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jellyhalljjellyhall Posts: 4,373
edited 06/11/2012 - 8:43 AM in Back Surgery and Neck Surgery

I just seem to keep having problems!

This morning, I had to go to ER
While having breakfast, my vision went very strange. I had an area to the right which was out of focus and surrounded by a flashing bright/shining outer edge. I closed my right eye, then left eye, then both eyes but it was still there. It got larger until almost all my vision was affected. Then it slowly went.
I opened a letter I had received, and tried to read it aloud to my husband, but although I could now see the words fine, I couldn't read them; I just couldn't think what they meant. At first I laughed, it seemed so ridiculous, but then I started to feel scared.
At the hospital, they checked me out extremely thoroughly checking for detached retina and mini stroke, but everything seemed ok. My blood pressure was raised, but he thought due to me being anxious.
The doctor has given me Asprin to take and I have to see my GP on Monday morning as an urgent case.
If I have any other symptoms or a return of this, I must go immediately to the hospital.

I feel ok now, but am worrying if it will return, and what it all means!

I'll value your prayers please.

One day, I hope to be over this surgery, and feel normal again!


  • Oh Jelly,

    I hope you are ok! Are you taking any nerve meds? Anything like Lyrica? I have heard it can cause vision changes. I hope your weekend can improve. Good luck on Monday, and of course, keep us posted!!

  • No, not taking any meds other than antibiotics for the wound infection, antinflamatories for the allergic reaction to the dressing, paracetamol and diclofenac, prescribed by the surgeon/hospital.

    The hospital, this morning have told me to stop the diclofenac and take the aspirin instead.

    Thanks for the hugs :-) I need them!
  • Do you have any history of migraine in your family??
  • Yes, I have had migrane in the past, but not lately. I didn't have any headache, but I know that it can still be migrane.

    I don't know if the migrane could cause this loss of ability to read though. What do you think?

    At first, when I was having the visual disturbance, I wondered if it was migrane, which is why I didn't worry too much until the problems with decoding the written word came along. I could still speak ok, but just could not manage to read, or even know what sounds the letters made. There were numbers that I couldn't read either. Scarey!

    I gave all my family a fright, I can tell you.
  • Awww Jelly,

    Anytime. I can only imagine how frightening that must have been. God bless!!

    Hugs Again,
  • It is called an optical migraine. It has the aura, sometimes the loss of sight, sometimes in one eye, sometimes in both....It usually lasts about a half hour with me. I've only ever totally lost sight one time, the first time. i started to lose peripheral vision, and then it just continued in from the outside until it all was gone, like an eclipse of the moon. Then it all came back.

    Recently things just get blurry.

    I've never had migraine before, but I developed what was later diagnosed as an optical migraine a couple years ago. I was put on a medication and now I have had maybe three since...,most recently I have had two in the past month...since my surgery was denied.

    Look up optical migraine. There is tons of information about it on the internet. I'd be willing to bet this is what is going on.
  • Jelly, I'm sorry you are still facing new challenges each day. I'm so glad your family is supportive and agreed it was good to take you to the ER.

    I'll say a prayer for you!

  • See if you can get an appointment with a neurologist on Monday. I don't know about the inability to read the letter. I've never had that happen. Everything else sounds like optical migraine.

    They often come about due to stress and/or being tired. I have read that B vitamins MIGHT help...Of course, you will want to discuss all of this with your doctor on Monday...as you know none of us on the board are medical doctors.
  • for your helpful and kind comments.
    It is so good to have friends here.
    I'm off to bed now, chat again tomorrow. :-)
  • Are you on Lyrica or any other kind of nerve pain med?

  • Oh my friend! I so wish I could make this all go away for you!!

    I second Gwennies suggestion to try to see a neuro also. The part about not being able to recall the sounds of letters or ability to put together words is very similiar to characteristics of right brain issues.

