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Severe leg pain after lumbar fusion - damage to nerve from screw?

ClioCClio Posts: 11
edited 06/11/2012 - 8:41 AM in Degenerative Disc Disease
Hi everyone
I wonder if anyone out there has had the type of problem post lumbar fusion that I am having.
I am 38 and had an anterior L4/5 lumbar fusion in Oct 09. I had back pain only and no nerve pain in my legs. After the operation I had new severe right leg shooting nerve pains. After 6 weeks they realised from an MRI and CT that one of the fixation screws had been placed into my nerve root by about 10-15mm, instead of into the bone of the vertebral pedicle. The screw had effectiely gone out the back of my vertebral bone and right into the nerve space. They took it out Dec 16 09 and replaced it with a shorter screw.
I was doing ok until about 3 weeks ago and now I have SEVERE and constant shooting pains in my right leg - across the thigh and into the lateral calf and foot. Lyrica and steroid injections haven.t helped. I cant sit or stand for long and I cant sleep on my right side.
I had a CT myelogram last week and they cant find anything.
My neurologist wonders if the screw that was at the nerve or even in it, has damaged it and they dont know how long it will take or even if it will ever recover. I might end up with chronic pain. I am devastated as I was a healthy young woman (im actually a dr) before all this and now I feel my life is ruined.
If anyone else out there has had problems with hardware/screws upsetting or damaging their nerves I would really like to know how you did in the long term.
Thanks for reading this. Good luck to all of you !
Clio
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1

Comments

  • Being a doctor, I'm sure you can guess at this better than any of us on the board. But I would think that if the nerve was damaged at the time of the original surgery, wouldn't the pain have been continuous rather than being gone for awhile after surgery # 2 and then returning three weeks later?

    The fact that you were more or less free of leg pain for a three week period after surgery makes me think that it might be scar tissue attaching to the nerve.

    Try not to be devastated. You are very early in your recovery. I imagine the nerve was very traumatized, even if it has not been permanently damaged. As you know, it can take forever for a nerve to calm down or recover. Most spine surgeons will say it can take up to a year, but I have had other professionals tell me they can still recover after that point.

    Can you take Lyrica or Neurontin for the nerve pain?

    I'm sorry this happened to you. It would seem this is an "accident" that should not have happened. Try to be patient and have faith that the nerve will heal and the pain will resolve.

    You might want to ask your surgeon if it could be scar tissue, and you might want to pursue a hands-on treatment that might aid in trying to break it up while it is still "new."

    Good luck.
  • OH MY Gosh... You are an answer to my prayers... The same exact thing just happened to me... I went in on Dec 2, 2011 for L5/S1 Discectomy with fusion and instrumentation. Prior to surgery I had minimal leg pain from the disc on the left side, somewhat of a "shooting" pain, but the majority of it was on the right. I also have RSD in my left foot. So, when I awoke from surgery, I was in excruciating pain - screaming bloody murder - not from the pain in my lower back, but from a "charley horse" type pain that was in the bend of my leg between my thigh and calf. This pain shot all the way up and down... This went on for 3 days before the doctor decided to do an MRI.. The MRI revealed that there was a loose screw - obviously that had fallen during surgery, b/c I woke up with this pain, and like I said, I had NO pain like this prior to surgery!!! Therefore, they went BACK in on December 10, 2011 and did another surgery to locate and reposition the screw. When I woke up from that surgery, the pain was 100x worse than before!!!! However this time, it went all the way up into my left buttocks, where there was a severe burning sensation, covering the entire buttocks, and in the middle, a major stabbing feeling as if someone was literally driving a knife into my buttocks.. 3 days later, they did another MRI and found NOTHING!!!!! The doctor sent me home on December 14, and here I am! I am already on 320mg of Oxycontin 3 times a day, which I was on prior to the surgery, due to the severity of my pain. The doctor put me on Robaxin and Neurontin in the hospital and sent me home with it. I stay at about a pain level of 7-8!!! I am 34 years old!!! I feel like my life is over!!! I dont understand any of this!!! I know I signed a release in the hospital, so I screwed myself. I see that your surgery was about a year ago.. Can you PLEASE tell me how you are doing now???? Thank you so much!!!

