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My Condition

edited 06/11/2012 - 8:42 AM in Chronic Pain

I would like to find out exactly what condition I am suffering from and what is the precise name given to the condition as well as what the best course of further action to be taken.

For this I will give a background to how I arrive at this unhealthy state;

For a while I have had what they call here in New Zealand a 'slip disc' aka a pain in the lumbar spine, which I chiropractic help with.

In December of 2006 I was knocked unconscious with a hit to the back of my head. With a punch of something object, I am do not know. This was a random attack while walking home.
I came to with this guy over the top of me trying to hit in me. He had been, mostly likely, trying to bring me out of unconscious by slamming me backward into the pavement, since when I came to I was on my back and having a backpack pull of my university books and large metal external hard drive in my back pack I could feel them pressing into my back with every heavy slam down, while I tried to hold his hands away from trying to hit my face, in case I was once again knocked unconscious.

After I was rescued from this situation by a couple of teens in a passing car I was taken to the hospital by police.
Now at the hospital emergency unit all that was done for me was to check that I hadn't broken anything etc. No physical texts or x-rays were taken. I was given one of those elasticated tubular wraps from my bruised and twisted ankle. and sent home.

I moved to another city straight after this and had physio for my neck pains. And x-rays were done and no visible damage was apparent. But I had sore knee and blurry vision in my left eye.

Seven months later (June 2007), I was in the passenger side of a car that was rear-ended. The brunt of the crash was on my side and therefore I suffered most of the affect of the crash. The car was written off as the chassis was ribboned and therefore could never be repaired.
As I had been sitting sideways talking to the driver -we had stopped a give-way sign at a round about talking to the driver, I suffered whiplash as my body was twisted to the left and nothing else that I remember as I had reacted real quick to the crash and wanted to make sure the driver who had hit us was okay as the front of their car was smashed beyond repair.

Afterwards we were allowed to drive off as the police officer at the time determined the car was fit to be driven (?). Three days later the car was carried away to be wrecked.

I later began having issues with my health and since I was already getting physiotherapy for my back and neck, as per previous back and neck pain, I didn't think I had received any serious injuries from the car accident and I continued to work and get treatment for them.

I began to start having difficulty walking properly and my lower back began to give me problems and my gait became awkward. By this time I had been taken to drinking protein drinks, as I was losing a lot of energy as well as always finding myself overly dehydrated. I began to have issues with stress, where normally I could handle the minor things, now I was unable to cope, I changed jobs 3x within 5mths.
In June 2008, my gait had become worse and by this time I was having trouble with sleeping and dehydration. I saw local doctors as I had the majority of the pain in my knees at this point, I guess from referred pain. I was taken up to 4 voltaren tablets and getting physiotherapy as a second doctor had determined I was suffering from whiplash. I had also by now getting 'insects crawling on my skin sensations, burning heels, pain in back, neck and legs.
By October 2008, I was seeing the physiotherapist 3x a week and this was having conflict with my work and I was told to get a doctor's report. It turned out I was not well enough to work and was told taken off work by my doctor. An MRI was done by a Pain Specialist and the result was 2x small lumps between my L6 & L7 lumbar joints. I was told to take epilim as a trial to see if it would help, which proved to have no affect. I was then told to take 2 Gabapentin 4x daily and 2 pain meds as well.
2009, I have had CT scans, MRI, hearing tests -I have ringing my left ear continuously.

Following is my current state;

2 Gabapentin 4x times daily
2 DHC Continus 60mg 12hrly
2 Codiene Phos 30 3x daily
1 Tramodol 30mg 1x daily

I also take 1x Doxasosin daily for prostrate issues as well as 1 Prozac a week every now and then when I have visitors, as I find I can't cope with more than 3 people at the same time and also being in this condition does get me down.

Condition as of March 2010:

Pain in lumbar area.
Heals burn and can not be touching anything as they become unbearable and therefore I have keep then elevated over a Tempurpeadic pillow.
I also keep a pillow under my thighs as my legs began to hurt when they are straight.
Continued blurry vision in left eye.
Medium level of ringing in left ear.
Neck and shoulder pain.
Right hip pain.
Right thigh pain
I need to sleep sideways with a pillow between my knees as I have intense pain otherwise.
I sit up in a reclined position and need to continually move to be comfortable as pain tends to settle in.
Numbness in my hands and fingers.
Pain and numbness in my lower and upper legs.
Pain in buttocks and rectum areas.
Sharp chest pain sporadically.
All over body numbness and pain.

This is an account of my daily pain. The degrees vary from bearable to total excruciating.
Having read up I have thought about getting Steroid Shots as having been in this condition for 15mths I am getting to a point where I can't take this anymore. I have discussed this with my doctor, but its decided that I would need to further discuss it with the Pain Specialists Centre.

I have wondered about surgery as well, but not sure whether it would help.

From my research I have arrived at the conclusion based on my pain etc, that I have Chronic Pain Syndrome and Fibromylgia, even though the later seems to not be a condition at all from what I have read, but still the condition fits with that former type of ailment.

Personally I am a very active person and always have been a very sporty and outdoors type. I walked a lot and in my profession as a former Sales Professional I was always on my feet. Not one to lay down and do nothing I have started up my own online publishing business while in this condition as well as gone into professional writing and doing graphic design.