    I know how scarry this can be. Years ago, I was in a very bad accident! I had a skull fracture, a brain subdural hemmatoma, a cental spinal cord injury and several cervical herniations.

    I had a hard time finding the correct word to speak. I could see, in my mind, the word in written form, but I couldn't say it!

    I will keep the prayers coming! Please keep in touch! Much love, Shari
  • Oh Jelly, You really are getting all the c$*p at once aren't you. It does seem that it never rains but it pours. I hope that gwennie is right about the migraine thing - I know that they aren't pleasant but at least they aren't something to really worry about.
    Hope you get on OK with your GP tomorrow. Nest practise stamping your foot if they are anything like mine!
  • lyrica almost took my eyesight and after i quit it it never came back reg i now have to wear glasses of which i never had to many havve said this has happened to them
  • Thinking of you today and hoping that you feel better, are able to find peace and can enjoy this Sunday!

    Keeping you in our prayers! many gentle hugs my friend! xxxx Shari
  • I am feeling quite good today. Hubby has taken youngest son back to uni but my other son and daughter and granddaughter are making sure I am not left alne at any time. So I am being very well cared for! :-)

    I am not taking Lyrica or anything else likely to have caused this. They checked my medications at the hospital.

    Trying not to worry too much until I see the doctor tomorrow morning.

    Have a good Sunday everyone. Take care :-)
  • I hope your appointment goes well tomorrow. I've had migraines with sparkling lights and blocks my vision mainly in my left eye. I used to get them in my 30's but eased up now in my 40's. Many triggers as found on the migraine website like MSG and hormones and even bright sunlight can trigger them. Hopefully your Dr. will offer meds to stop it in it's tracks and really pray you won't get them anymore. Best wishes and prayers for you everything is alright. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • scatomas. One thing that can cause them is having a high platelet count (thick blood). They can do a blood test for that if you are still having problems.


  • Good morning Jelly! Thinking of you today as you have your doctors appointment, keeping you in our prayers!

    gentle hugs! Shari

  • I had my appointment with my GP this morning and after several tests on me, she phoned the Stroke Consultant at the hospital.

    I have to fast from midnight tonight, and then report at the Accute Medical Unit at the hospital at 8.30 am tomorrow.

    I think they intend to scan my brain and neck and take some blood tests, to try to find out what is going on.

    Some good news : I took my last antibiotic this morning! Yay!

    Thanks for your kind thoughts and prayers for me friends! :H

  • my thoughts and prayers are with you. hopefully the testing shows the reason for the problem and the doctors can get it under control for you. try to have someone close by til the doctors get this taken care of, just to be on the safe side.
  • Jellyhall, my dear, what a scary thing! I meant to write last night about your symptoms. I have terrible migraines w/ocular involvement. Occasionally I have had trouble reading like you described; being able to see the words but not being able to figure out what they said. I just thought it was part of the migraine. I'm going to be much interested to see what news you find out.

    I was reading a neat article by the American Heart Assoc/American Stroke Association regarding connections between stroke and migraine. The article can be found at www.stroke.ahajournals.org Obviously, don't use this information for any self diagnosis (like I've been doing), but maybe it'll bring up some questions you can ask your stroke specialist.

    If you have time, can you please post what you discover or send a PM my way? I think I may need to talk to a doc too. I sincerely hope the best outcome for you...and me.

    Love and Aloha,

  • I am really interested to read the article that you spoke about. Any chance of you trying to find another way to help me find it?

    It would be so good if it was just a symptom of migrane! Let's hope :D
  • OK Jellyhall, I typed into Google "how to tell migraine from stroke". The resulting page, about 9 entries down came the entry "Blood vessels, migraine & stroke" by Moskowicz & Kurth. I'm sure you can find it with these search parameters. I want you to read that. It sounds like you and I share many of the same symptoms. I felt like the report, being presented by the American Heart Association, is probably reputable. It's worth a read and might be an eye opener. It's kind of clinical, but if I can figure out what it says, anyone can!

