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jgriffith0059jjgriffith0059 Posts: 3
edited 06/11/2012 - 8:43 AM in Chronic Pain
I had a spinal fusion of my thoracic spine when I was 15. I am turning 25 next month. The Dr inserted a titanium rod and 4 screws. When I was 19, the rod broke cleanly in half. One day it was fine, the next day, it wasn't. I went back to my Dr that did the surg., as I was having intense pain, and he told me I needed to lose weight. I had recently had a baby. Prior to pregnancy, pain was bad, but I could deal. Prior to pregnancy, rod was not broken. So we assume it happened during or after this point. Anyway, I lost about 70 pounds. I exercise when I can. But my pain is to the point that I can not do anything anymore, it seems. I cannot sit or stand for more than an hour without pain and heaviness in my back. I can't carry my daughter for more than a few minutes. Doing her therapy and caring for her is becoming too much for me, and I feel guilty that my pain is in my mind keeping me from caring for her the way I think I should be. (She is handicapped and is four years old but is more like a 3 month old.) I avoid doing so much because I don't want to hurt anymore than I already do. I went to a few different Dr's but they didn't offer any help. They wouldnt even offer meds to ease pain. They referred me to a pain specialist. I've been waiting to see this doctor for almost one year exactly. I see them tomorrow. In the past, Drs would not offer pain meds because they said they didnt want someone as young as me on them for a long period of time. The dr that did my surgery told me that if I lost weight, I wouldnt hurt anymore, and he wouldnt offer any help either. One doctor wouldnt do pain manangement bc my daughter is handicapped and they thought that if i was on pain meds, they would "make me loopy, and we dont want you like that around your daughter". It's been frustrating. Have you all had to deal with things like this? How did you handle it? I may be having a surgery to remove the hardware. But I hear that this is sometimes pointless, and there's not much promise that it would relieve the pain...

Ideopathic scoliosis
Broken rod in thoracic spine
Herniated disc


  • What did the MRI read? Surely you have had an MRI, right?
  • I had the MRI almost a year ago... I've been waiting that long to see the neurosurgeon, so tomorrow I'll find out what he has to say about it... 2:30 pm can't come soon enough...
  • Hello Jgriffith,

    Where do you live? I ask that as you mentioned several long term distances between doctor and MRI etc. I am confused, if you lose weight you will stop hurting or reduce it? That is his answer for a broken rod? Any chance you can see another NS to see what they think? Losing weight is good as extra weight is not always a good thing, but I guess I just don't understand how losing the weight "fixes" your pain?

    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
  • let us know what the outcome is today after your appt - I am totally blown away, if what you said up there is true about the drs have told you...
  • I had my hardware removed and it did help for about a year. Then arthritis started setting in and it got really brutal. I don't think removing the hardware had anything to do with the arthritis setting in or the stenosis tho. That just happens to some people.
    It's a tough call. Best of luck to you. There are so many here that live such miserable lives, if you can call it that. I feel bad for all of us, it isn't fair and it sucks giving up everything you love to do. So many here have major life choices to make and it is very hard and very scary. All you can do is what you think would be right for you. Personally, I think doctor's lie to make money knowing it isn't gonna do much in the long run, but that's just my opinion.
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