    Yours Truly,

    Melissa
  • Hello my name is Tiffaney, I am 38. I just recently had a lumbar fusion L4/5-S1 on 10/29/2013. I also only had back pain, never leg pain. After surgery, I have had severe left leg pain. The pain in my back was nowhere near the pain in I'm having in my leg. I have already had an ultrasound of my leg, a CT scan, an MRI & X-rays. They say everything looks perfect. This is just possible nerve damage that will eventually heal itself & should demenish once fusion starts to take place??!!?? Was just wondering if u were still dealing with leg pain & what have u done to get relief? I have been on lyrica & it doesn't do a thing!
    Thanks for ur feedback.
  • MarieCMMarieC Posts: 1
    edited 01/09/2014 - 6:26 PM
    I had a S1-L5 fusion at age 15, and all was well until age 49.
    I then had my 2nd fusion (S1-L3) age 50 for pain on the left side of my lower back. That pain is gone. The pain that I have now-is a new, extreme version of what I had as a teenager. Severe pain in the buttocks, wrapping around the front of my leg encompassing my groin, top of leg, knee, calve, back of leg, intermittent pain in toes,and pain on the sides of my leg. I was told that the pain in the bottom of my foot were from the needles inserted into my feet during the surgery to measure nerve pain. If this is the case, then why does this pain in that spot only occur on the right side?
    It's bad-I can't walk without extreme pain, so I walk in small steps and I take frequent breaks. I cannot be on my feet or sit in a chair for too long, sleep on my side or get in and out of a car swinging my hips from side to side without alot of pain. Involuntary movements grip-like a stabbing knife.
    My pain started in the recovery room and has progressively gotten worse. It started out as popping on the hip joint, then it moved to the side of the leg and knee, and would be intense and then subside a bit, and then get worse and not subsiding at all now with any type of stretching, pain meds or manipulation.
    The C Clinic has nothing to offer but drugs and for two years I tried to tell them this pain was getting worse and they alluded to the fact that it was nerve damage but would not say or admit this. They would not order an MRI and told me that nothing could be done unless I came in with a new back issue involving a need for surgery. This was the ultimate rejection and lack of professional medicine I've ever experienced and I am at a loss at this point.


  • Hi people, I just read your posts, very sad to hear, your not alone, I have had 10 "count them 10" surgerys and revision operations to try and fix my back, Original problem was compressed L3-L4, Kaiser implanted Advanced Bionics Duel Column Stim in my back, It malfunctioned within 6 months and I had it removed, then new Neuro Surgen implanted 2 rods, screws and "Medtronic Infuse Cages" and locked up L2-L3, had revisions etc etc then revision #7 he fused L4-L5 revision #8 he replaced all the hdwr he could and locked up L2 to L4 and L5-S1, scrapped cleaned over growth, still having problems pain level a constant 7-9, then revision #9 he put in a "Medtronic stim" (it helped for a while till I had trouble walking again, then #10 he adjusted and scrapped and also did a 4 point radio-opathy to east pain "temporarily" and that's all it did and LORD it hurt get that done!, now both my feet and both legs from upper thighs to my knees and calves right to my feet hurt with every step, medication, Oxy 30's 4 times a day with Nuycanta 200mg ER 2 tikes a day everyday, I can only feel for you all as I do know what your going through, and wish I had a response or some helpful remedy, but I don't, do any of you maybe have an idea for me?, doc says all he can do is keep me on meds, walking is hard, sitting sleeping too oh and driving? ha ha ha can't do that either. oh I'm 48 years but feel like I'm 90! God bless you all and I hope so you will get some help.
    Sincerely, Benjamin.
    ditto-odie
  • Really feeling for everyone who has commented above. Spinal problems are life ruining and cause so much distress to those of us suffering them and to our families. I have had problems since 2008 when my first disc bulged at L4-L5. Had discectomy in 2009.... It re bulged within 3 months. Had to resign from work a year later as had spent most of that time on leave, hospitalised a further three times. Finally had spinal fusion in July 2012 L4-L5 and L5-S1. This appeared to have worked until recently when my back has started to hurt again, and then this weekend my right leg developed severe sciatica and weakness and back pain increased. I am back in hospital, scans show nothing.... Have had MRI and CT but I'm wondering how much they can see over all the plates and screws? Also if this pain has occurred so suddenly surely something is wrong that has triggered it? To top it off my bladder is now not functioning and I have had to be catheterised. I am only 39 years old. This condition is so debilitating. Wishing everyone all the best for a pain free future. Fiona :)
  • I am nowhere near a bad as any of you - I have thoracic damage above T5 so they will not operate but I do know intense 24/7 spinal pain.