    Please, let's keep in touch in this issue until it gets figured out.

  • I am so sorry you are going through this, but I am so thankful that your doctors are on top of this and are doing what they can to figure this out!

    I will be keeping you in constant pray tomorrow ~ I'm trying to figure out the difference in time zones...

    Sorry about the fasting, but I know you are so thankful for taking your last antibiotic. I'm sure your GI trac is! :)

    Have you heard from Sparkle? I've been thinking of her and hoping all is OK with her and returning to work. I'm sure she has her hands full!

    I'll be praying for you to have a peaceful and restful nights sleep! Hang in there my dear friend!
  • Hey Jelly, keeping you in my thoughts and prayers today, watching for your post. what is the old saying, "the watch pot never boils"?

    Hoping that you are out enjoying your day but worried that maybe you are not.

    Praying that everything went well today! gentle hugs!

  • Thanks for the help in finding the article. I read it last night.

    Although, I have been given the all clear and told that it was the result of a migrane, that was after checking all the test results. My symptoms could have been the result of an TIA. I have peace of ming, because the test results were all normal.

    Wishing you well, and do be on the safe side :D

    How is your recovery going?
  • What a relief!
    Had a VERY long day at the hospital.
    We left home at 7.30 am and got back at 4.15pm. I am shattered!
    I had all sorts of tests; ECG, CT Scan of my head and neck, Ultra Sound of the arteries in my neck, blood pressure and blood tests.
    Yet again, they had great difficulty in getting any blood from me. I have a very sore and bruised hand.

    BUT, the great news is that the Consultant said that everything was normal and that my problems must have been due to a migrane. He said that 'forgetting' how to read can rarely by a symptom of migrane, just as some people lose the ability to talk sometimes. He did say that suffering with migranes makes me more susceptable to strokes, but he lifted the one month driving ban and said that I can stop taking the asprin (My surgeon will be pleased about that!)

    They were very good at the hospital. After a couple of hours, I was in a lot of pain from sitting, standing and pacing up and down and asked if there was a bed I could lie on. They found one for me, and then later even wheeled one to where I was waiting for the CT Scan. Then there was a 2 and 1/2 wait to see the consultant and they let me use a bed in a ward. They even brought me a lunch that was not needed.
    Later a nurse brought round the menu for me to order my meals for tomorrow! I said that I really hoped that I would go home before then!! Once they realised that I was recovering from a lumbar fusion, they wanted to take me to the various departments in a wheel chair.

    I feel so relieved and so do my family. I can now just concentrate on healing my incision and recovering from the fusion now.

    Next appointment is tomorrow to have the dressing changed. Let's hope there is more good news for me! :-)

    Hoping that you all have had a good and hopeful day too. Take care everyone, and keep healing. :H

    Shari (and all you others), your prayers were so helpful. I really value your care and support. Bless you all. >:D<
  • WooHoo! Thank you Lord for the power of prayer! I am so thankful that you have gotten the all clear! Now I can relax and stop watching for you post! :-) LOL

    I have been thinking of you! I am so glad that they were able to do all the tests necessary to rule everything out!

    Now it is your incision's turn to get the all clear!

    Hope that you aren't in too much pain tonight and are able to rest and get a good nights sleep!

    So happy you are Okay! gentle hugs! xxxx Shari
  • My dear Jellyhall, how proud I am for you. I know (from personal experience) just how scary it can be to wonder if you're having a stroke or to wonder why you suddenly can't remember how to read or speak. Crap that's bad. I can only imagine, then, the relief you're feeling at finding out that you're more or less normal! Great great news. Guess now you can just worry about that little ole fusion recovery.


    p.s. My recovery is coming along. I still can't lift anything and am still not back at work, but still I'm much better than before fusion surgery. Thanks for asking.
  • Probably less! Lol!
    My husband was surprised when the CT scan showed a brain!
    I am sure that this will have fueled my family with lots of teasing for the future!

    So good to get the all clear :D
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