So, my pain management doc has said all along that he believes I have fibromyalgia, but does not like to make diagnosis. My gp does not seem to have a clue about anything, and it's been up to me to do research or ask about different tests or meds or types of specialists. She didn't even believe me when I said I was pretty sure that the protruding disc had herniated, and know the exact moment that it happened. She just kept saying well, according to your MRI, you don't have a herniated disc, just a protruding disc. That MRI was 4 months old at the time!!! After demanding to see a neurosurgeon, he agreed that I most likely did have a herniation, had my surgery, to find out that a completely different disc had herniated other than the protruding disc... Needless to say, I was more than happy to let her know, and since then she has actually been more accommodating and believing me.
She won't prescribe more than 30 oxycodone a month, which would be fine, as I try not to take them everyday anyways, but on the really bad days, which I do have quite a few, it takes until the 3rd dose before my pain levels are calmed down even close to a normal level, so the 30 tend to not last the full 30 days.
So she referred me to a physiatrist, to check out the PM's thoughts on fibro. I had an appointment with my PM last week, and told him who I was going to see. His reaction was less than encouraging, and said to be prepared that the physiatrist will likely try to push pills, as he is not a fan of more modern pain management techniques such as injections, etc.
I had my physiatrist appointment this morning, and this guy, after talking to me for about 10 minutes, doing the trigger point test, and saying, well you don't flinch, and after me saying, due to my job, I've learned not to flinch when I'm in pain, because there are times when I can't flinch or move. I clench my teeth, take deep breaths and clench my toes... Hours after him poking me, I still feel some of the points, I feel like I should have a big bruise on those spots! To sum up here, he said, so I'm not going to say either way if you have fibromyalgia or not, I will say that you have chronic pain, and should be taking at least 2 - 3 oxycodone a day, you can't be too bad as you're obviously still working (I was in uniform). Can you imagine??!!!! My whole outlook is that I want to try to take the least amount of narcotics on a daily basis that I can get away with, not take more!! I have to work and need to drive to get there, and with my work I need a clear mind. So, yes, I'm a little frustrated, and I don't know what to do now. I said ok, I know I have chronic pain (I was actually thinking, well, no 5h*t sherlock, thanks for the update!!), I know some of it is from specific injuries, but what about the pain I experience in places where I have not had any injuries? Is it neuropathic? Do I have nerve damage? I know why my hands go numb, why I get cramps in them, but what about my foot? Why does my leg hurt beyond where the pre-existing injury is, why is it a different pain, why do I get cramps in both feet? Why can such a slight touch feel like I've been hit by a concrete block? He said that he didn't have enough information on my history, and he didn't want to label me with anything, especially something that carries a stigma like fibromyalgia, then he stood up and said I wish you luck and walked out!!! What the..??!! No asking to see my med history? No offer of a follow up after he's looked at it?
As it turned out, I had an appointment with my PM this afternoon for my 2nd medial branch block, and said the appointment turned out exactly as he said it would. He just answered, "I kind of figured it would turn out that way, I'm sorry". So now, I guess it's back to my gp, who will probably take this guy's word as law, and will never get any further in the search to find answers, to understand this pain and to contain it... I can't believe this guy. He even said that I should stop taking the gabapentin and baclofen that I do take, and take more percocet!! Imagine!!
Well, I think I've got it all off my chest now, thanks for letting me vent, I am just so frustrated... and maybe a little angry, but the block injection took my mind off of some of it, lol...
APROUD CANADIANveteranButNOTa doctor, my thoughts are my own