    I can't see if any of you are on muscle relaxants as well as strong painkillers but I hardly had any relief until they combined the two. I think the muscles spasm so much - especially when something is wrong, that is the only thing that gave me some form of pain relief was when I took both. It took 8 years to work out.

    I know you guys have nerve damage but:

    I am on Rivotril as a muscle relaxant which is non addictive and I also take Amitryptaline for sleep( I take it four hours before I want to crash). I worked through the intense pain for years and it did wreck my life. Car rides ha ha, every bump is a nightmare.

    My pain was much better when they combined a pain killer with a muscle relaxant, and I get some sleep due to the amitryptaline - it takes a while to work.

    I have not slept on my right side in 8 years. I really hope things work out for you guys - playing with our central nervous system has no guarantees. I also found I had to research so much myself so now I know a lot more than when I started 8 years ago. Now my GP lets me choose my own specialists. At least most Doctors are starting to understand how painful spinal conditions are but thats cold comfort. Here's a link to a manual I wish I had read at the start as I honestly had no idea what I was in for. In fact I didn't believe spine pain myself until I had my accident and was misdiagnosed by a myriad of specialists and every possible person I could go to. I wish I had done a mind map of what happened and probably could have worked it out myself but when you are in that type of pain it's just about impossible to think straight. My mind was taken up with combatting the pain.

