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Not getting adequate pain relief

klrc1969kklrc1969 Posts: 12
edited 06/11/2012 - 8:40 AM in Pain Management
I have just come back from my pcp to tell her that I am not getting adequate pain relief from my T#3. I ended up crying in the office because of being in pain almost constantly. She made me keep a diary of everything that the pain stops me from doing in my day to day life along with everything I can do. After she read it she said that it looks like the pain in definatley stopping me from functioning like I should be, then in the other breath she said that I should try cognitive behavior therapy....
I am so upset because she then said that 'pain is a part of life'. I feel so misunderstood and alone. My PM doc won't prescribe stuff so I rely on my pcp to write me any prescriptions. I feel like they think I am a drug seeker...i just want to have some relief. I know many of you have been in similiar situations .......does any one have any suggestions on how to handle this. I don't want to offend my doc but I don't think she really gets it.
I would be open to any suggestions.


  • I'm sorry to hear you're not getting much pain relief. Can your Primary Dr. get you another referral to another PM Dr? Pain should be tolerable not just another part of life. I'm going to a third PM Dr. for other options. Keep looking for someone to help you. Tens machine was helpful for me as well as acupuncture and infrared platinum heating pad. I hope you get some pain relief soon. Take care. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • Did you have surgery? Healing from surgery takes time. I'm 6 months out and am still in discomfort. I hope pain is not "just a part of life".

    I don't take pain pills because I hate the way they make me feel. I use heat and Tylenol. I also see a PT who does massage and uses a device that's a bit more effective than the 10's machine.

    Self massage helps me a lot and laying down several time s a day allowing my spine to rest gets me through the day.

    Pain is tiring that's for sure. I wonder if your doctor has ever had chronic pain. It's really hard for those who don't have pain to understand what it's like. Before I had chronic pain I had no clue what it was like. I had many clients who were dealing with it though and I did my best to be understanding. Now I know how they felt!

    Hope you feel better and are able to get some relief.

  • You are NOT alone. We are here to help in any way we can.
    I have a PCP that does not want to treat my pain and tells me to find another Doctor. Only problem is....I can't find another Doctor in this small town that I live in that wants a chronic pain patient! I quit driving a couple of years ago when I injured my knee and was laid up for about 6 months. Because of this I can't go any place else unless somone takes me.
    This PCP has shouted at me that my pain is MY problem NOT his. I HAVE to continue seeing this man until I can find someone else. I have savage pain in both my feet and legs starting at my knees. This PCP does give me a 25 day supply of 15mg Oxycodone. I take one every 4 hours but it just eases my pain a bit and I must stretch this 25 day supply 30 days! Sometimes I run out before I can get a refill and must suffer the full force of my pain. This Doctor knows this but in his words...he does not care!
    It seems my only hope is a Neurosurgeon that I was referred to by my PM for a pain pump implant but I do not see hem again until March. I am between a rock and a hard place here. Trying to get my pain treated has been a roller coaster ride.
    You are not alone. Do not give up!!
    Cheers my friend :H
    Patsy W
  • Thanks to everyone who replied...I don't know what to do. To "gethealth"--- yes, I did have surgery ---a L5-S1 microdisectomy in March of 06. I was good until about 8-12 months post op, and I started to have some more pain down leg. After a number of drs, I am now with a pm dr but this is after 3 years of trying to get some help. I don't know how to talk to my doctor about getting some medicine that works.
    I am a little bit scared to ask. I am waiting on the results of a mri I had done last week so maybe that will help.
  • Communicating with doctors or anyone for that matter is challenging. It seems we all speak the same language but it has a different meaning for each person.

    That's wonderful that your trying to find the problem rather than just dealing with the symptoms.

    I always do better when I know what I'm dealing with. If I didn't know that I'm dealing with post surgery discomfort I'd be freaking out right now. I'm able to get through the pain with simple means because I know what I'm dealing with and that it shouldn't be forever, at least I HOPE not.

    I'm a bit surprised no other doctor wanted to check out the WHY behind your pain and then I'm not...I've always had to be my families advocate. It's amazing how many times I was RIGHT about what my son was suffering from and the doctors were WRONG.

