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Ongoing back problems- long winded no answers

mummy22007mmummy22007 Posts: 11
Im Donna and im 30 yrs old.
Ive been suffering from constant back pain for a number of years, this was always dismissed as just being because of an epidural in 2004.
I managed the pain myself and occasionally had prescriptions for pain relief.
Sept 2009 my back went into spasam and i could barely walk, was told by the out of hours doctor that i had siacitia and im best to try and rest.
The pain just did not ease or get better, i returned to my doctor and begged for something stronger to help with the pain and was given co-dyramol and voltrol tablets, along with ampriplene tablets to sleep.
I was referred to the physio and they dignosed a shunted pelvis and anterior shear, this all possibly resulting from a fall when pregnant with my first child.
I ahd several manual therapy sessions, where my bones would be manipulated back yet the pain relief was often short lived.
I had an xray on the pelvis and lumbar spine and these came back normal, so as all sessions had almost been used with physio i was referred to the hospital consultant.
(The manipulation had realigned the pelvis, but phyiso therapist said im a chronic pain sufferer and it may not improve)
The consultant stated i did not need an MRI as i had no real warning signs( the day i attended was minimal pain, i have good days and bad were walking is difficult) she was not happy with the right hip so called for an xray and advised to try acupunture and core pilates.
Apparently my core muscles are extremeley weak.
Xray has shown to be normal the first session of acupunture went well thou the next evening may back went into complete lock up and i was walking in extreme pain with limited movement in my lower back.
This is all so frustrating as its taken so long to look into.
I have a dull pain in the middle of my lower back, pain often goes down my right leg and i waddle really bad on high pain days, yet other days i can be ok just stiff.
Wondered if anyone had the same painstaking problems


  • j.howiejj.howie Brentwood, Ca., USAPosts: 1,732
    You may be describing your symptoms with not enough emphasis on the pain down the back of your leg. And giving them the best case scenario, instead of the worst. It's terrible to go in on one of your better days because they usually seem to think that is the norm. I think you would be better off telling them of the worst days. Pain down the back of your leg usually warrants a mri. And I think that is what you really need. And that may show where the pain generator is.
    good luck, Jim
    Click my name to see my Medical history
    You get what you get, not what you deserve......I stole that from Susan (rip)
    Today is yours to embrace........ for tomorrow, who knows what might be starring you in the face!
  • hello donna

    didnt want to read and fly without leaving a message. Yes your symptoms sound very similar to mine that i experienced for many years during and after my one and only pregnancy.

    I too suffered bad days and good days, and after physio i was eventually referred to a consultant after suffering 5 years. since mri, i had a failed caudal epidural resulting in loss of walking, i had a L5/S1 microdiscectomy and decompression. this has since failed and waiting a 2nd mri this week for a neuro opinion.

    Do persevere and if you are not happy do insist on a 2nd opinion. Do work on your core muscles though as these are paramount in spine stabilising.

    L5/s1 discectomy & decompression 2009
    ALIF l5/s1 2011
    Awaiting X-ray & consultant to see if fused, but experiencing a lot of pain again :( 2013
  • Hi thanks for reply.
    Its so frustrating as they had all the history from the physio therapist and i told consultant that on the day of the appointment i was actually pretty good movement wise.
    So frustrating as it seems like they disbelieve me, its a case of proving that im in pain and whats causing it.
    I was advised by the acupunturist that the core muscles are extremelly weak and that they deteriote(SP) after being in spasm 24hrs well mine are shot!!!
    On bad days i can barely straighten and walk like im an OAP, i waddle more on the right and become so snappy and short tempered.
    I have spent over 2 months sleeping downstairs as i couldnt contemplate getting into bed, not much point when pain and heavy legs make you wake up.
    just nice to have somewhere people know what the pain is like.
    OH btw im in the uk .
  • Sorry you're having back pain and getting no pain relief. I think you need an MRI although I'm not a Dr. I even had to ask my Dr. for an MRI. PT could help with strengthening your muscles though and they usually give you exercise you can do at home. I use a cane to walk around to take the pain off my leg and foot so maybe that would help you. I use an infrared platinum heating pad on my back and legs and it's comforting though I have iced at times. I've had epidurals and facet joint injections to help with the back pain but I've seen 3 PM Drs. Sometimes you need to look for a Dr. to help you to help relieve your pain. I hope you can find some pain relief soon. Take care. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • Hi Donna,

    I would agree that you need to emphasize the leg pain if that's where your pain is effecting. They should do strength/pain tests for your legs.

    Have you seen a specialist (orthospine or neurosurgeon)? or are you just relying on your general practitioner? I would suggest a specialist.

    Also, it is true about core muscles. I've had back problems for 17+ years (I'm now 41) and did really well for the 17 by keeping fit and working to keep my core muscles strong, watching my twisting motions, careful lifting, and doing lots of walking. So this part is good feedback.

    Good luck.
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