After learning my lesson with the burning IPG Pocket question last week, my Rep and I broke the cardinal rule of programming without a backup. I asked to have a couple of minor changes such as moving groups closer together so I could change groups without the stupid antenna. I'm very positional for a Lumbar SCS, most likely because my leads are much lower (T11/T12 and T12/L1). We're figuring that I have more motion at those levels than say mid/lower thoracic area. Needless to say, things got screwed up. Finally got everything reset back to normal today.
Because of this exercise, it's posed a couple of questions in my mind. I figured someone considering an SCS might want to know what is being covered, number of programs, and actual pain.My Pain
- Toes on both feet
- Bottom of both feet (tender foot problem)
- Tops of both feet
- Sharp pain in left calf
Because I'm so positional, I run 7 different program groups depending on my activity:
- Group A - Workout Group
- Group B - Lying on the Couch (TV Program)
- Group C - Stand, used when I'm standing for a prolonged time frame
- Group D - Sit, this is my main work program
- Group E - Walk
- Group F - Sleep
I get good coverage on the bottom of my feet, toes, ankles, and hamstrings. Very limited coverage on the front of my legs and nothing on the tops of my feet. No coverage for the sharp pain in my left leg, I call that area my dead zone. It's a pain changing programs so often, but its better than nothing. I'm getting much more relief now than what I had pre-SCS. My leads have had 3 months to scar in and so far I have no changes at all to my impedance which my Rep finds surprising.
According to my Rep, I'm a bit of an anomaly. He indicated to me that most of his patients run 1 or 2 programs a day. This leads me to the questions of the day:What's your actual pain?
What kind of coverage do you get?
How many programs do you run each day?