    I have learned to not burn bridges with doctors. I just keep asking questions and continuing until they actually answer my questions. Yelling has never done me any good. Saying, " I'm really scared or I'm very concerned" has been what gets me places.

    Keep us posted as to how your reports turn out. I hope they can find out what is causing you so much pain and work on the problem.
  • Try to get the person who said your pain in her opinion was not being managed to write a letter to the person giving you the meds, none of this is easy and I feel my own pain is not managed adequately finding that balance between sufficient coverage and function is difficult and the log of your activity should provide additional evidence of your plight and restrictions.

    I have been managing my own pain for many years and understand that feeling of isolation, just getting on with it is hard and perhaps an insensitive ways to deal with anyone’s pain, for many here it is reality as we assert that reasonable expectation of adequate pain relief.

    Take care and good luck.


  • I feel your pain, my doctor and me go back years with overall satisfactory results till the pain began with a gout attack that lasted 3 months(still not convinced it was 2nd was aspirated and confirmed on right foot).He looks at me differently and even when I set up appt's to discuss the future the discussion ends with no solid answer.

    Honestly, my Dad just got diagnosed with Lung cancer and I have a pile of ignored symptoms that the so-called spine center ignored in the beginning.Now, I am in for a real head game because they will say its depression causing the "new" symptoms.I have my notes from day one and I am getting worse with a dire family situation adding to the madness.Sorry for the OT, just fed up with pain, ignorance and stigma of being in pain.
  • I am very discouraged today....i received a copy of my mri done last week and this is what it said:
    "the patient has had a previous disectomy at L5-S1. The L5-S1 disc is markedly narrowed. There is minimal scar tissue present at the L5-S1 level but there is no evidence of a recurrent disc. No spinal stenosis is seen. The other lumber discs are unremarkable. It should be noted that not all of the sequences are of ideal technical quality due to paient motion."
    I don't want to have anything wrong, however, I know the pain I am in is not in my head....it is really there. I would like to know what is causing it.
    Have any of you experienced mri's that didn't show anything?
  • j.howiejj.howie Brentwood, Ca., USAPosts: 1,730
    I had a mri that showed I was in far better shape, than I knew I was!
    I heard about a stand up mri machine made by Fonar or Fomar corp. they do flex and extension with dye. While your standing up and have normal pressure on your spine. And seeing how I didn't hurt very bad when laying down with pressure off of my spine. I found an imaging co. in N. California that had a fomar stand up mri machine. And wala, my injuries showed up! It was a little more money, but it made so much scents to me that I didn't mind paying. And I'm glad, I did! And as things happened, I didn't have too!
    Good luck, Jim
    Click my name to see my Medical history
    You get what you get, not what you deserve......I stole that from Susan (rip)
    Today is yours to embrace........ for tomorrow, who knows what might be starring you in the face!
  • I had to go thru quite a few doctors before I found a caring and knowledgeable doctor. Don't give up! If you can't get decent care from your current doctor, perhaps it is time to look for another? Her statement that "pain is a part of life" was very rude and unprofessional of her to say. I have gotten up and walked out of one doctor's office before (regarding my heart issues that I have, he was a cardiologist and not a very nice one), and I did tell him what I thought..... not saying that you should do that too. But, you do deserve to be treated for your pain issues and for a physician to act that way is ridiculous and wrong (I used to work at a hospital so doctors don't intimidate me much, lol).

    Well, I don't know about your MRI..... but a narrowed disc and scar tissue can, and does, cause pain. I would perhaps seek a second opinion.....
  • I also had spinal surgery that didn't relieve my pain and I understand how discouraging it is. I was "relieved" that the problems where spotted on my MRIs and ct/myelograms. Have you ever had a ct/myelogram before? It also picks up what an MRI might miss but the procedure is more invasive.

    It is surely a difficult situation when your PCP is not listening to your problems and is acting dismissive towards your symptoms. Maybe you can find another PCP and then that one can refer you to another pain specialist who offers a variety of treatments. Are you on any meds right now? Have you also tried using ice packs and heat pads? They really come in handy. I hope you find someone who will re evaluate you and treat your pain accordingly. Take care
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