    http://pain-topics.org/pdf/IntractablePainSurvival.pdf
  • I had L4/S1 fusion December 2012 having re-slipped the disc following discetomy. The symptoms pre-op were in the back and hip, immediately after surgery I could not feel my toes and had awful leg pain. Despite being reassured it would return - 16 months on and I am in constant pain, I still cant feel my foot and sometimes want to saw my foot off it is so painful. I fought to return to work a year ago and now wish I had taken it as the pain and the exhaustion from working have left me fit for nothing. I can walk very short distances with a crutch and live off of pain killers. I, like others, feel my life as I knew it, is over. Don't know where to go from her its too depressing for words.
    Jackie
  • sueshessueshe Posts: 4
    edited 04/07/2014 - 5:18 AM
    I have had 4 back surgeries in 5 years, 2005-2010. Started out with a fusion at L4-5, then fusion at L3-4, revision at 4-5, fusion at T-10 -L5...then after discovering a lose screw at T-10, I also fractured L5, S1....so surgery to add my total fusion from T10-L5,S1. Pattelofemoral replacement surgery in both knees, 2 plates in my right foot...total of 25 orthopedic surgeries.
    The nerve pain that I suffered in my back is gone. As the docs explained to me, that was their goal... any other pain, they can't guarantee a fix...in fact most likely there won't be one.
    I have some nerve pain in the buttocks, and some nerve pain in my legs, feet. Not all the time. My problem is in severe leg weakness, pain walking, standing. Now I know I'm a complicated case. The flat foot that developed after my last foot surgery is not helping with my leg issues. Walking has become more then difficult, can not stand in one place, climbing stairs is painful, I used to workout 6 days/week 1+ hrs. Now the pain dictates whether or not I can get on my equipment (walking on treadmill, workouts on Total Gym), most days are missed. I have gained a lot of weight from being so inactive. Cleaning the house, ironing, outside work, just can't be done because I can't tolerate the pain or weakness. Today I look at in amazement people scurrying around getting things done. Walking has become so challenging, it's hard to think others can do it without even a thought crossing their minds. I also have nerve pain and numbness in my hands, thumbs. They say carpal tunnel, I totally disagree. I'm not having anymore surgeries. I never thought I would end up like this and would hate to end up even worse then where I'm at presently.
    They say and I believe that I have Ligament Laxity. It makes sense with what has happened with my back and joints. My toes literally started to move east and west. After correction surgery, 6 week checkup, even though the toes were corrected, they moved back to east west....Bunion surgery that was done on both feet and was successful for 10 years, came back with vengeance. Today after the 3rd correction surgery, I believe the one plate in my foot created the "flat" foot, and the toes are straight when I stand, but when I lay or sit, they point to the east. My one foot is so wide now, that I can't get a shoe on. I have to wear runners or sandals, which is hard on my legs. But I have no other options. I literally can't find a shoe to fit this now deformed foot.
    I also suffered a DVT and PE after my 4th back surgery. So lucky to be alive. My leg was so swollen, they had to insert needles (with out numbing the area) in my legs to find out how much room was left in my leg....they feared the leg could of burst at any moment.
    I also blew off the knee cap on the replacement. My left leg shifted right and locked. After painfully working to bring it back in, I forced the back of the knee cap off.....That was incredible painful. And after having surgery to correct it, (which was in 2012), the elderly roommate who just had a knee replacement, was getting up for the first time collapsed and died from a PE right in front of me....Now how many would see that and just after having a Pulmonary Embolism themselves??? It reinforces how lucky I am to be alive and how quick a PE can kill!!!
    So, I have a complicated case....and I have complicated pain. I haven't been to the drs (except pain mgmt) in a few years. I got so tired of so many docs, visits and diagnosis that I don't agree with...and financial/no insurance issues. I'm going back Thursday to see the spine specialist and take a look at the fusion in my back. I'm expecting to hear that I need to go the therapy again (I don't have the money to go right now), that it's everything but my back that's causing my issues, and that all is fabulous.....RIGHT. I hope i'm wrong but I been through this too many times that I know better. Who knows better then the person that suffers......
    I am looking forward to seeing the xrays and to see where I'm at today. But boy is the dr. going to be shocked to see what once was a tall, slim person, now walking in bent forward, walking with a limp, and now "fat". I can't wait to see his expression........
    Well off to another visit, back to the specialist and I hope some kind of answers to "what the hell happened to me".........
  • I had the terrible pain before the surgery at L5/S1. I was told I needed a fusion because the disc was gone and my Sciatic nerve was trapped between my vertebrae. So I opted for the surgery to save my mind and my life. The pain was so intense that I couldn't even stand to be around my family, it was killing me. So I had the surgery. The surgeon was to use the bone marrow from my hip for the fusion, he did not. He use Medtronic's BMP. Six months lasted I was in the same horrible pain to find out the BMP the doctor used was still growing inside of me which out grew the cage it also wrapped itself around the sciatic nerve and turn to bone which was cutting off my nerve. The doctors had to go in and remove the bone. Six months later the BMP was still growing with the same end results, surgery. Six-eight months later the pain was back but this time would not be so easy. The fusion has held at L5 but is not connected at S1, and the piece of bone that broke off of S1 is now embedded in my sciatic nerve along with a none spur which is non-operative because of all the scar tissue. The surgeons are afraid if they going and fix the problem the nerve will be damaged worse than what it is, so no one will operate. To top all of this off I have found I'm allergic to every pain medication out there but Vicodin and Demerol. Vicodin helps on those 6-7 days but when it's a 12 on a scale from 1-10. Nothing helps it. I've been dealing with this for 10 years now not counting I've had fibromyalgia for 2? Years now. I'm surprised I'm not in a nut house. I feel so sorry that there are so many who feel my pain every day, I hope a miracle happens for all of you . No one or thing should have to live this way .
  • My first surgery was in 2010 and had the ALIF procedure. My disc was completly shredded and I was suffering from bilateral leg pain from my buttons to my feet before surgery. After my surgery the leg pain came back after a few days when all of the marcaine they inject wore off. I kept complaining of the leg pain so I went to see a new neurosurgeon who saw on my X-rays that the vertebrae was positioned on top of my L5S1 nerves. I had to have a PLIF 6 months later. The leg pain is constant and never goes away. I am on pain meds 24/7 ! There is a part of me that knows that the cage in my low back is always causing swelling abd pain and it increases my leg pain....I can feel what seems to be my sciatic like a cord from my butt down to my feet. The pain is a 15 at times and lasts for a week or so... Then back to the. Kemal 6-8 pain level. I almost want to just take the hardware out of my back to see if over time I can get my life back! It sounds crazy but I don't know what else to do. The pain is ruining my life!!! Help!! If anyone has had their hardware out and would share about your leg/ nerve pain after please let me know....
  • That you are in so much pain. Have you seen an ortho or a neuro lately? Are you still in touch with the surgeon who did your surgeries? Maybe that is where you could start. Have an evaluation, find out what is causing your pain, and most importantly, what can be done about it. There must be somebody who can help you. Good luck and let us know what what happens.
  • I've read about some people who have had the lower back infusion.
    I just had my surgery Nov 12Th and I also have cramps in my right leg I can't bend my knee if I do I get terrible cramp in my leg that sends me through the roof. I also have muscles that bulge on left n right side of my spine I was told by my Dr this was muscle spasms. My muscles aren't twitching it's just bulging n very uncomfortable. I as well as some of you can't sit or stand for very long without pain these muscles are tight and put pressure on my back. I was told to use hot water while showering n ice
    Whichever felt better but they don't go away I've gone to my follow up apointment where I had exrays and was told everything looked good. I also looked at my exrays looked fine to me. My Surgeon also informed me he didn't feel comfortable releasing me to go back to work until 6 months after my surgery. I was terminated due to this but was told by my former employer that they wouldn't contest my unemployment but of course you have to be willing n able to go to work which at this time I'm not. Just FYI Unemployment Office advise I might be denied because it wasn't my employers fault.
  • I am in the same boat here. My fusion was Dec. 2012, and I have always been in pain since, but they all tell me that everything "looks good". My last mri was Oct. 2013, and it says (among all the other problems) that at the level of my fusion (L5/S1), there is a "left paracentral disc protrusion". If it is fused, why is there a disc protrusion??

