I'm 11 weeks out from my L5S1 surgery.. unfortunately, things didn't go really well for me in recovery and I'm trying to deal with the mess that is now my back.
Based on my MRI's a few weeks back, here's where I am at:
1. I re-herniated in at least 1, maybe 2 areas.
2. I've got an excessive amount of scar tissue
3. There is a 5-6mm chunk of disc material wedged underneath my left S1 nerve root.
My pain levels have been going up this month and I'm not able to sit for more than a few minutes w/o pain in my back and legs.
I had a post surgical ESI nearly 2 weeks ago.. The pain went away to some degree, but more than than, the pain was different. The burning went away and was replaced with a dull ache and pain when I would turn to the left etc..
About a week out from my S1 ESI, my pain started coming back..
By Friday, it was back with a vengence and eclipsed my pre-surgical pain levels. Went from a nice 4-5 to 7-8+.
I always take the lowest possible dose and have been extreemely vigilant about logging my pain meds and pain scales in a spreadsheet so I can see how I am progressing over time..
Saturday I was able to lower my pain level from an 8+ to a 4-5 with OC20's + Soma , Neurontin and 550mg of Naprosyn.
The combination of those 4 medications will, at times give me some peace 80-90% reduction in symptoms .. but it doesn't last long.
Sunday was a no go on the meds.. Normally, I felt a 75%+ percent reduction in pain, on Sunday, maybe 30-40% (based on my numerical pain scale logs). Leg hurt, back hurt and the bottom of my right foot felt super tingly and hot at the same time.
I'm most disturbed about the new symptom that has popped up.. I am feeling pinpoint muscle twitching/contractions as well as other sensations all over my lower legs when I lie down and sometimes when I sit.
My calf muscle in my left leg is being deinnervated - aka wasting away.. (confirmed my my EMG testing)
My calf muscle feels like s floppy bag of goo. when I try to exercise (toe raises), it starts spasming in little clusters all over my lower leg.
I call my original surgeons office and they either tell me to call back in 2 weeks or have me schedule an appointment.
At the appointment, I ask questions about my back, my calf muscle, etc, I get nebulous answers and niceities.. ask more questions, repeat.
I leave these meetings with a crushed soul, I'm so scared, I'm in so much pain I can't really descibe it very well, I just know it hurts and where it hurts and when, I know my legs are on fire, I know I can't sit, I know I can't
All of that iformation elicits a blank stare of some kind of banter changing the subject.
I leave feeling lost and empty.. wondering if the Dr. even listens to me.. or cares? I dread what will happen between now and the next meeting..
I'm lost and I'm slipping down this big abyss and I don't know how to keep myself from falling in.