep us posted to how you're doing. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • The only thing I can think of that may help is a myelogram to make sure everything is clear. Unfortunately surgery is no magic pill and one of the complications is that indeed can make the pain worse than what you started with. The other biggie is are you fused completely yet? Keep us posted on what you find out.
  • thanks everyone for all your comments, i know you would thru. i have seen my N.S. once since surgery in last June, to remove collar, and do reg. x-ray, and to say i was fusing that was in sept. he did not want to see me until Feb. 16th. 2010. i did make a phone call to him, asking him to move up my appt., because of other symptoms, nurse came back to say that he said he did not see the need according to my last mri's of my lumbar, and cervical over a yr. ago. i was describing new symptoms, he only wanted to deal with the surgery part of what he had already done. i felt kinda put off, should i have been? he told me back in sept. that i should have been off or close to weaning myself off of oxycodone. well my p.m. has me on 2 percoset (3times daily) zanaflex (1/2 tab. to whole 3 times daily) zonisimide 100mg. 2 tab. at bedtime) tried higher dosage , but could not tolerate. i have a hard time with certain meds. i also want to add that since i am talking about my pain mgt. doc. he has been trying to get me approved for spinal root injections since oct. i have 2 insurances, well the primary approved, but the second did not. p.m. has appealed it twice,nothing. get this, the reason they say: they had not received the results of my last injection i had in April 09! I have never had ANY injections in my life yet. dr. even addressed it, we also checked to see if we were charged for it, we were NOT. so needless to say my P.m. has given up on me, and says there is nothing more he can do at this time, and is referring me back to my P.C. doc . which is very understanding, but knows nothing about treating rsd, with all of my spinal problems. i also received a letter from my ob/gyn which i have had for 20 yrs., and delivered all of my 3 children has retired, so i have to find a new women's care doc. i feel like all my doctors are deserting me :''( do i have a right to feel this way? i already have an appt. with my p.c. doc. on mon. 25th. we will see what he comes up with. i am going crazy 8} soft hugs LEO
  • Thats what I would do. From what you are saying it sounds like your PM is trying to treat you for too much. THe surgeon is right to say he is only interested in your surgery. Surgeons don't diagnose problems they just fix what has been found.

    Something isnt right when your surgeon thinks you are off meds and you are taking a whole medicine cabinet full. I personally do not like PM doctors. I think like all docs they are interested in keeping patients so they keep prescribing. I know they serve a purpose but I think you need another doctor monitoring what they are doing.

    I would go back to a neurologist for a complete assessment. As far as the insurance company that makes no sense. I would tell them to show proof that they paid for a prior treatment. Get a supervisor and don't take no for an answer.

    Good Luck and keep us posted
  • Leo,

    You need to find a doctor who is going to treat you long term for pain. As someone who has had RSD, typically that is life long. The symptoms can go into remission but the underlying condition is always there. Because of the nature of what it is, you will always be in the need of physical therapy. The joints have to move or the condition only worsens. The disease is best treated very aggressive with a combination of therapy, injections and meds. As far as your surgeon, I have never heard of anyone following the progress the way yours is being followed. Myself personally x-rays have been taken at least multiple times during the progression of the fusion. The down side is your not really going to find anyone to take over the care halfway through the fusion. There indeed could be a problem with your fusion, that no one is aware of, but then again it could be just fine. February isn't that long off now, so hopefully you will have some answers at that appointment. Keep us posted on what happens at the appointment.
  • I agree with the recommendation from Kris to see about meeting with a neurologist. I had one neurosurgeon and one neurologist tell me the burning issues in my neck and shoulders was early onset of RSD. This all happened to coincide with the fallout from the surgery I had at C1 and C2 and the denervation of muscles in my neck as well as the increase in radicular pain in my arms and hands and the pain in my shoulders and spasms etc... let's just say a mess.

    I went through an SCS trial and then permanent implant. The SCS has been very successful in treating the RSD associated pain as well as the radicular and and shoulder pain. It also has controlled the dystonia that wants to twist my head around like Linda Blair's in The Exorcist.

    My point in all of this, is that SCS therapy is known to help with pain associated with RSD. As tamtam pointed out, you can't cure it, but you can treat it and depending upon where it is located in your body, determines how it is treated. Since it is normally associated with a limb, many docs overlook the telltale signs and lump them into the "must be associated with post cervical laminectomy syndrome" or something else.

    A good neurologist will have the skills to give you a proper evaluation and help you to develop a good treatment plan. You may wind up being referred to another specialist to carry through with whatever the neurologist comes up with, but you have to start somewhere.

    I much prefer the feeling of the spinal cord stimulator over the burning pain it hides in my shoulders and neck.

    Basically if you are running into a brick wall down the road you are currently traveling, back up a bit and turn down a different road.

Sign In or Register to comment.