    I can't believe the stories above...this is just incredibly sad.
  • I believe I have the same thing. After my fusion I was fine for 3 months then I had left leg pain and numbness, I can't walk w/o a cane, I recently saw the results of my xray and it indicated there was a possible loose screw on the left side. I haven't yet talked to my doctor but will see him soon. I sympathize with you and your message has given me hope. I hope you'll get some resolve. My docs PA indicated hardware could be removed - I;m not sure about that but sure would solve the issue, Keep me posted Clio. My heart goes out to you.
    Mary L. Martin
  • I had ALIF surgery in October. From day 1 my back didnt feel right. Less than 3 weeks post op I developed severe pain from my back right down my right leg into my foot. I had pins and needles sensations in my hip and foot and a gripping pain in my hip even if I slightly raised my leg. This pain continued to get worse until I couldn't stand it anymore and one weekend I ended up in a&e. From here I was re-admitted to hospital where I got an MRI and ct scan the following day. The results showed nothing conclusive though my surgeon was willing to have me back in for exploratory surgery. Four weeks later I underwent my surgery and awoke with the knowledge that the cage had fallen out of my disc space and was compressing my S1 nerve root, which explained the pain I had been in. The surgeon took the cage out of my back as he said I had already grown half of a solid fusion and should be completely fused within 6 months. I had immediate pain relief after surgery with the pain going from a 10 to a 3. I am now only a fortnight on from that surgery and am improving every day. My surgeon told me ''the cage' doesn't show up on any scans ie MRI or ct scan hence exploratory surgery as he had an idea that was the problem. I wish you all the best .
  • Hi everyone

    I can relate to your pain and discomfort. I had my operation in April 2013. I recovered well according to the neuro surgeon and only took pain meds for about 6 to 8 weeks post op. But due to the extreme damage to the pinched nerve (I was on the edge of being paralyzed) my right leg nerves did not recover 100%, although I took Lyrica to assist. Now I suffer from my right foot and leg getting tired more quickly and severe cramps and muscle spasms at night. It is so painful. Has anyone experienced this and what do you suggest I can do to help with the cramps / spasms. I cannot take anti-inflammatory meds because I am allergic to Voltaren, so I will have to stick with natural minerals/aids.
  • sxydvldawgssxydvldawg Posts: 1
    edited 03/08/2015 - 12:00 PM
    I am sad and yet glad to see that I am not alone in what I've experienced. I had three consecutive surgeries. I diskectomy, fusion and then insertion of plate and screws at the L5/S1 in 2001, 2002, and 2003. I got significant relief in my back, however, when I woke up from the surgery in 2003 I could not raise my big toe on my right foot. After several hours of protest my surgeon was reached and an xray was done the following morning to see that the screw on the right side had been placed in too far. I had emergency surgery later that day but the damage had been done.

