I have an appt with a new neuro April 30. Old neuro last seen March 2009.
Since Feb. 2010 I've been experiencing severely overtaxed muscles in both arms and legs - worse on left side - where the moderately severe cervical problems are. The overtaxing is no longer episodic (moderate days, bad days) it's is now constant. It's scaring me because I can't find a good definition anywhere of myelopathy, myelitis, etc. that would calm my mind as to what's going on.
By "overtaxed", I mean that my muscles work normally for "minutes" and then they're worn out and shaking from any further effort. I'm usually not very active during the winter due to body pain from Fibromalgia but had good medications this winter....so was able to spend much less time laid up in bed. I shouldn't be this weak.
I get scared sometimes and have put a hard cervical collar on for pain relief - but after wearing in 1/2 hour then taking it off, my neck (throat area) goes completely numb and it spreads up into my face. It lasts about an hour. I don't know if I should just wear it until I see the neuro to protect myself or not.
If I press really hard on the constant muscle spasm in my neck, then my lower lip reacts by moving/jumping uncontrollably. I don't understand what's happening.
If I try to stretch my left arm to relieve the neck muscles, I get horrific pain that shoots down my arm. Boy howdy, I mean HORRIFIC.
Can anyone share their experience with something like this? Is this how paralysis starts? Should I wear the collar or keep it off? I've got two weeks until I see the neuro and could really use some advice.
Thanks so much to anyone willing to respond.