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totally frustrated

AnonymousUserAAnonymousUser Posts: 49,671
edited 06/11/2012 - 8:42 AM in New Member Introductions
I am a 42 yr old mom of 5. I was diagnosed with Lumbar Spinal Stenosis 7yrs ago. Since my diagnosis I have been on the eternal merry go round. I have done PT, had every injection,been in and out of pain clinics and even had a neuro stimulator put in. I have been denied surgery several times. I have had doctors make me feel like I am crazy and it's all in my head. I even have a hard time getting my family to fully understand how truely painful this condition is. I am frustrated and feel like a prisoner in my own body. I am hoping to connect with others who can relate and help.


  • LizLiz Posts: 7,832
    Hi kimmierose05

    Welcome to spine-health, you will find plenty of support and information from members here on the forum, and in chat if you would like to chat with people who like myself understand the pain you are going through.

    Take care

    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • Thank You for the welcome. I am hoping to learn a lot in here.
  • You are not alone in what you are going through. I also went through the whole PT/Injection/Chiro thing for years. I was lucky enough to find a PM doc that used different tests in order to find out what was causing most of my pain.

    I am now on long acting pain meds which is not where I ever thought I would end up but it is much better than being in constant severe pain 24/7.

    It is really hard for folks that have never experienced chronic pain to understand it and how severe the impact on our lives can be.

    The key is to keep looking until you find a doc that is willing to do whatever it takes to help you have a better quality of life. I know that they are few and far between but don't give up because they are out there.

    Once you find a good doc maybe you could take family members to appointments with you so that they will gain a better understanding of your illness and how it effects you.

    Good luck and keep us posted.
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