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Chronic coccyx/perineal pain

gagyggagy Posts: 7
edited 06/11/2012 - 8:43 AM in Chronic Pain
I am a 68 yr old nurse who has been suffering with chronic bilateral butt/coccyx pain for 2 1/2 yrs. Recently I have developed chronic perineal pain also. I have had multiple coccyx steroid injections, botox to my piriformis muscle, L4-L5 steroid injection, spinal cord stimulator implanted and then explanted after 1 month due to allergic reaction to hardware. I am truly at my wits end with this chronic unrelenting pain. It is most painful when sitting and somewhat better when standing. I am currently taking Lyrica with slight relief but the drug makes me feel jittery and twitchy. Does anyone have any suggestions?


  • Hi and welcome,

    Let me preface this by saying I'm not a doctor, but your post did give me some ideas.

    Have they checked your SI joint function?

    Have your imaging studies shown any problems?

    The main thing that jumps to mind is some type of pelvic floor dysfunction. Have you been evaluated by a women's health physical therapy specialist? Has your pelvic floor function been evaluated with real time ultrasound? I have found (particularly if you are seeing male doctors- and I'm guessing you're a female?) that the pelvic floor is often overlooked.

  • Thanks for your reply. It is very interesting about the pelvic floor issue. I have been trying to get an appt. with a gyn doctor in NH who does work with pudendal nerve problems. I have mentioned this possibility to my Boston doctors several times. They do not even want to consider this but I have all the symptoms that I have read about online. I have had numerous MRI's which don't show anything that could be causing my problem. I have had lots of PT and acupuncture with no success. I use a TENS unit with some relief.
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