    For the next several months I had excruciating pain and burning from my buttock, through the thigh down the lateral side of the calf into the top of the foot. It was the worst during the late night and early morning hours, to the point that I couldn't even stand a sheet on me. I was given Lyrica and then Neurontin to go along with the Oxycontin. Although the foot drop recovered, I still had diminished sensation in my calf and top of my foot.

    Now, almost 12 years later I have been experiencing the beginnings of a burning sensation in my thigh, down my calf and into my foot followed by sharp, stabbing pains that almost cause me to buckle. They have been increasing by the day to the point where I'm wondering if I'll need to go on medication again But 12 years later??? Really? I had accepted the fact that the nerve simply was not going to repair. I certainly don't want to go through this again. Has anyone else experienced this after such a long period of being dormant?
  • Yes my screws went right through the bone as well, have permanent damage, on disability, tons of scar tissue, no relief, it's been three years, too damn young for this
  • angelmom1970aangelmom1970 Posts: 1
    edited 03/20/2015 - 2:36 AM
    I had SI joint fusion done Sept. 2014 afterwards I still had pain so my surgeon did an MRI and found that the implant was in to far and was on my spine. He then advised me to have surgery again to re-position the implant, so Jan. 2015 I had surgery again. After this surgery, I felt terrible so much pain. I had it done on my left side, before the first surgery I didn't have the shooting, burning pain in my hip and leg it's really bad in my foot. Now I have excruciating pain all the time. I have now been diagnosed with radiculopathy. My Dr. said that the implant was adhered to my spine and was really hard to move so he moved it forward and thinks he damaged a nerve in the process. I am worse off now then I was before. I have tried lyrica, amitriptyline, neurontin and they all make me so tired I can't function. He has me on Norco, which takes the edge off at times but if I take two then I itch like crazy. I am going crazy, I can't do anything, I can't sleep it's ruining my life. On top of that I have fibromyalgia and it has flared this up terrible. I don't know what to do, I am only 45 years old. I am a nurse and know that my career is over. Please any advice would be appreciated. Thank you
    Dee Planitz
  • Firich said:
    Really feeling for everyone who has commented above. Spinal problems are life ruining and cause so much distress to those of us suffering them and to our families. I have had problems since 2008 when my first disc bulged at L4-L5. Had discectomy in 2009.... It re bulged within 3 months. Had to resign from work a year later as had spent most of that time on leave, hospitalised a further three times. Finally had spinal fusion in July 2012 L4-L5 and L5-S1. This appeared to have worked until recently when my back has started to hurt again, and then this weekend my right leg developed severe sciatica and weakness and back pain increased. I am back in hospital, scans show nothing.... Have had MRI and CT but I'm wondering how much they can see over all the plates and screws? Also if this pain has occurred so suddenly surely something is wrong that has triggered it? To top it off my bladder is now not functioning and I have had to be catheterised. I am only 39 years old. This condition is so debilitating. Wishing everyone all the best for a pain free future. Fiona :)
    EFarquharson
  • We are all responsible for our own health; you have too continue to have a POSITIVE attidude towards your own health. Take one-day at a time, and live your best life today and now. Travel do things, don't always have a poor me party. volunteer somewhere or you may still have a job, good for you. Fight back!! For me my right leg is giving me hell but am not having no more surgery....more surgery, more problem.

    LIVE...LOVE...LAUGH!!
    EFarquharson
  • farrinffarrin Posts: 1
    edited 04/22/2015 - 8:20 PM
    Hi..... i'm a student ,(female). I'm 22.... I don't have any pain in my leg....... but while walking...... at certain angle..... i feel severe nerve pain in right leg thigh near the place where it joins with hip ( front side) and in the buttocks ( back side).... at that time i could not even move a step further..... and after some time the pain vanish and i could not feel any pain I can walk perfectly normal..... then again when i step in certain angle i get the pain........ approximately this happens alternatively for every 20 steps...... I did't had this problem before....... I'm having this problem for only last two days. And i have the pain only in my right leg........ Doctors please help........