Any input or help will be greatly appreciated and anything that I need to raise or discuss with my doctor will be of great help.

Sorry for such a long note.

Thank you,



  • j.howiejj.howie Brentwood, Ca., USAPosts: 1,730
    And welcome to Spine Health. It really sounds like you need to be referred to a Neuro or orthopedic specialist. To have the proper assessment. And to the best of my knowledge there isn't a L6 or L7. maybe a typo?
    Good luck, Jim
    Click my name to see my Medical history
    You get what you get, not what you deserve......I stole that from Susan (rip)
    Today is yours to embrace........ for tomorrow, who knows what might be starring you in the face!
  • Welcome to Spine Health. I checked out your blog and it looks like you haven't done much there for a while. Is that due to your chronic pain issues? I found it very interesting and was wondering if you are still writing.

    One thing that is dangerous to do, yet very easy to do, is to use the Internet to "self diagnose". It's kind of like a Catch 22 situation. On one hand it helps put a possible name to things for you, but on the other hand it could be the completely wrong name/diagnosis.

    With as much trauma as you have been subjected too, it's no wonder that you hurt. It's just a shame that you are having such a difficult time with the doctors helping you out. I am not familiar with the health care system in NZ, so I don't know how easy or difficult it is for you to request a referral to a specialist.

    With what you described in your feet, it does "sound" like it could be CRPS/RSD, but that is something that the doc needs to really help you in determining. There are specific tests that can be done and specific therapy that can be tried, to help with that. The key is getting involved with a specialist who understands that sort of affliction.

    I hope that you can get some proper help soon. It sounds like you've really isolated yourself from the people around you, and that isn't necessarily the safest thing for someone suffering with chronic pain.

    Glad you are here.

  • Yeah, I have always been careful, I am one of those practical and logical types and usual like to do solid research first.

    Not something I am aware of having heard, but I am going to be seeing my doc this week as I will be moving away soon to another town and will look at setting up a new doc etc.

    Its kind of being annoying when the only one that feels the pain is you and trying to tell people and have no cuts or broken bones, makes me feel like I am all alone in this. Which in itself is a cause for stress.

    I guess coming on here was for me to talk to someone outside my circle, so to say. And being able to get something to ask my doc about is helpful.
    TY. :)
  • j.howie said:
    And welcome to Spine Health. It really sounds like you need to be referred to a Neuro or orthopedic specialist. To have the proper assessment.
    Thank you.:)

    Yeah I am waiting on this and also going to bang heads with my doc, last time I asked about getting steroid shots.

    I have seen pain specialist, neurologists, and rhemutologists. And still I am waiting to get some proper evaluation as to how to deal with it, or would surgery be better.
    I hope to get some answers this week. I am just so tired of dealing with it on my own and now I am getting annoyed that I am still like this without a proper name attached to the ailment, so I can say to people this is what its called, now leave me alone lol. Not having a name to give it has been tough--
    But I got a name now which is Chronic Intractable Pain.
    Now I need to find out why my doc said its that and what it means
  • haglandc said:
    Welcome to Spine Health. I checked out your blog and it looks like you haven't done much there for a while. Is that due to your chronic pain issues? I found it very interesting and was wondering if you are still writing.
    Yes, I am writing. www.facebook.com/risingsuncomics

    I have worked, every waking moment you could say, for the past 15mths on a graphic novel and also on several other stories. I have a mini-series on myebooks and we will be looking to add another one to that later.

    I love writing, but over the past 15mths I have done illustrations for my own graphic novel. Its something that I can keen to continue as a career, not letting anything from stopping me from fulfilling my dream to be a writer without leaving my laptop. Thank you for asking and taking a look.

    I took a look at the http://www.rsds.org/index2.html site TY.
  • I do hope you get an answer to why you are in so much pain. The first thing that came to my mind was fibromyalgia. What did the rheumatologist say when you saw him? There is a medication called Lyrica that has been aproved here to help with fibromyagia pain, don't know if it is available in NZ. Also, Prozac should not be taken as needed. This medication should be taken daily to have the proper affect.

    Best wishes,

  • Hi Aru,

    One thing I notice is that you talk about the lumbar MRI was one ever done on your cervical spine, and what was the result of it. The one thing about coming here is we all do understand your pain. You seem to be a excellent communicator. Try writing down a few of major complaints and taking them to the doctor with you. Ask the specific questions. While you have already met this doctor look at our FAQ section and preparing to meet with a surgeon. I know your not meeting with a surgeon but you can use it as a guideline to formulate a list of specific questions to help. I use that link quit often to get me thinking what I want to specifically ask my doctors, even though I have seen them multiple times.

    You spoke about if surgery would help? I think the problem here is they need to give you a firm diagnoses as to what is the pain generator. Try to work from the point Hey doctor I have pain in my hands and arms what exactly is causing this? Then the point of my legs do this and hurt here and what causes this to hurt?

    You also might want to check out the forum here on fibro, has lots of good information from others suffering from it. Good luck at the doctors this week and let us know how you get along. Take care and welcome to spine-health.
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