    **********************
    There are no medical professionals on the forum, any responses will be from members with personal experiences


  • Had decompression and fusion. I must admit I can walk now. So, some things you gain, some things you lose...but that is not being clear by surgeons.
  • bonnyl56bbonnyl56 Posts: 2
    edited 10/20/2015 - 4:24 PM
    All I can say is this is so sad! I too had fusion in December of 2009 and woke up with both legs from the hip to the knee on the outside literally feeling on fire! I was told the nerves were irritated because of the length of time on my stomach;[ the entire surgery was 11.75 hours with 6.
    75 on my stomach and the remainder on my back]. Not knowing any different I continued this way all the way to current. Every time I saw the NeuroSurgeon for a followup for two (2) years I mentioned it and he said to 'give it time'. I finally saw a paim dr in 2014 who placed me on Lyrica and on a pain patch Butrans. . . honestly, I don't see much difference. She wants me to do the spinal stimulator but I am hesitant. I am scheduled for an MRI on Friday from new Ortho Spine Surgeon. I am the oldest so far in this group (59) I can't believe all this. I don't know if the stimulator is a good idea or not. . . any thoughts? I
    bonnyl
  • Tiny DancerTTiny Dancer Posts: 10
    edited 11/17/2015 - 2:38 AM
    MarieC said:
    I had a S1-L5 fusion at age 15, and all was well until age 49.
    I then had my 2nd fusion (S1-L3) age 50 for pain on the left side of my lower back. That pain is gone. The pain that I have now-is a new, extreme version of what I had as a teenager. Severe pain in the buttocks, wrapping around the front of my leg encompassing my groin, top of leg, knee, calve, back of leg, intermittent pain in toes,and pain on the sides of my leg. I was told that the pain in the bottom of my foot were from the needles inserted into my feet during the surgery to measure nerve pain. If this is the case, then why does this pain in that spot only occur on the right side?
    It's bad-I can't walk without extreme pain, so I walk in small steps and I take frequent breaks. I cannot be on my feet or sit in a chair for too long, sleep on my side or get in and out of a car swinging my hips from side to side without alot of pain. Involuntary movements grip-like a stabbing knife.
    My pain started in the recovery room and has progressively gotten worse. It started out as popping on the hip joint, then it moved to the side of the leg and knee, and would be intense and then subside a bit, and then get worse and not subsiding at all now with any type of stretching, pain meds or manipulation.
    The C Clinic has nothing to offer but drugs and for two years I tried to tell them this pain was getting worse and they alluded to the fact that it was nerve damage but would not say or admit this. They would not order an MRI and told me that nothing could be done unless I came in with a new back issue involving a need for surgery. This was the ultimate rejection and lack of professional medicine I've ever experienced and I am at a loss at this point.
    Maybe I have jumped to the wrong conclusion but you need to go to a neurosurgeon at a teaching hospital. The reason for a teaching hospital is they have rounds with younger doctors and their colleagues in difficult cases. So you may get 30 pairs of eyes or more diagnosing your case. That is what you need.

    I am so sorry about your pain. All the joy goes out of life and you are too young for that, sweetheart. In this day and age you may have just started middle age. What that means is there is time for you to get your back fixed and dance your way to your 40 year high school reunion.
  • back pain march 2015 mri and then surgery oct 13th surgery 6 weeks ago and having nerve pain, the Dr says it will take time for the nerves to come back to life and the pain you are having is those nerves that where damaged.
  • SavageSavage United StatesPosts: 4,884
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  • I had a laminectomy, and spinal fusion June of 14'. At 1st it was the bad pressure feeling. That has stopped and the incredible nerve pain has begun. I can't sleep on either side of my hips. The pain goes down the left side of my buttocks to my hip down to my toes. At times its unbearable and, I do not think I can continue to work. I am in pain management on 15mg oxicontin, 7.5 oxycodone, and Topamax. My surgeon won't do a CT scan until I reach 9 months post op. Plus he says x-rays look fine but, admits they don't show nerve pain. I'm 32, trying to stay positive, I've lost 53lbs since my surgery. He said that could be part of the problem. Frustrating and, I wish I knew what to expect.
    Stacey
    Laminectomy spinal fusion L4,L5
  • Sorry, June of 15'
    Stacey
    Laminectomy spinal fusion L4,L5
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